My Life, The Roller Coaster Ride

Whenever I hear the phrase “roller coaster ride,” I typically think of the highs and lows it represents. True, a thrilling roller coaster has its ups and downs, usually fraught with some amount of excitement and unpredictability (or even harrowing predictability), but a good one also has some twists and turns. Parts are fun, parts are exciting, and some parts make you wish you could just get off that thing. Like, now.

Such is today.

Last week I was tickled pink by the discovery that Maddie apparently has straight A’s. Woohoo! A thrilling surprise!

And today we are back in the “my kid won’t get out of bed” portion of the ride. Oh, boy, my favorite! This, I suppose, feels more like that slow climb at the beginning of a roller coaster, which I’ve always found uncomfortable. Something else is coming, whether exciting or terrifying, but it’s something. This part is the drudgery.

Or maybe it’s like the entirety of the Indiana Jones ride at Disneyland, which basically just makes my neck hurt. Too much jerking around. I have spent an awful lot of time at the chiropractor lately.

Today Maddie announced she doesn’t get enough sleep. Well, that is not at all true. She is 15 years old and we make her go to bed between 8:00 and 8:30. I wake her up at 6:30. So she’s getting in the neighborhood of 10 hours of sleep. Maybe nine and a half. But I get it. When my alarm goes off each day, it sends a wave of despair throughout my body. Ugh. Not only is it dark, but my first order of business is the most important and typically the most challenging. It’s not a great way to start the day. Dark in a couple ways, I guess.

This morning Maddie needed a few extra minutes for her morning routine. She didn’t shower last night, as scheduled, so in lieu of a shower she was supposed to spend a few minutes this morning doing some cleanup. You know, because of the smell. When I made this pronouncement last night, I wasn’t optimistic. She’s usually shoving a few bites of breakfast in her mouth when the cab pulls up in the morning, and I’m lifting her backpack onto her back and putting her sweatshirt in her hand while escorting her to the door. “Have fun! I love you!” I say, trying to be calm and encouraging. I really want to say, with my hands in fists and my jaw clenched, “Get your ass up there, Maddie!” but I don’t talk to her like that.

So this morning, she is lying in bed. Not moving. Not talking. Nothing. Finally, she says, “I need more sleep.” Finally. Words. 

I give in a little. I see the writing on the wall. Or some of it anyway. So I call the transportation guy and let him know the cab doesn’t need to make a stop here this morning, but Maddie will need a ride home. Oh, I am so hilarious! I am still thinking she’s going to school.

The problem is, I have things to do today. I have to be home by 9:30 to receive a furniture delivery. And then I have other plans. It is not workable for me to spend the 45-60 minutes driving her to school whenever she feels like it. Nor do I think that’s reasonable.

“You can sleep for an hour,” I tell her, “and then I have to drive you to school because I need to be home.”

“That’s not enough sleep,” she says.

“How much do you need? What time are you thinking?” I ask. Reality is beginning to sink in. She doesn’t answer.

“You’re not planning to go to school at all, are you?”

“No, not really.”

Well, at least I have an answer. I can stop the negotiating and finagling, but I’m very unhappy with the situation. It’s Tuesday. She doesn’t like Tuesdays, we have established. Well, now neither do I.

This makes me think of the very first time we took the kids to Disneyland. She was four, and my son was 2. It had been more than 20 years since my last visit. I was so happy! We entered the park, and in a fit of nostalgia, headed straight to the Pirates of the Caribbean ride. It’s slow and easy, but it’s dark in there. I had forgotten, also, about two small drops in the beginning of the ride. It’s so dark that they come as a surprise. After the first one, little Maddie said, in her deadpan delivery, “Oh. This isn’t good.”

No, it’s not good, but there we are, stuck on the ride, whether it’s good or not.

I turn off her light and exit the room. I’m trying to take some deep breaths and let it go. I feel the tension in my neck and, I swear, in my brain. I’m stretching and breathing. Whatever part of the ride this is, I hate it. It’s that one upside-down twist too many.

Actually it reminds me of a ride called the Hammerhead Shark at Discovery Kingdom in Vallejo. You just swing up one way and hang there for what feels like an eternity. Then you swing down the other way, and up again for another seventeen hours. The one and only time I rode that thing, I actually feared for my life. I wasn’t entirely convinced the bars that were clamped in front of me would continue to hold me, and then I’d fall face first into the ground. I clenched my teeth and closed my eyes and waited for it to be over. Luckily, I never ever have to get on that thing again.

I wouldn’t say that Maddie’s refusal to go to school feels especially dangerous, but it’s symbolic of the struggle we face, and of the uncertainty that comes with it. Also the lack of control I feel over the circumstances. Just as gravity would have taken over had the ride’s safety measures failed, so does, perhaps, the Asperger’s. I have no control over this situation. I want to have at least some feeling of control. But today I don’t. I don’t even seem to have any influence.

Then again, Maddie does have straight A’s (at least for the moment). Maybe an occasional day off isn’t the worst thing in the world. This is so confusing.

Today I’d like to stick to the carousel. It’s relaxing. It’s predictable. Pretty much anybody can enjoy it. Usually there are music and pretty colors, too! That sounds so pleasant. The ups and downs are really small, barely perceptible. Everybody’s smiling! It gradually slows down–no starts and stops, no jerks or squeaky breaks–and then everyone has plenty of time to get off. Or if you want, you can just stay put and ride it again.

I’m starting to relax. I’m heading toward acceptance. This is what today is. It just is. Whatever comes my way–and I realize nobody ever knows what’s coming–I will nod my head and think, bring it on. I can do this.

I can take the slow ride up and the fast ride down, the loops and twists and the hang-upside-downs. Eventually it will slow down. Eventually I will get off. And then I will get on another ride. And that’s okay. I might not enjoy an awful lot of it, but I will be alright.

Years ago, on that girls-only trip to Disneyland, we went (finally!) on California Screaming in California Adventure Park. That is an AWESOME roller coaster. Just the perfect blend of excitement and fun. Maddie screamed the entire time. I couldn’t see her face, so I became unsure of the intent behind her screams.

Finally I asked, “Are you OK?”

“I’M GREAT!” she yelled. She was taking in every curve and drop of that ride and living it to its fullest.

Maybe, like Maddie, I should scream just for the fun of it. I can’t get off this ride, but I can make the most of it! Or at least I can try.

Why I Love Weekends

This seems like kind of a stupid topic. I mean, everybody loves the weekend. Don’t some of us live for it? No school, no work. Time to sleep in, get some rest, maybe catch a ball game or a movie, spend time with your kids, go on a date with your spouse, clean out the garage, whatever! All the things you want to do during the week but don’t have time for.

I love all that stuff, but the best part for me is not having to get mad at or frustrated with Maddie. I’m sure I’ve said this before, but she’s a really lovely person. She’s happy, fun, optimistic, engaging, and sweet. There is none of the typical teenage angst so many of my friends talk about these days. No drama for the sake of drama, no slamming doors, no “I hate you, Mom!”

The hard part with Maddie is getting her to do something she doesn’t want to do. That’s really the most pressing problem with her. What I dislike most about weekdays is the proportion of time I spend in conflict with her. I don’t want arguing over what she’s supposed to be doing–and her refusing to do it–to be the primary way in which we relate to each other.

So on the weekends, I just let her be for the most part. There might be homework and most certainly a shower, and I might have to fight her over those, but at least the sense of urgency isn’t there as long as we don’t wait until Sunday night to address them. Then she’s happy as can be, and so am I. It is so relaxing to wake up in the morning without dread about the day to come.

A few years ago, my son had been talking for some time about making a trip to Washington, DC. I don’t know why an eight-year-old boy would choose a historical, educational sight-seeing trip for a vacation spot, but he did. And this wasn’t a trip that Maddie would have found remotely interesting. A whole lot of walking around museums and historical sights, forget it! She likes Disneyland.

So we decided to split up for spring break. The guys went to DC and Maddie and I went to Disneyland for what ended up being some of the best five days of my life.

We had five days with no agenda except for whatever Maddie wanted to do. I didn’t care what time we got up, how long we spent in the park, what time we came back, which rides we went on and how many times. And with no other kid involved, there really was no negotiation of any kind required. It was all about Maddie. And it was GREAT. I got to enjoy all the wonderful aspects of my child without a single issue. Not one.

And one of the wonderful aspects of Maddie is she knows how to have a good time. It’s kind of hard not to have a good time at Disneyland, but there she is in her element.

We went to Disneyland a number of times when the kids were little. The last time we all went as a family, the kids were six and eight and it was kind of a disaster. It was February, and it was cold and pouring down rain, for one thing. It’s never cold and rainy in Southern California, is it? Well, it was. Just for that week.

And our son had the flu.

And, it turns out, he really doesn’t like rides. When he was really young and only able to go on the kiddie rides, it was great. But then he got to the age where the kiddie rides are lame and anything else is too scary. So amusement parks are out.

Back then we would stay in the Grand Californian, a bit of a splurge but the perfect place to stay when nap times are required because it’s actually connected to California Adventure Park. But this time, with just two of us, when I went to make the reservation, the cost seemed unjustified, so I settled on a nearby hotel called the Candy Cane Inn. It’s charming but very plain. Clean and uncluttered. No frills but perfectly comfortable.

And naturally, they have bowls of candy canes sitting around for their patrons. Those tiny ones that come in a long strip, all held together by the packaging. Maddie decided she ought to share them with the other kids at Disneyland, so the first morning she loaded up her pockets with tiny candy canes, and we headed to the park.

People are funny. There was Maddie, an 11-year-old girl in goofy clothes and glasses, offering candy canes to random kids she saw. She would bend down to their level, reach into her pocket, and sweetly offer the candy. The kids were mostly excited, and some parents were grateful if not a bit confused, but others looked suspicious and walked away. Maddie’s spirit was undeterred. She found so much joy in handing out the candy canes she’d swiped from the hotel lobby. And in the spirit of the trip, I just let her do it. I just stood back and watched my wonderful kid being her wonderful self without restriction.

We also enjoyed a lot of churros. Disneyland has the best churros.

And so, this weekend, a three-day one this time, I am content to let my kid be her awesome kid self. She can make duct tape swords, or work on her Halloween costume, or watch anime, or play Minecraft, or whatever. It would probably serve her well if I made her do some chores or something. I might ask her to unload the dishwasher later. She doesn’t mind that too much. But for now I am going to enjoy the days when I don’t have to freak out in the morning over a late rise, or a refusal to get up, or, if I’m really lucky, the mad dash to meet the cab.

I hug her a lot and tell her how awesome she is. I throw that word awesome around pretty loosely, having grown up in the 80s and gone to college among a lot of surfers, but “awesome” really fits here. She does inspire awe with her optimistic and generous spirit and her good nature. Everyone should be so lucky to know, and be in awe of, somebody like Maddie.