Coming Soon: A Whole Lot o’ Nothing

The weekend before finals week, families in our community held a party that’s been a tradition for some years: The kids who went to elementary school together and who are now graduating from high school, along with their parents, gather to celebrate with a reunion/graduation/college kick-off party. I had heard that usually the kids leave after twenty minutes, so the party ended up being more of a reunion for the parents. Some of these parents have become close friends since we met in 2005 when our kids were in kindergarten. Others I know as acquaintances only, but our shared history binds us together anyway. So I was excited for this event. And I wasn’t disappointed!

I knew Maddie wouldn’t want to attend. I invited her, of course, and I assured her that so many people–parents in particular–would be thrilled to see her. That’s absolutely true. But her increasing self-awareness, although welcome in many ways, makes social situations like this one difficult. So her dad and I went alone.

To my delight, the kids stayed and stayed. They embraced old friends and even a few threw their arms around me–and not necessarily the ones I would have expected. It was wonderful to see these kids who at five years old struggled to cut out a circle or spell a word well enough to somehow be decoded, turn (very suddenly in my eyes) into young adults, most of whom were about to leave home–many heading across the country. “What’s next?” we all asked the kids. “I’m going to Brown.” “I’m going to Emerson.” “I’m going to Cal Poly.” “I’m studying in London before I start at USC.” “I’ll be playing basketball at Foothill College.” “I’m taking a gap year when I’ll be studying drumming in Africa.” I suspect some with less glamorous-sounding plans might have skipped the party. I really don’t know. But the level of achievement among this group was impressive if not particularly surprising.

And then there WE were. The inevitable question in our daughter’s absence: “What’s Maddie going to do now?”

A year ago I began to anticipate the difficulty of the year ahead. My friends, most likely, would be focused primarily on the college application process. This would be yet another time in my parenting life when I would feel a bit on the fringe, even among my closest friends. They’d all be talking about the counselor they hired to help their daughter apply to college, or the SAT prep classes, or the college tours that had begun the year before, when they explored the East Coast, Southern California and maybe the Northwest in search of the perfect fit for their exceptional children. They would lament the impossibility of getting into a University of California campus, the unfairness of the admissions process, the importance of the ultimate decision, and then finally the dread and anxiety they began to feel when the reality of their kid leaving home began to truly set in. And I would have absolutely nothing to contribute besides a whole lot of questions and perhaps some encouraging words.

I was partly right in my expectations. All of that was a big topic of conversation all year. But I wasn’t quite as discouraged about my inability to participate because, quite frankly, it all seemed pretty stressful to me. I had my own particular source of stress, as usual, but I was actually a bit relieved not to be a part of that. Plus I know it’s all coming in a couple more years when our son heads down that predictable path.

By the end of April most all of Maddie’s former classmates had a plan in place. I had heard updates through friends and was nothing but happy for each kid and excited for their future. So I knew the “what’s next” question would feature prominently at this soiree.

“So, what’s Maddie doing now?” they’d ask.

“We have no idea and we don’t care!” I would answer gleefully. It was an honest answer in every way.

Sometimes a follow-up question came. I suspect my original answer was just too surprising to be enough. “Is she going to go to school?” Maybe, I’d say. “Well, is she going to work?” Oh, I don’t know, I’d say. And I really don’t care! I’d say again. We need a break!

My whole focus for several years was simply getting Maddie to finish high school and get that frickin’ diploma! For most of these kids, graduation was more of a stepping stone to what comes next, as it was for me when I was a teenager. For Maddie and me it was The Goal. It was about to be completed, and I could truly bask in the glory of that achievement, likely an achievement that required more tenacity and courage from both of us than the truly impressive academic careers of most of the other kids there. So much to my surprise, the glaring difference between my answer and theirs didn’t bother me one little bit.

Perhaps I have grown. Perhaps my impending relief simply spoke louder than anything else that might have bubbled up in that moment. Perhaps I was genuinely so happy for everyone else that noting else really mattered. Whatever the reason, and I suspect there were many, I was at home among the parents and kids whose paths had been so different from our own.

So, what is next? Probably a whole lot of nothing–for awhile anyway. Maddie and I do indeed need a break. And we’re taking it.

Bag Math

In this final stretch of mandatory school for The Kid Who Refused to Go to School, I’m doing my best to make it fun. This is really my life’s mission: If something isn’t fun, I try to make it fun. Why not?

Some years ago I was having a terrible day – I’m pretty sure everyone I lived with was conspiring to make me go insane, and they seemed to be closing in on success – so I decided to leave for a bit and head into San Francisco. It was a weekend afternoon so traffic was a nightmare and I’m pretty sure there was some huge event going on, so I couldn’t even park. Instead I just drove into the city, around it for a bit, and then headed home. My emotions were boiling over and I was struggling to enjoy anything at that moment. Then I spied two guys in a Mini Cooper driving over the Golden Gate Bridge with that convertible top down. I thought to myself, “If I had a convertible, I would be happy right now.” Of course that’s absurd. Exterior input like the fresh air blowing your hair to smithereens can’t compensate for the internal struggle we all face sometimes, but it certainly looked appealing.

So what I try to do is turn the mundane or the sad or the frustrating into something entertaining. I started making up songs when I was changing diapers 17 1/2 years ago. They were terrible songs sung terribly, but one of those poop-related songs inspired Maddie’s very first laugh, so I put that sucker on repeat. I goof around so much that at one point my kids told me I needed new material. Too many fart jokes, I believe. Once when I was driving the kids somewhere, I noticed the thermometer on the car indicated it was 80 degrees outside. “Eighty-degrees!” I declared. “That’s my favorite temperature!”

“No it’s not,” insisted both the kids. They thought I was joking. I insisted I was serious, but they wouldn’t believe me. And you know why? Because about 80% of what comes out of my mouth is a joke, or at least an attempt at one.

If I’m not cracking a joke, I’m doing the “waffle dance”—you know, because waffles—or the “I hate doing the dishes” dance or doing the worst fake-going-down-the-stairs thing of all time.

So last week when Maddie set her mind to finishing some year-end assessments in reading and math, I put on my silly hat (it’s always available) and we got started. Eventually we got to a problem that required some scratch paper. We were in my sort-of cleaned up room, so I as I scanned the scene for a handy piece of scratch paper, I could only find one thing: a small shopping bag from a local boutique. I grabbed it and said, “We’ll have to use this. It’s bag math.”

And so for the rest of the session, we did “bag math.” Was it funny? Eh, not really, But it lightened the mood and gave us something silly to say as we trudged our way through stuff I don’t remember, stuff she never learned, and a fair amount of straight up guessing. “Bag math” saved the day.

Sometimes when I’m cleaning the kitchen or folding yet another mountain of laundry, I jokingly announce how much fun it is. I hate the drudgery, but it helps to make light of it. Yesterday I accidentally cracked myself up when I noticed that, while absent-mindedly folding a pile of fresh clothes, I had grabbed the bottom of the SHIRT I WAS WEARING and begin to fold IT. Haha! I had a good laugh at myself and finished the job.

Last fall, years after my epiphany about the convertible and how it might have changed my outlook that day, I got one. “Life is more fun with the top down!” is my motto. And I was right: Life IS more fun with the top down, and math is more fun when you do it on a bag.

It’s All About the Pronoun

You know when your spouse says, “We should call the plumber” or “We should clean up the dog poop in the backyard” and you know what he really means is “YOU should call the plumber” and “YOU should clean up the dog poop”? The “we” is really “you,” and you both know it. A little pronoun sleight-of-hand to somehow both obscure and effectively communicate a message.

Last week I was having heart palpitations about the end of the school year, or more precisely, the end of school. Writing that sentence, I realize that might be a first for me. It’s always been the beginning of a new school year that sent my blood pressure through the roof as panic and fear of the unknown swirled in my head. The end of the school year meant a huge sigh of relief, and giant exhale, because for the next ten weeks I didn’t have to try to make Maddie do anything (well, except take the occasional shower). And yes, I still have that respite to look forward to. In fact, it might be the biggest exhale of my life when Maddie clicks “submit” on that last final exam. She never has to do school ever again if she doesn’t want to, and if she does want to, it’s all on her.  It’s completely optional! But in order to get to this particular ending, there is some work to do.

As an independent study student in her online school, she has no real deadlines except at the end of the semester. There are suggested deadlines for quizzes and assignments and tests, but the true deadline comes once. Luckily, with the help of Maddie’s tutor, we are usually somewhat on schedule (she’s always a good 10 or 12 assignments behind, which sounds worse than it is), but last week I looked and she had 23 overdue items (meaning the suggested deadline had passed), not to mention whatever had been or would become assigned but hadn’t yet become due. And then final exams.

Oh my god. How will Maddie ever get all this done? How will I get her to do all that work? I felt the wave of panic I’ve experienced so many times over the years. The insurmountable pile of responsibilities loomed dark in my psyche, the weight of it all sitting squarely on my shoulders.

Later that week, thankfully, I had therapy. I have been seeing a therapist for the last nine years, ever since I had a nervous breakdown from the sheer weight of, well, a lot of things. I am long past the part where you talk about your childhood or your traumas or whatever and figure out how to fix yourself. For years my therapist has been my coach and adviser, my cheerleader and guru. She brings me back to earth when I’m freaking out about, well, anything.

So this time we talked about Maddie and my anxiety over the mountain of work on Maddie’s plate. As I talked, I realized something. There was no way on Earth I was going to allow any outcome other than Maddie finishing and graduating. “She just has to pass,” I reminded myself out loud. “She doesn’t need A’s. She just needs to pass.” I continue to say that out loud to convince myself of the truth of it.

With equal parts realization and conviction, I said, “Oh, we’re gonna get this done.”

“I think you got your pronoun wrong,” she said wryly.

I thought for a moment. “Okay, I’M gonna get this done.” Not we. I.  “I don’t care if I do it all myself,” I said. And I meant it. At this point I would do just about anything to get that diploma in Maddie’s hands, to complete this mission on which we’ve both worked so hard.

What kind of mom announces she will actually do her kid’s last two weeks of school work? Who decides the easy route is the right route?

You know who? The kind of mom who for a solid year taught her child to speak by sounding out words using foam letters in the tub, that’s who. The kind of mom who heard only screaming for the first 25 months of her child’s life before finally hearing the word “mama,” the first recognizable speech ever uttered by her oldest child. The kind of mom who fought back tears through countless SST meetings and  IEP meetings, and changed her kid’s school three times, desperately trying to make the right choice for this puzzle of a kid. The kind of mom who braced herself for a fight–really a frustrating, defeating exercise in futility–every single morning for three years trying to get her kid to go to school. The kind of mom who for the last year has read the world history book out loud to her kid just to engage her in school, doing silly dances or making jokes to make it as much fun as I could–for both of us.

There is no way I would let all of the emotional roller coaster rides, all of the anxiety and worry and tears and confusion and countless hours of just plain old work end in a big fat nothing. So if she can’t make herself do this last little tidbit of work for herself, I’ll do it for her. I’ll do it for ME.

So this time the pronoun is clear: I WILL MAKE THIS HAPPEN. I hope Maddie will cooperate and do the work, but if not, I hope she’s at least along for the ride. In two weeks we can sign off from school forever. And I can pat myself on the back for a job well done.

The Experiment Continues

In August 2015 I had what turned out to be a knee-slapper of an idea: The school year that was about to begin would somehow be The Big Experiment. Maddie was about to to start public high school as a sophomore after three years at a private special education school, and after a year of battling with her over attendance on a daily basis, and years of thinking and thinking and wondering and planning and getting disappointed and crushed and then reviving myself for the next round, we had decided This Was It: It was either This (the public high school)—or boarding school. The idea behind boarding school was since the kids sleep and wake up AT school, they can’t not GO to school. They’re already there! And that’s what I so desperately wanted for my bright, talented, interesting, lovable kid: to GO to school.  Well, and to not have to freak out every single morning over her refusal. I had felt the years of my life slipping away from me as the stress built up in my body and mind. It really was taking a toll, so something had to be done.

Nearly three years—and another new school—later, I realize how naive and narrow-minded my thinking was. The idea that somehow it would all sort itself out in that defined period of time is absurd to me now. What was I thinking? I don’t know exactly, but let me tell you, it got a whole lot worse before it got better.

I’m not sure how many times my therapist had to tell me that just because going to school was what I would have wanted, just because I thought the social part was important, or just because I really thought going to a dance was an important part of the high school experience, those things would necessarily have any meaning for Maddie. It wasn’t until Maddie basically quit going to school in October of her junior year (2016), and I fully gave in to the concept of her not going to school, that I also fully comprehended not only how differently we are made but also how perfectly fine those differences are.

We worked with the school to complete her junior year’s coursework basically in a home-schooling capacity.  But at the end of the year we had to make a decision. The public school is not in the business of home-schooling, we were told. The teachers and administration had been so accommodating! They had bent over backwards to make things work for us, but they could not continue merely sending home work for Maddie to complete without having her attend at least part of the time. They had revised schedules, reduced schedules, minimized the amount of time she would need to be there, but ultimately it just wasn’t happening, so we absolutely had to take another route.

If you are the parent of a child with special needs, you can imagine my mental state at this point. Every new attempt to make things work is fraught with anxiety because you know it may or may not work and then you’ll have to go through the process all over again. You’ll have to rethink and rework and research and try, yet again, to make the best choice for your child, knowing full well this may be just another attempt in a long line of failed attempts to get it right.

With the help of two consultants, we landed on public online high school for senior year. Online because Maddie could literally do school in bed. Public for several reasons: she would have an IEP and they would have to make accommodations; it follows the state curriculum so she would have a diploma from an accredited school in case she wants to go to college at some point; and it’s free. We still pay a lot of money to the educational consultant who works with Maddie twice a week and manages her workload, so free is a welcome bonus.

And guess what? It’s working! There have been ups and downs, particularly for me. Last summer during a meeting with our consultants, one of them mentioned she thought my motivation was to manage all of Maddie’s schooling for this year. “Um, nooooo!” I clarified. “If I had my choice, I would have literally nothing to do with it.” And I meant that. I’ve had it “up to here” with the stress of it all and would gladly have gone on my merry way and let those two ladies work it all out with Maddie and I could just make her food, badger her into taking showers, and then have fun with her. That sounded perfect! “You all just work this out, and call me when she graduates!

As it turns out, I have participated quite a bit, but our educational therapist is the Overseer of Things, and for that I am grateful. The stress of the school battle was quite literally killing me and I needed to hand over part of the responsibility to somebody else at least for awhile.

I’ll write more about the experience of online school later, but for now I’ll just say this: What I thought was going to be an experiment with an end date and some sort of answer was indeed an experiment, but one without an end. This whole parenting thing is an experiment. I’m still working on it. We are still working on it. There is a lot of talk about what’s next (that’s another blog entry), and I don’t know what that is yet, but it will be something and then something after that and then something after that. And we will forge on, trying to have fun along the way and not losing sight of the end goal: a content, fulfilled, secure human being. In that part of the experiment, I’m pretty confident we’re succeeding.

And Maddie will graduate on June 14th – her 18th birthday.

P.S. Special shout-out to those who encouraged me to start blogging again. Thank you!