Thanks for a Bunch of Stuff

It’s the day before Thanksgiving. I’m busy cooking away. The first thing I’m thankful for, though, is that I’m not hosting. Several years ago I made my first and last Thanksgiving turkey. That sucker was vile, in my opinion. I have decided that any meat I eat needs to look as little as possible like the animal from which it came. I should probably be a vegetarian, but a little meat here and there is just so darned delicious. Especially bacon. And not so much turkey, anyway.

I’m also making spaghetti with meat sauce for tonight’s dinner. I discovered I like cooking so much more when (1) it feels totally optional, (2) lots of people are going to eat it and hopefully rave about my cooking, (3) I don’t have to clean up (that remains to be seen), and (4) I have music to listen to. Jamming to my Amazon Prime streaming music on the Amazon Echo (product plug!), so tonight it’s all good.

I have hosted Thanksgiving since what I will call the Turkey Incident (only because a turkey happened here), but I had vowed that any turkey served at my house must arrive here already cooked. Or at least not seen or handled raw by me. And, as it turned out, everybody was up for something different anyway, so I made filet mignon one year and meatballs in a creamy tomato sauce last year. Both were delicious and I don’t think anybody missed the usual fare. Also most people probably had it elsewhere on another day, so I didn’t feel bad at all.

We will be having the whole turkey business tomorrow, but today I’m just making about 172 pounds of  Brussels sprouts (with bacon!), chocolate chip cookies, and some guacamole. And then we get to drive about 45 minutes to mess up somebody else’s house. I’m stoked.

The second thing I’m thankful for is my weird and wonderful family. I often despair that my kids are such polar opposites that doing anything together as a family is a real challenge. Tempers flare on those occasions, too. It can be stressful and depressing for me as the mom. But one thing we all do together so well is laugh. We love to crack jokes, make sarcastic comments, dance funny dances and play slightly inappropriate card games (now that we have teens in the house, that is). We laugh so much. Humor has always been central to my life experience. I would rather laugh or make you laugh or laugh at myself than just about anything. And we do that. A lot.

This applies to my extended family as well. Whenever we get together, my niece Maggie makes sure we play some games. A year or two ago we started playing a game (it’s really just more of an activity because nobody wins or loses). Everybody has a paper and pen and for two minutes everybody writes the beginning of a story. When the time is up, everybody passes their paper to the left and the next person continues where the previous person left off. Everyone writes furiously for two minutes. And in the end we inevitably have a collection of stories that range from funny to tear-inducingly hilarious. It turns out everybody in my family is not only hilarious but also creative. You can usually tell what Maddie wrote because she often gets stuck on a phrase (for a long time it was “flaring butt cheeks”). And I always thought I was the funny one. 😦

(An extra little shout=out of gratitude for my niece, Rachel, who is gracing my life with her wonderful self right now.)

I’m also thankful for the family I married into. I am one of those lucky women who adores her mother-in-law. It’s mutual, it’s safe to say. She’s kind and fun and honest and open and a true friend. She and my father-in-law have always treated me with such kindness, love and respect. I’m proud to be part of that family.

I’m also thankful for all my friends. My life is full of the best women. My oldest friendship is with Melinda–34 years of friendship and counting. She and her husband Jonathan successfully played matchmaker about 19 years ago, and the result is my marriage of 17 years (so far) and two crazy kids. Another result is a four-way friendship among us that is one of the greatest joys of my life. Jonathan is my husband’s childhood friend, so the history between us is unusual and deep. Our families are intertwined and our friendships are the best combination of friendship and family. We spent the evening together last weekend, and, as always, I laughed and laughed. I also didn’t want to stop hugging them.

I have so many wonderful friendships, and that term is really meaningful to me. Friendship means a close connection, being there in spirit if not in body. It means holding the other person wherever they may be. It means doing what you can to help, whether it’s picking up their kids, hanging out having an afternoon glass of wine while we try to solve each other’s problems, or sending a message of support in difficult times even if there are 3,000 miles between us. From the friends I made in high school and college and grad school across the country, to all the awesome women I’ve met through my children, I love and cherish them all.

I have so many other things to be thankful for. This beautiful place I live in, the community I’ve become so much a part of, the resources to help our special needs kid (we are SO lucky), a roof over my head, food on the table. I have everything I need and so much more. Despite the stress I write about so much (and it is real), the truth is I’m very happy. I have so much to be grateful for. And every day, not just today, I am grateful.

Last week I was snuggling up with my seventh-grader at bedtime. “We talked about gratitude in class today,” he told me. “Studies show that people who are grateful are happier.” He clarified: “It’s not that happy people are more grateful. It’s being grateful that makes you happy.”

I think he can move onto eighth grade now. Or maybe straight into adulthood. He has learned the biggest lesson of all. Focus on gratitude, and you will be happier.

So Happy Thanksgiving, all. May the gratitude you feel tomorrow and throughout the season stay with you forever. And may you laugh tomorrow at least half as much as I will.

Voices

As I was tucking Maddie into bed tonight, after a rather frustrating and exhausting couple of days with her, she shared this little nugget:

“At school I read a bunch of symptoms of disease in my Smeagol voice.”

“What?” I asked. Seriously, what?

She repeated it.

“When?” I asked. I still had no idea what she was talking about. I also didn’t know what a Smeagol voice was (I had to Google this to get the spelling, by the way).

Her P.E. class is currently doing Red Cross First Aid and CPR certification, which I love. I also love her P.E. teacher. And now I love her even more.

Maddie was to read aloud from their textbook, and began reading in her Marvin the Martian voice (remember that little guy in the Bugs Bunny cartoons?).

Ms. B asked if Maddie could do any other voices.

“Yes, Smeagol.”

“How about reading some in that voice?”

And so Maddie did. (Smeagol, I now understand, is Gollum from The Lord of the Rings, that weird little guy with an unhealthy obsession with the titular ring.) And when she was finished, everybody in the class clapped.

That was last Friday, five days ago. And in typical fashion, it took Maddie that long to tell me. And I am so happy she did. What a nice way to end the day–with a smile and some hope.

Today I spoke to the educational consultant. My husband I are meeting with her next week to discuss potential boarding schools. I still do not intend to send Maddie away. I want her to stay home and continue at this wonderful public school where the teachers and kids like her swords and appreciate her ridiculous voices. I’ve wanted so badly for her to find it in herself to make this work. And now I want that even more. But ultimately it’s up to her.

I hope she makes it work. I really really do.

A Hard Lesson Probably Not Learned

You know how if you miss a week of work, it’s not really like taking time off? It’s just moving it from one week to the next, when you’ll just have twice as much. As adults, we all know it’s coming, so missing work is a calculated decision on our part, whether it’s for physical health or mental health reasons. That work isn’t going to vanish just because you’re not there.

This morning, after skipping school yesterday, Maddie got up with a fair amount of verve and intention. It was the usual morning of increasing tension, as she was doing what she needed, but at a snail’s pace, and then, just as the clock struck 7:15 and it was time for her to be meeting the cab outside, she thought of two more things to do. Stressful, but normal for us. Off to a relatively good start.

Today Maddie had a dentist appointment, and her dentist happens to be near her school, so I picked her up after school instead of having her catch the cab. I can always tell immediately what kind of day she had, regardless of the words that come out of her mouth. She almost always says her day was great, and today was no exception, but her voice was flat and her eyes were down, so I knew she wasn’t being honest.

After some coaxing, I finally got a confession: she had NOT had a great day, and the reasons boiled down to (1) lunchtime detention for cutting school the day before, which she forgot to go to (or avoided) and (2) a giant pile of homework for tonight. She doesn’t tend to have too much homework because of her IEP and because she has lots of time to do work at school. I am so grateful for that.

But yesterday she missed a whole day of both classwork and homework, so tonight she faced five pages of math and a page each of English and history. For her that’s overwhelming.

And THEN she was going to the dentist, which, like most people, she hates. We drove to the dentist’s office, and since we had some time to kill, I suggested she make good use of it. She’s reading Of Mice and Men* with her English class, so I suggested we read some of it on my phone (thank you, Kindle!). She resisted, but somehow or other I got her to go along, mostly reading it aloud to me.

Then it was time to go in the building. “I’m not getting out of the car,” Maddie declared. And I knew she wouldn’t. She had already shown resistance, from the moment she got in the car, and I had tried both a promise of a reward and a logical explanation of the consequences (who knows if the rescheduled appointment will come on a better day?), but, nope, it was not happening.

Fortunately the dentist and her staff are both kind and compassionate. The receptionist was understanding and offered to reschedule. I cancel appointments at that place constantly, and in fact canceled my son’s last appointment because of trouble with Maddie. I’m probably the flakiest mom they have at that practice as I probably only get my kids to a third of their appointments, always canceling at the last minute and then maybe getting them there several months later. It’s a miracle that my 15-year-old has never had a cavity and my 13-year-old just has his first one–a tiny one–given the lack of effort we have put into dental care over the years.

After making a new appointment, I returned to the car, and we headed home. Maddie finished reading me the chapter in her book on the way. Every once in awhile, she was start to shut down. She wanted to cry. She wanted to pout. She even said that out loud. And then when we pulled in the driveway, she didn’t really want to get out of the car. After all, the next thing to face was that huge mountain of work.

We made an agreement. She would do one hour of hard work and then she could take a break and watch a show. She was amenable to that and was able to sit down and sort of focus for awhile, although I was intimately involved in her homework, writing her math so she could just think and talk, encouraging her when she felt stumped, refocusing her when she got distracted, and giving her lots of positive reinforcement. She didn’t finish all her homework, but she gave it a good try.

So now she is done. She is watching her show. And I am ambivalent about our evening together. I really coached her through a hard time, and she was able to get through it. That’s a good thing. I also pointed out more than once that her problems were directly related to the choices she had made yesterday. I knows she understands that intellectually. I made sure she does. The problem is, will she be able to apply what she knows right now next time she wants to stay home from school? I’m not so sure. Mostly that’s because of Maddie’s challenges, but I wonder right now if I haven’t just undermined my own lesson. I wanted her to get her homework done so badly that I sat with her and gently but firmly guided her through it. And I let her quit after a good 90-minute session in which she nearly quit several times. Perhaps I should have let her suffer the consequences a bit more. Perhaps giving her my company and gentle encouragement weren’t the best course of action. Perhaps the lesson she needed was how much two days of work sucks more than one day’s worth, rather than whatever she was learning in math and English.

It’s too late now. Today’s lessons are done. For both of us. Maddie will go to sleep tonight, tired and glad today is over. Tomorrow she will wake up and probably have no immediate recollection of today’s suffering. I’ll remember it, though! Let’s hope I remember, the next time Maddie skips school, the lessons that matter most and hold Maddie accountable and maybe let her suffer the natural consequences a bit more.

As all parents know, the hardest part of parenting is the not knowing how well we’re doing until it’s too late. When our kids have become adults, we can look at them and think, Well, I guess I did okay! Or, Gee, I should have done this other thing. But until then, the results are still in process. So who knows what effect today’s events and my parenting in the midst of them will have on Maddie. Maybe none. Probably none. We shall see.

 

 

Life As I Know It

Yesterday was such a long day. I think I might have aged a year in 14 hours. I’m certain a few gray hairs have appeared and my frown lines have become more pronounced since yesterday morning. It was just one of those days that needed to END. I needed a fresh start today. Fortunately every day is an opportunity for a fresh start, and every day I take it.

After I got Maddie off to school yesterday, after several hours of dealing with her opposition to that idea, I was exhausted in ever way. I was immobile for most of the afternoon, lacking the energy and desire to see anybody or do anything. For a moment I thought a little retail therapy sounded good, but I was too depressed to go anywhere. So I went home and did nothing. Well, I wrote a blog entry and watched an episode of The Voice. Good choice on my part for a number of reasons, including the fact that writing and watching On Demand didn’t cost anything.

Soon it was time to pick up my son, and not long after that Maddie arrived home in the cab. I was dreading the afternoon all day. I knew she would have quite a bit to accomplish because she hadn’t finished some of her work from the night before. And I was right. She had a pretty hefty math assignment and science to complete. Plus a shower.

Ever since homework became part of our lives when Maddie was in first grade, I have spent some of the day dreading it. And the moment I see her after school, it is on my mind. I always give her a warm welcome home and ask her about her day, but then I dive into the homework questions. And we make a plan. Or rather, I make a plan.

So we dove in around 4:00 and nearly three hours later I was still sitting with her while she did her math. She needed a little help with a couple problems, but mostly she needed help staying on track. She’s been better about that lately, but yesterday everything was a challenge for her, so I just gave in to the idea of sitting with her to ensure success.

I did not, however, anticipate how long it would take her. There were an awful lot of problems to do, She was also very unfocused. I spent a lot of energy helping her be productive. It was hard. I was patient. It was long. I got tired. When she finally finished her math, it was time for a little science work, but she also had a long overdue shower to take, and I sent her off to do that.

And then the shit hit the fan. She decided she wanted to watch the newest episode of The Flash. But it was too late to both take a shower and watch the show. By that time I had given up on the science; she could do it the following day during Academic Workshop (study hall). She would have to stay up late in order to watch the show.

“Absolutely not,” I said.

“Why not?”

“Well, you skipped school yesterday and missed half the day today. You do not get special privileges unless you earn them. You don’t even have your usual privileges,” I explained calmly.

And then I saw it. Her body stiffened, and the expression on her face changed. Her eyes looked determined and her lips smirked. Everything about her said, “Oh YEAH?”

“I really want to watch The Flash,” she insisted.

“I’m sorry, but the answer is not tonight.

“Why not?”

“I already told you why not,” I said, and then repeated my explanation from a moment before.

Maddie was not giving up, but instead becoming increasingly determined. She would not budge. She looked me straight in the eye, challenging me to defy her wishes. How I wanted to just say, “Oh, forget it, go ahead.” That would have been so easy and relaxing. She could go do her thing and I could do mine, and everybody wins!

Except everybody doesn’t win. She has to understand that her choices have natural consequences. If you haven’t finished the things you are required to do, you will not have time for fun. That’s just the way it is. I have said that a thousand times. But as we’ve learned, her mind doesn’t work that way.

“But why?” she asked over and over. I explained that special privileges are earned, and staying up late is a special privilege that she had definitely not earned.

She was desperate. She wanted to watch The Flash so badly. “How about if I stay up late tonight and then get up in the morning? Then you’ll see I can do it.”

Stupidly I have fallen for this logic more than once. It sounds wonderful, but it’s a trap. It NEVER happens that way. Why do the work when the reward is already in your pocket? I got my reward, so see ya!

But last night I remained strong. I would not give in. But she’s a tough nut to crack. She wouldn’t give in either, and she is the most determined person you could ever meet in a moment like that. She followed me around the house, looking me in the eye, challenging me. She wouldn’t let me out of my room, blocking each door as I tried to exit. She announced she would do it all night if need be. And you know what? She is perfectly capable of that. I could feel panic start to set in (What am I supposed to do now?) but I worked to retain my calm exterior. I was not going to give up or give in or be upset. I would stay firm and strong and calm.

“I’m done with this conversation,” I announced. “I’m not going to answer you anymore if you talk to me about it.” I had to do my part to put this issue to rest.

But the conversation wouldn’t stop. I kept repeating that I was done, and she kept going. She was going to WIN.

Finally, Rachel (my niece) said, “I’m going to the store. Wanna come with me?”

Oh thank you, my dear Rachel! Something had to give here. Somehow this needed to stop. I was trying to extricate myself, but Maddie wouldn’t allow it until that moment.

We were only gone 15 minutes, but it was a very valuable 15 minutes. I had been trying to leave, but wasn’t able. It was a good instinct. When I got home, Maddie was calm and remorseful.

I looked at the clock. We had spent an hour and 15 minutes in this cycle of questions and explanations. I pointed that out. She could have accomplished so much during that time or even gotten some sleep. She announced she was now ready to shower, but then it was late, so I suggested she just get into bed.

“I just want to sit here and mope,” she said.

“What are you feeling right now?” I asked.

“Guilt. Regret. Sadness,” she answered. Well, that’s something. Emotions identified and communicated! Nicely done.

“Do you know what you do when you have feelings like that?”

“No.”

“Well, when you have guilt and regret, you think about what you did. You think I don’t want to feel like that again, so I won’t do that again.”

“Oh.” News to her, as usual.

“Let’s start fresh tomorrow,” I suggested. “We’ll just start over. If you’re awesome all day, starting right now, and you get up in the morning on time and do your homework and shower without any arguing, you can stay up a little late to watch The Flash.”

I have learned that if she has already lost any chance at a reward, there is no more leverage. I try to keep that in mind. There has got to be something fairly immediate at stake, and even then, as we know, the outcome is not guaranteed. Not even a little bit.

“Okay,” she said. I hugged her and we talked and I said goodnight.

It was a hell of a day. I am glad it’s was over. I wish I could be optimistic that tomorrow will be a better day, but reality and experience tell me it’s a crap shoot. It seems to me that a third morning in a row like this can’t possibly happen. I’m not sure I could take it. Maybe I would give up. I can’t do this forever. I can’t even do it the rest of the year. And I’m not sure even another day would be survivable. I might need to take my puppy and run away, as I sometimes think to myself.

But I won’t. I’ll be here. I will get up in the morning and give it a try. And hope for the best, or at least something better than the worst.

A Miracle Has Occurred, But I Still Feel Terrible

Somehow or other Maddie changed her mind and went to school. I was about to say “I got her to go to school” but we all know ultimately Maddie is the one in charge. It was three hours into the school day by the time we left, but a half day is better than no day at all.

After a day of trying to be zen about this whole thing yesterday, today I just didn’t have it in me. So I played hardball with Maddie. After I sent the cab driver on his way, I took away access to all electronics. She didn’t like that. I wouldn’t engage in light conversation. “I’m not talking to you,” I said when she initiated small talk, trying to smooth things over. I even emailed the educational consultant to follow up on boarding schools, and she watched me do it. Today I’m feeling like I can’t do this anymore. Maybe somebody else can instead.

“Can I have my stuff back?” Maddie asked.

“No,” I laughed, incredulously. “You didn’t go to school.”

“Well, when can I get it back?”

“When you have gone to school.”

“What if I go to school today?” she queried.

“Well, then I’ll give you something back. I’m leaving in three minutes,” I said, “to go to the chiropractor. If you’re ready to go in three minutes, I’ll take you to school instead. I’ll put your lunch together and then I’m leaving.” I was very matter-of-fact. I meant it. I wanted her to go to school so much, but I was done lobbying. Plus, even though I was perfectly willing to skip my appointment, it had to be for something as big as driving her to school.

So when she said she was almost ready, I sent off a quick text to Dr. Marc, canceling my appointment.

I love my chiropractor. He’s not your usual “crack, crack, see ya” kind of guy. An appointment with Dr. Marc lasts a whole hour and involves only deep massage along the spine (or whatever you need) and a few pops with that triangular adjusty thing. If you have jaw problems, like I did a few years ago after taking a baseball to the temple, he’ll press some points inside your mouth that make you want to run through the door like in a quick cartoon escape, but it works. He’s gentle and kind and has so much sympathy. Seeing Dr. Marc is a form of therapy in a way. I could have really used a visit today. But I gave it up for Maddie.

A couple weeks ago I was in a bad way. My upper right side, including my neck and shoulder, was in so much pain. I thought maybe I had a pinched nerve from sleeping wrong. When I gave Dr. Marc my explanation, he looked at me uncertainly, as if waiting for more information. “I’ve been under a lot of stress, too,” I added.

“That would explain it,” he said, nodding sympathetically. “You carry the world up here,” he observed as he manipulated the area above my shoulder blades. Boy, is that the truth. There is everything I experience, right up there on my shoulders. I’m hunched forward at the shoulders all of the time. Apparently it’s from a fight or flight response to stressors. That makes so much sense to me.

Some years ago I had the sensation of a knife going from my chest straight through to my back. “Stress,” diagnosed my doctor. But his only suggestion was, “You’ve got to find a way to deal with this.”

I still haven’t figured that out. Wouldn’t that be magical if I could just “deal with it”? Every day I try to “deal with it.”

So this morning when I was pulling out of the high school parking lot after watching Maddie stroll toward the office to check in, I didn’t feel some huge sense of relief. I was glad she was at school for half the day, but the weight of it all is still with me.  I wish the chiropractor could remove that weight permanently, but all he can do is try to relieve the pain from the weight I can’t seem to shake. He is not the magic answer. I don’t know what is.

I also don’t know why Maddie changed her mind today. I’m glad she did. All the moms I know hate making lunches for their kids. I hate making lunches for my kids. I’m tired of it. But I would make 100 lunches a day rather than deal with this in the morning. I woke Maddie up at 6:30 and spent the next 3 1/2 hours trying to get her to school. This afternoon we’ll embark on homework and the shower that was supposed to happen yesterday. I hope she’s more cooperative, but I can’t count on that.

Deep breaths. Deep breaths. Life goes on. Deep breaths.

She Who Can, Crafts. She Who Can’t Craft…Really Really Can’t

Halloween is coming up and Maddie is prepared. Or preparing, anyway. For a kid who loves superheroes and animated characters more than anything, and who makes duct tape swords in her spare time, a special day designated to the imagination and dressing up is maybe better than Christmas.

I have to confess, I’m not sure what her costume is this year. It’s some character from Bleach, the complex anime show she knows in extraordinary detail (which she is happy to share with you whether you like it or not).

Last week she wanted to go to the Halloween spirit store, to which I reluctantly drove her one evening. I sat in the car and she went in with her debit card and bought some stuff, including, you guessed it, a couple of plastic swords. As if she doesn’t have enough.

She has also created a mask of some sort and asked my mom for some sewing help. She doesn’t even ask me anymore. That’s probably because of the costume incident of sixth grade. Suffice it to say sewing hates me as least as much as I hate it. Sewing, in this case, apparently includes using scissors.

The public middle school used to hire a lively, gifted, inspiring woman to lead the kids in an entertaining and educational event called “A Trip Through the Ancient World” or something like that. Kids spent weeks learning all about ancient Egypt, Greece and Rome. Each kid was assigned a historical figure, and they were to memorize a brief biography of that character and, on the day of the big event, dress as that character.

I can’t tell you how much my heart just sinks whenever a craft-related assignment comes home that requires parental help. I didn’t want to spend a fortune buying a costume, either. So I had to come up with something. And fast.

Luckily for me, her character was a Hebrew slave, so her clothes didn’t have to look particularly good or at all fancy. Still, I called my very creative friend in a panic, asking what to do.

“Just buy a piece of fabric, fold it over, cut a whole for the head and sew up the sides.”

“I don’t have a sewing machine. Anyway, I can’t sew.”

“Maybe you could just buy some kind of rope and tie it around her waist.”

Now that’s a project I can get behind, except for the part about going to the fabric/craft store. Nothing like stepping into JoAnn Fabrics to give me a panic attack. I hate it that much. But as a mom, you gotta do what you gotta do.

So I mustered up my courage and drove to the store, ready to get that brown fabric and a rope tie. That was literally all I had to buy. So I found the fabric that looked kind of right, some kind of brown muslin (my mom sewed a lot when I was a kid, so I do know a little about fabric). And for some reason I picked up a smaller piece of muslin in a natural color. I have no idea why I did that, but it ended up becoming integral to the success of the costume. (I use the term “success” loosely, as you will see.)

All I had to do was cut a hole in the middle of the brown fabric so Maddie could stick her head through. Then I would tie the rope around her waist to hold the fabric against her body. Right on! Ancient slave clothes are so easy!

Being the crafty genius that I am, I folded the fabric into quarters so I didn’t have to cut a whole circle. I would just have to cut a quarter circle, open the fabric, and voila! Circle! After I did that, I opened the fabric up to admire my work, and there it was: a GIGANTIC hole that would fit completely over Maddie’s little shoulders, and the whole thing would fall right to the ground. You have got to be kidding me, I said to myself. You can’t even cut a circle right!

It was the night before the event, so there was no time to get more fabric. Luckily I still had an option. That’s where the second piece of muslin came into play. I carefully cut a more appropriately-sized hole, but that fabric on its own was too small for a whole costume, so now I had to actually sew the brown fabric over the lighter fabric so it would both stay on her body and be long enough to work. I was pretty irritated at myself, but I got out my needle and thread (I have had the same sewing kit my entire adult life) and began to sew those pieces together. They stayed okay, but I would say an untrained monkey would have done a nicer job. There were random stitches placed haphazardly on both shoulders. Thank goodness for brown thread on brown fabric, is all I can say.

Fortunately, Maddie didn’t care at all. I am so grateful for that kid sometimes. She could have been irritated or disappointed or embarrassed, but she was not only fine with the final outcome, she was grateful! I sent her off to school with her pathetic excuse for a costume, and she was happy.

I showed up at school along with a few parents to watch this play/game show. Among the beautifully adorned princesses was my shabbily dressed Hebrew slave. Perfect, really, although I have no doubt that anybody from that period would have taken more pride in their craftsmanship than I had. Oh, well. I guess I have other gifts.

Fortunately, the costume wasn’t that meaningful in the end, except that somebody without any costume at all would have stood out. My crappy creation seemed to go unnoticed. I told my friend Laura my story and we both had a good laugh. I may not be crafty, but I can recognize the humor in almost any situation. I really thought the whole thing was hilarious.

Years later, when Maddie is concocting her complicated costumes–for Halloween or Comi-con or just everyday dress up–I am NOT the person she consults. She knows better. If there’s sewing involved, she most certainly doesn’t ask me. At best, I’ll say no. At worst, well…

So this year’s costume, the anime character, is almost done. Maddie came up with the plan and did most of the work. My mom did a little problem-solving and sewing. There is one small task left to do, but I don’t even know what it is because my mom bypassed me and went directly to my husband for this little tidbit. Sometimes being left out is a good thing. For us all.

I’m pretty sure that final job, whatever it is, will complete the costume. What I’ve seen so far is amazing. Maddie really took her time to conceive of and execute this thing. Apparently that gene skipped me.

What I love about Maddie (among a gazillion other things) is not only how much she enjoys the process of making things, but the pride she has once she’s done. She would gladly don her costume for anybody who happens to stop by. She will pose with full dramatic effect. You can take as many pictures of her as you like.

Tomorrow, the day before Halloween, some of her friends are wearing costumes to school. She’s probably leading the effort. I’m pretty sure that even if nobody else was participating, Maddie would still pack up her costume (swords included) and wear it all day long. And she would feel awesome.

So here are today’s life lessons:

I can’t sew, and that’s OK.

Be grateful for your grateful, fearless, creative kid.

Be willing and able to laugh at yourself. Life is so much better that way. 

The Comparison Trap

Recently I learned of another blog by the mother of not one, but two autistic children. I believe they are both in the Asperger’s realm. The particular entry I came upon addressed the problem of comparing our children with others.

My first reaction was, “Oh, no! This blog is better than mine!”

Ironic, no?

Once I got over the ideas that (1) it’s not surprising that I’m not the best blogger in the universe, (2) I might learn something from this woman, and (3) she is right, I began to percolate on the original premise: Comparing our kids is counterproductive.

And this doesn’t apply only to those of us with special needs kids. Nor does it apply only to our kids or our parenting. Comparing is a bumpy road fraught with dangerous pitfalls, but it sure is an easy path to embark upon for some reason. Human nature, I guess. And, I suppose, American culture, which puts the utmost emphasis on working and achieving.

What do you do?” Isn’t that the question everybody asks when shaking the hand of a new acquaintance? I dumped that question a long time ago, preferring to get to that topic down the road a bit. But I have to admit, it IS still the first thing that crosses my mind. I just made a conscious choice to stifle it. But I practically have to stuff a sock in my mouth to suppress the urge.

I don’t know about you, but where I live (and, since many of you are my friends, where you live too), kids are always doing, doing, doing. They’re playing competitive soccer, taking voice lessons, learning Spanish on the side, going to a math tutor not to stay caught up, but to get ahead. It’s a constant state of go. Who you are is largely defined by what you do.

So when you have a kid who’s behind everyone else in many ways, who’d rather sit around and play Minecraft with her online friends, whose only sport developed in middle school in the form of lunchtime basketball (defense only! no shooting!), who is bright but doesn’t especially care about school, who isn’t likely headed to Cal or Stanford and maybe not college at all, how do you define your child? How do you rank your parenting?

It’s really quite simple. You don’t define or rank or compare. You appreciate your children for their unique attributes. You guide your children toward kindness and compassion above all else. You allow your kids to flourish in whatever way they wish, whether it’s on the field, in the classroom, or in a sea of specialty duct tape.

If I were to define Maddie, it would be by her kindhearted nature, her ability to approach anybody with full confidence and no fear, her intense interests, her compassion. What is Maddie? She’s not an athlete, a scholar, an artist. She’s a wonderful human being, that’s what she is. What she chooses to do in her spare time now, and whatever she chooses to do with herself in the future, she will still be a wonderful human being. She will be a wonderful human being who happens to garden, or teach, or write, or do research. She is a person who is, and happens to do.

I can say that now because even thought it’s simple to make this choice, simple doesn’t always mean easy.

It was especially challenging not to compare Maddie to the other kids when she was young. My mothers’ group got together weekly, beginning when Maddie was about six weeks old, and within a few months it became clear that other kids were following the anticipated milestone schedule and she just wasn’t. I wasn’t alarmed at all, but it wasn’t super fun to participate in the conversations about all the cute things the other babies were saying while Maddie was only screaming. The others were sitting up or crawling, and Maddie was toppling over, blank-faced. I would joke about it, as is my way, but it didn’t feel very good to be left out of that conversation in a meaningful way.

I still suffer from that feeling of isolation in a way, often because of the comparison trap. I’ve written about this before: When everybody is talking about what’s going on at our local high school, or the dating thing, or the sports teams their kids are on, and (soon, I’m sure) where everybody will be applying to college, I can’t help but think to myself, Maddie is different, and feel a little sad about it. Sad for myself, I guess, because I’m missing out on certain aspects of life with her, and sad about how disconnected I feel in that moment. When the conversation begins to veer into that territory, and all the women begin contributing enthusiastically, I envision myself shrinking away from them all. That’s how it feels. And it’s all because in my head, I’m comparing our experiences, comparing our children. My child is different. My experience is different. And for a moment that difference is painful.

But that’s my own problem.

And I know it’s my problem because I have another kid with whom my parenting experience is quite the opposite. He was exceedingly verbal at a young age, and he walked before he was 11 months old. He has played on a few sports teams and done fine, although he is not a committed athlete. He’d rather bike around with his friends and play pick-up games of soccer and basketball. He’s very organized, self-motivated, and bright. He once got a perfect math score on the annual achievement test, something I ended up being kind of bummed about because from then on he would always expect himself to live up to that achievement, and be disappointed in his performance even if he only missed a single question. And that has been his experience. He also was the last third-grader standing in the annual school spelling bee, just short of making the next round.

So even though he doesn’t play competitive sports and he only took drum lessons for a year, he’s an achiever. And sometimes I get caught up in that. When he quit playing soccer the first time around and gave up on drum lessons, I was disappointed and maybe even a little worried. Would he ever stick with anything? Why didn’t he want to play soccer and play an instrument, when all his friends are athletes and/or musicians? When he signed up for Little League for the first time at the age of 10, it felt like a lost cause because all the other boys had been playing since t-ball days. He was so far behind! How could he compete?

That first season had a rough beginning to be sure, but it reminded me of something very important, that who he is, is more important than what he does. He didn’t get a single hit until the last game of the season (mainly because he wasn’t swinging), but he kept on trying. He was a good sport. He made friends. He had grit. He had a good time and was willing to learn. The coaches liked his attitude. It wasn’t about his achievement–or lack thereof–but the kind of person he was and is becoming through all of these experiences.

And the same goes for me as a parent. There are so many occasions when I feel like a failure. I have met other parents along the way who chart like there’s no tomorrow, who work for hours each day with their young children doing the prescribed OT exercises that I was too tired to do, who religiously work new foods into their choosy kid’s repertoire, and whose kids are organized, well-behaved, and well-dressed because of those efforts. Do I do what they do? And do my kids measure up, and if not, is it my fault?

In the immortal words of Maddie, who cares?

My adult life, my parenting experience, is also a journey during which I am still becoming. I’m changing and evolving and learning and growing. I am figuring out what’s important to me. I’m discovering my own gifts, and dismissing, over time, an ideal that isn’t worth pursuing.

I, too, was an achiever as a child. What I accomplished was important to me.

But having any child, and most especially a special needs child, turns that idea upside down because you suddenly have so little control over anything quantifiable. How do you judge your achievement as a parent? How do you know if you’ve done well when you aren’t so focused on the doing, but rather on the being?

I guess that’s the good news: You really can’t measure that. So I stop. I stop worrying about what the other kids are doing, what the other parents are doing and how they’re doing it. Or at least I try. I am striving to be a better person, to focus on what matters, to be an example to my kids. I hope I am teaching them kindness and compassion, both for themselves and others. I hope I am showing them how to be a devoted and generous friend. I hope they are learning that who they are matters more than what they do. Actually, I think I’ve been learning that from Maddie all along.

Why I Love Weekends

This seems like kind of a stupid topic. I mean, everybody loves the weekend. Don’t some of us live for it? No school, no work. Time to sleep in, get some rest, maybe catch a ball game or a movie, spend time with your kids, go on a date with your spouse, clean out the garage, whatever! All the things you want to do during the week but don’t have time for.

I love all that stuff, but the best part for me is not having to get mad at or frustrated with Maddie. I’m sure I’ve said this before, but she’s a really lovely person. She’s happy, fun, optimistic, engaging, and sweet. There is none of the typical teenage angst so many of my friends talk about these days. No drama for the sake of drama, no slamming doors, no “I hate you, Mom!”

The hard part with Maddie is getting her to do something she doesn’t want to do. That’s really the most pressing problem with her. What I dislike most about weekdays is the proportion of time I spend in conflict with her. I don’t want arguing over what she’s supposed to be doing–and her refusing to do it–to be the primary way in which we relate to each other.

So on the weekends, I just let her be for the most part. There might be homework and most certainly a shower, and I might have to fight her over those, but at least the sense of urgency isn’t there as long as we don’t wait until Sunday night to address them. Then she’s happy as can be, and so am I. It is so relaxing to wake up in the morning without dread about the day to come.

A few years ago, my son had been talking for some time about making a trip to Washington, DC. I don’t know why an eight-year-old boy would choose a historical, educational sight-seeing trip for a vacation spot, but he did. And this wasn’t a trip that Maddie would have found remotely interesting. A whole lot of walking around museums and historical sights, forget it! She likes Disneyland.

So we decided to split up for spring break. The guys went to DC and Maddie and I went to Disneyland for what ended up being some of the best five days of my life.

We had five days with no agenda except for whatever Maddie wanted to do. I didn’t care what time we got up, how long we spent in the park, what time we came back, which rides we went on and how many times. And with no other kid involved, there really was no negotiation of any kind required. It was all about Maddie. And it was GREAT. I got to enjoy all the wonderful aspects of my child without a single issue. Not one.

And one of the wonderful aspects of Maddie is she knows how to have a good time. It’s kind of hard not to have a good time at Disneyland, but there she is in her element.

We went to Disneyland a number of times when the kids were little. The last time we all went as a family, the kids were six and eight and it was kind of a disaster. It was February, and it was cold and pouring down rain, for one thing. It’s never cold and rainy in Southern California, is it? Well, it was. Just for that week.

And our son had the flu.

And, it turns out, he really doesn’t like rides. When he was really young and only able to go on the kiddie rides, it was great. But then he got to the age where the kiddie rides are lame and anything else is too scary. So amusement parks are out.

Back then we would stay in the Grand Californian, a bit of a splurge but the perfect place to stay when nap times are required because it’s actually connected to California Adventure Park. But this time, with just two of us, when I went to make the reservation, the cost seemed unjustified, so I settled on a nearby hotel called the Candy Cane Inn. It’s charming but very plain. Clean and uncluttered. No frills but perfectly comfortable.

And naturally, they have bowls of candy canes sitting around for their patrons. Those tiny ones that come in a long strip, all held together by the packaging. Maddie decided she ought to share them with the other kids at Disneyland, so the first morning she loaded up her pockets with tiny candy canes, and we headed to the park.

People are funny. There was Maddie, an 11-year-old girl in goofy clothes and glasses, offering candy canes to random kids she saw. She would bend down to their level, reach into her pocket, and sweetly offer the candy. The kids were mostly excited, and some parents were grateful if not a bit confused, but others looked suspicious and walked away. Maddie’s spirit was undeterred. She found so much joy in handing out the candy canes she’d swiped from the hotel lobby. And in the spirit of the trip, I just let her do it. I just stood back and watched my wonderful kid being her wonderful self without restriction.

We also enjoyed a lot of churros. Disneyland has the best churros.

And so, this weekend, a three-day one this time, I am content to let my kid be her awesome kid self. She can make duct tape swords, or work on her Halloween costume, or watch anime, or play Minecraft, or whatever. It would probably serve her well if I made her do some chores or something. I might ask her to unload the dishwasher later. She doesn’t mind that too much. But for now I am going to enjoy the days when I don’t have to freak out in the morning over a late rise, or a refusal to get up, or, if I’m really lucky, the mad dash to meet the cab.

I hug her a lot and tell her how awesome she is. I throw that word awesome around pretty loosely, having grown up in the 80s and gone to college among a lot of surfers, but “awesome” really fits here. She does inspire awe with her optimistic and generous spirit and her good nature. Everyone should be so lucky to know, and be in awe of, somebody like Maddie.

She Remembers

One of Maddie’s gifts is her nearly infallible memory. It was evident when she was a toddler and would wipe the floor with me playing that game where you turn over cards to find matches. I never beat her, not once. Occasionally I would come close to a tie, but mostly the scores would be so lopsided it was ridiculous. Thirty-two pairs to four, perhaps. And I was trying! I really was!

And then there was the USA map puzzle, which she mastered before she could really talk.

When we were in the car, she would recognize the neighborhood we were in. “Lily’s house!” she would shout, even though were a couple streets away. She was only two.

This weekend I decided to bite the bullet and drive her to my sister’s house. I love being there, and I’m so happy to get the cousins/best friends together, but traffic can be a bear. A 45-minute drive might be twice that. Each way. You never know. Sure enough, about half way there, traffic came to a dead stop.

“I know Grammy takes a different way sometimes, but I don’t know the way,” I thought aloud.

“Take San Antonio Road,” said Maddie. “It’s by the dump. You’ll be on a road parallel to the freeway for a few miles and then get back on.”

“That’s what Grammy does?” I asked.

“Well, she did it once.”

“How do you remember that, Maddie?” I asked in amazement. “Most people wouldn’t even notice.”

“Well, other people aren’t as curious as I am,” she said.

So true. She’s remarkably observant, and those observations permanently reside in that brain of hers. It’s astonishing.

She continued giving me back-street directions. If only she could drive, she would know her way around two counties. Maybe someday.

Recently she had a science test. Her teacher had sent out an email to all the parents, letting us know that he had provided a 3X5 card to each student on which they could take notes for the upcoming test. I asked Maddie if she needed help preparing her notes.

“I’m not doing that,” she replied. “I don’t need to.”

“Well, Maddie, as you get further along in school, there will be more and more information and it’ll become increasingly complicated. I think you should do it.”

“I’ll remember. I’m not doing it.”

The conversation fizzled out, and in my usual way, I forgot about it. A few days later, I remembered, but it was too late for the test.

“How did your science test go?” I asked.

“Fine,” she answered. She hadn’t gotten the results yet.

A couple weeks later, I inquired about the results.

Calmly Maddie reported, “Well there were 40 points. I got 38.”

“Okay,” I laughed. “I guess you were right.”

So what could I say then? She has never studied for a test. Ever. She gets A’s on math and science tests. Always. She might not get an A in the class, but that’s because she isn’t consistent with her homework. She just doesn’t necessarily do it. I don’t know if she’s doing her homework from one night to the next. Maybe her grades will be good. Maybe they won’t.

But I know for sure she’s learning. I remember memorizing facts for tests and then two days later I couldn’t remember much, and today I can’t remember any of it. She doesn’t study and she remembers everything! She knows all kinds of plants and trees and related facts. She knows about the weather and space. She has an encyclopedic knowledge of the complicated anime show she watches.

She’s incredible.

As challenging as she can be at times, she is so much more than her diagnosis. She has some wonderful gifts. Her memory is one of them. And thank goodness for that!

One Step Forward, One Step Back, Then Maybe Sideways

This Tuesday I wanted to give up.

Every weekday morning, when my alarm goes off, my initial reaction is dread. I never know how it’s going to go. How many times will I have to try to get Maddie out of bed? Will she finally get up? Will yelling be required? What if she decides she’s not going? How much patience and creativity will I have to conjure up? Will anything I say or do make a difference? Will this be the day when I finally crack?

And Tuesday my dread was fully justified. What a terrible morning we had. Sure, I finally got her off to school, but not until I’d just run out of gas. The rest of the day I felt deflated. Picture that literally: a flat tire, a deflated ball, a shriveled up balloon. I had nothing left. I didn’t want to talk to anybody. I couldn’t do housework. I didn’t even want to see Maddie when she got home from school. I guess I was depressed. It’s a challenging way to be, getting out of bed each day, knowing your efforts will likely be unsuccessful, but not knowing what to do differently to change the outcome.

It’s a frustrating experience. And it’s not as linear as parenting a neuro-typical child might be. There is no real direction. One day Maddie will step up, and then she may not the next day or the next week or the next month. Then she might be agreeable and motivated for a week. One day I might say something magical that seems to penetrate her often impregnable system. And that magical something may never have an impact again. It’s a constant struggle to be creative and patient, to maintain hope when I’ve run out of ideas and Maddie seems stuck.

So tomorrow is Friday. I’m pretty sure she’ll go to school because Fridays are her favorite days. All her favorite classes occur on Fridays. And, I just learned, she has chess club. I had no idea she was into chess until she mentioned it last week, explaining why she skipped a lunch time rally. I will try to start the day with optimism because Fridays tend to be more successful days overall.

But even on a successful day, there is a period of panic. Maddie just cannot get herself out of bed. So as I’m juggling breakfasts and lunches and helping my son with whatever he needs, I’m making multiple trips to her room. Often I think she has gotten up only to discover five minutes before the cab is to arrive that she is still in bed. Then, in a panic, I raise my voice a little say things like, “Pretend there’s a fire!” or even “Act like you’re in a hurry.”

Then she’ll say, “Don’t rush me.” That absolutely kills me. “Well, then give yourself more time in the morning,” I’ll reply. She doesn’t seem to get the connection. She can’t help that she moves slowly, she’ll say. And I’ll tell her that’s fine, but then she needs to give herself more time. She either needs to be faster or have more time. That’s just logic, isn’t it? But all she can think of is “Don’t rush me.” How I would love to not rush anybody! It makes for a stressful morning for both of us, and sometimes I have a hard time shaking that morning experience.

Today I haven’t felt well. I’m sleep-deprived and exhausted, probably a bit depressed. I’m definitely at the end of my rope. This evening I asked her about homework. She says she doesn’t have any. I don’t know if that’s true. Oh, well. I don’t even care right now.

Then I tell her she does need to shower. That’s the one single think I ask her to do. She says she’s busy but she’ll definitely do it. Later, I remind her, and it’s getting close to bed time so time is of the essence.

“Oh,” she says, “I’m not going to do that.” She has decided.

She smelled my defeat earlier, I think. She knew I didn’t have the fight in me. She has that ability, I’ve noticed. Whatever. I can’t even do this. I ask her to please brush her teeth and wash up before bed. I’m pretty sure she’s completed those things. I don’t know why she decided they mattered when nothing else I’ve said today has had much of an impact.

I also noticed this morning when I was absurdly applying deodorant to the appropriate place on Maddie’s body that she had shaved her underarms. That was a shocker. She never does anything like that unless I make her. And she had actually thought of it herself and then done it.

And yet, by contrast, there I was spraying deodorant on my 15-year-old daughter’s armpits.

She is full of surprises!

So before I go to bed, I am taking some deep breaths. I will try to be optimistic for tomorrow because it’ll be Friday. I’m so happy it’s Friday, even if I have about 28 loads of laundry to do. The next morning I get to sleep in! I don’t have to dread the day ahead. It’s like a vacation from frustration, aggravation, depression and sadness all wrapped up into two days!

Well, not really. There will be things to accomplish. We shall see how it goes. That’s just how it is every day over here: We shall see how it goes. We shall see.