She Who Can, Crafts. She Who Can’t Craft…Really Really Can’t

Halloween is coming up and Maddie is prepared. Or preparing, anyway. For a kid who loves superheroes and animated characters more than anything, and who makes duct tape swords in her spare time, a special day designated to the imagination and dressing up is maybe better than Christmas.

I have to confess, I’m not sure what her costume is this year. It’s some character from Bleach, the complex anime show she knows in extraordinary detail (which she is happy to share with you whether you like it or not).

Last week she wanted to go to the Halloween spirit store, to which I reluctantly drove her one evening. I sat in the car and she went in with her debit card and bought some stuff, including, you guessed it, a couple of plastic swords. As if she doesn’t have enough.

She has also created a mask of some sort and asked my mom for some sewing help. She doesn’t even ask me anymore. That’s probably because of the costume incident of sixth grade. Suffice it to say sewing hates me as least as much as I hate it. Sewing, in this case, apparently includes using scissors.

The public middle school used to hire a lively, gifted, inspiring woman to lead the kids in an entertaining and educational event called “A Trip Through the Ancient World” or something like that. Kids spent weeks learning all about ancient Egypt, Greece and Rome. Each kid was assigned a historical figure, and they were to memorize a brief biography of that character and, on the day of the big event, dress as that character.

I can’t tell you how much my heart just sinks whenever a craft-related assignment comes home that requires parental help. I didn’t want to spend a fortune buying a costume, either. So I had to come up with something. And fast.

Luckily for me, her character was a Hebrew slave, so her clothes didn’t have to look particularly good or at all fancy. Still, I called my very creative friend in a panic, asking what to do.

“Just buy a piece of fabric, fold it over, cut a whole for the head and sew up the sides.”

“I don’t have a sewing machine. Anyway, I can’t sew.”

“Maybe you could just buy some kind of rope and tie it around her waist.”

Now that’s a project I can get behind, except for the part about going to the fabric/craft store. Nothing like stepping into JoAnn Fabrics to give me a panic attack. I hate it that much. But as a mom, you gotta do what you gotta do.

So I mustered up my courage and drove to the store, ready to get that brown fabric and a rope tie. That was literally all I had to buy. So I found the fabric that looked kind of right, some kind of brown muslin (my mom sewed a lot when I was a kid, so I do know a little about fabric). And for some reason I picked up a smaller piece of muslin in a natural color. I have no idea why I did that, but it ended up becoming integral to the success of the costume. (I use the term “success” loosely, as you will see.)

All I had to do was cut a hole in the middle of the brown fabric so Maddie could stick her head through. Then I would tie the rope around her waist to hold the fabric against her body. Right on! Ancient slave clothes are so easy!

Being the crafty genius that I am, I folded the fabric into quarters so I didn’t have to cut a whole circle. I would just have to cut a quarter circle, open the fabric, and voila! Circle! After I did that, I opened the fabric up to admire my work, and there it was: a GIGANTIC hole that would fit completely over Maddie’s little shoulders, and the whole thing would fall right to the ground. You have got to be kidding me, I said to myself. You can’t even cut a circle right!

It was the night before the event, so there was no time to get more fabric. Luckily I still had an option. That’s where the second piece of muslin came into play. I carefully cut a more appropriately-sized hole, but that fabric on its own was too small for a whole costume, so now I had to actually sew the brown fabric over the lighter fabric so it would both stay on her body and be long enough to work. I was pretty irritated at myself, but I got out my needle and thread (I have had the same sewing kit my entire adult life) and began to sew those pieces together. They stayed okay, but I would say an untrained monkey would have done a nicer job. There were random stitches placed haphazardly on both shoulders. Thank goodness for brown thread on brown fabric, is all I can say.

Fortunately, Maddie didn’t care at all. I am so grateful for that kid sometimes. She could have been irritated or disappointed or embarrassed, but she was not only fine with the final outcome, she was grateful! I sent her off to school with her pathetic excuse for a costume, and she was happy.

I showed up at school along with a few parents to watch this play/game show. Among the beautifully adorned princesses was my shabbily dressed Hebrew slave. Perfect, really, although I have no doubt that anybody from that period would have taken more pride in their craftsmanship than I had. Oh, well. I guess I have other gifts.

Fortunately, the costume wasn’t that meaningful in the end, except that somebody without any costume at all would have stood out. My crappy creation seemed to go unnoticed. I told my friend Laura my story and we both had a good laugh. I may not be crafty, but I can recognize the humor in almost any situation. I really thought the whole thing was hilarious.

Years later, when Maddie is concocting her complicated costumes–for Halloween or Comi-con or just everyday dress up–I am NOT the person she consults. She knows better. If there’s sewing involved, she most certainly doesn’t ask me. At best, I’ll say no. At worst, well…

So this year’s costume, the anime character, is almost done. Maddie came up with the plan and did most of the work. My mom did a little problem-solving and sewing. There is one small task left to do, but I don’t even know what it is because my mom bypassed me and went directly to my husband for this little tidbit. Sometimes being left out is a good thing. For us all.

I’m pretty sure that final job, whatever it is, will complete the costume. What I’ve seen so far is amazing. Maddie really took her time to conceive of and execute this thing. Apparently that gene skipped me.

What I love about Maddie (among a gazillion other things) is not only how much she enjoys the process of making things, but the pride she has once she’s done. She would gladly don her costume for anybody who happens to stop by. She will pose with full dramatic effect. You can take as many pictures of her as you like.

Tomorrow, the day before Halloween, some of her friends are wearing costumes to school. She’s probably leading the effort. I’m pretty sure that even if nobody else was participating, Maddie would still pack up her costume (swords included) and wear it all day long. And she would feel awesome.

So here are today’s life lessons:

I can’t sew, and that’s OK.

Be grateful for your grateful, fearless, creative kid.

Be willing and able to laugh at yourself. Life is so much better that way. 

The Comparison Trap

Recently I learned of another blog by the mother of not one, but two autistic children. I believe they are both in the Asperger’s realm. The particular entry I came upon addressed the problem of comparing our children with others.

My first reaction was, “Oh, no! This blog is better than mine!”

Ironic, no?

Once I got over the ideas that (1) it’s not surprising that I’m not the best blogger in the universe, (2) I might learn something from this woman, and (3) she is right, I began to percolate on the original premise: Comparing our kids is counterproductive.

And this doesn’t apply only to those of us with special needs kids. Nor does it apply only to our kids or our parenting. Comparing is a bumpy road fraught with dangerous pitfalls, but it sure is an easy path to embark upon for some reason. Human nature, I guess. And, I suppose, American culture, which puts the utmost emphasis on working and achieving.

What do you do?” Isn’t that the question everybody asks when shaking the hand of a new acquaintance? I dumped that question a long time ago, preferring to get to that topic down the road a bit. But I have to admit, it IS still the first thing that crosses my mind. I just made a conscious choice to stifle it. But I practically have to stuff a sock in my mouth to suppress the urge.

I don’t know about you, but where I live (and, since many of you are my friends, where you live too), kids are always doing, doing, doing. They’re playing competitive soccer, taking voice lessons, learning Spanish on the side, going to a math tutor not to stay caught up, but to get ahead. It’s a constant state of go. Who you are is largely defined by what you do.

So when you have a kid who’s behind everyone else in many ways, who’d rather sit around and play Minecraft with her online friends, whose only sport developed in middle school in the form of lunchtime basketball (defense only! no shooting!), who is bright but doesn’t especially care about school, who isn’t likely headed to Cal or Stanford and maybe not college at all, how do you define your child? How do you rank your parenting?

It’s really quite simple. You don’t define or rank or compare. You appreciate your children for their unique attributes. You guide your children toward kindness and compassion above all else. You allow your kids to flourish in whatever way they wish, whether it’s on the field, in the classroom, or in a sea of specialty duct tape.

If I were to define Maddie, it would be by her kindhearted nature, her ability to approach anybody with full confidence and no fear, her intense interests, her compassion. What is Maddie? She’s not an athlete, a scholar, an artist. She’s a wonderful human being, that’s what she is. What she chooses to do in her spare time now, and whatever she chooses to do with herself in the future, she will still be a wonderful human being. She will be a wonderful human being who happens to garden, or teach, or write, or do research. She is a person who is, and happens to do.

I can say that now because even thought it’s simple to make this choice, simple doesn’t always mean easy.

It was especially challenging not to compare Maddie to the other kids when she was young. My mothers’ group got together weekly, beginning when Maddie was about six weeks old, and within a few months it became clear that other kids were following the anticipated milestone schedule and she just wasn’t. I wasn’t alarmed at all, but it wasn’t super fun to participate in the conversations about all the cute things the other babies were saying while Maddie was only screaming. The others were sitting up or crawling, and Maddie was toppling over, blank-faced. I would joke about it, as is my way, but it didn’t feel very good to be left out of that conversation in a meaningful way.

I still suffer from that feeling of isolation in a way, often because of the comparison trap. I’ve written about this before: When everybody is talking about what’s going on at our local high school, or the dating thing, or the sports teams their kids are on, and (soon, I’m sure) where everybody will be applying to college, I can’t help but think to myself, Maddie is different, and feel a little sad about it. Sad for myself, I guess, because I’m missing out on certain aspects of life with her, and sad about how disconnected I feel in that moment. When the conversation begins to veer into that territory, and all the women begin contributing enthusiastically, I envision myself shrinking away from them all. That’s how it feels. And it’s all because in my head, I’m comparing our experiences, comparing our children. My child is different. My experience is different. And for a moment that difference is painful.

But that’s my own problem.

And I know it’s my problem because I have another kid with whom my parenting experience is quite the opposite. He was exceedingly verbal at a young age, and he walked before he was 11 months old. He has played on a few sports teams and done fine, although he is not a committed athlete. He’d rather bike around with his friends and play pick-up games of soccer and basketball. He’s very organized, self-motivated, and bright. He once got a perfect math score on the annual achievement test, something I ended up being kind of bummed about because from then on he would always expect himself to live up to that achievement, and be disappointed in his performance even if he only missed a single question. And that has been his experience. He also was the last third-grader standing in the annual school spelling bee, just short of making the next round.

So even though he doesn’t play competitive sports and he only took drum lessons for a year, he’s an achiever. And sometimes I get caught up in that. When he quit playing soccer the first time around and gave up on drum lessons, I was disappointed and maybe even a little worried. Would he ever stick with anything? Why didn’t he want to play soccer and play an instrument, when all his friends are athletes and/or musicians? When he signed up for Little League for the first time at the age of 10, it felt like a lost cause because all the other boys had been playing since t-ball days. He was so far behind! How could he compete?

That first season had a rough beginning to be sure, but it reminded me of something very important, that who he is, is more important than what he does. He didn’t get a single hit until the last game of the season (mainly because he wasn’t swinging), but he kept on trying. He was a good sport. He made friends. He had grit. He had a good time and was willing to learn. The coaches liked his attitude. It wasn’t about his achievement–or lack thereof–but the kind of person he was and is becoming through all of these experiences.

And the same goes for me as a parent. There are so many occasions when I feel like a failure. I have met other parents along the way who chart like there’s no tomorrow, who work for hours each day with their young children doing the prescribed OT exercises that I was too tired to do, who religiously work new foods into their choosy kid’s repertoire, and whose kids are organized, well-behaved, and well-dressed because of those efforts. Do I do what they do? And do my kids measure up, and if not, is it my fault?

In the immortal words of Maddie, who cares?

My adult life, my parenting experience, is also a journey during which I am still becoming. I’m changing and evolving and learning and growing. I am figuring out what’s important to me. I’m discovering my own gifts, and dismissing, over time, an ideal that isn’t worth pursuing.

I, too, was an achiever as a child. What I accomplished was important to me.

But having any child, and most especially a special needs child, turns that idea upside down because you suddenly have so little control over anything quantifiable. How do you judge your achievement as a parent? How do you know if you’ve done well when you aren’t so focused on the doing, but rather on the being?

I guess that’s the good news: You really can’t measure that. So I stop. I stop worrying about what the other kids are doing, what the other parents are doing and how they’re doing it. Or at least I try. I am striving to be a better person, to focus on what matters, to be an example to my kids. I hope I am teaching them kindness and compassion, both for themselves and others. I hope I am showing them how to be a devoted and generous friend. I hope they are learning that who they are matters more than what they do. Actually, I think I’ve been learning that from Maddie all along.