parenting challenges

Don’t Look at the Whole Staircase

Chris Irvine, Parent CoachLeave a comment

I like to think I have some natural gifts that lend themselves to good parenting. I believe I am empathetic, creative, logical and kind, which helps me connect to people in general and my kids in particular. That’s not to say these qualities are always activated when I’m parenting. Perhaps I’m using one or another, or perhaps they’ve all flown out the window in a moment of frustration or exhaustion.

I also happen to have two of the least fickle kids on the planet. Once they decide, They Have Decided. On whatever it is. Maddie’s way of expressing her decisiveness is the simple act of refusing to bend. She has decided not go to to Thanksgiving at Grandma’s, for example, so there is nothing you can say or do, no threat of punishment or offer of reward, that will alter her decision. The answer is no, and that’s that. We can make our whole family insane trying to change her mind, and the likely outcome involves not even a glimmer of hope. There are exceptions, of course. Like when I was trying to potty train a nearly four-year old kid who just wasn’t interested in the process, so I started challenging her to race me to the bathroom. I think it worked twice, and then that was the end of that. Still, I was thrilled with my double victory.

My son’s way is different. He can argue you into a rabid, frenzied froth of frustration. You will never win that argument. You might not lose it either, but as a parent not winning is pretty much the same as losing. I had an early indication of his logic skills when he was a five-year old preschooler. He had shut the door to his room, which was unusual, so I thought I’d better investigate. I soon discovered he was in his closet, door closed. He had to be up to something. “What do you have in there?” I queried. Out stretched a hand holding a box of goldfish crackers. “Why are you hiding those?” I asked. “If you had asked me I would have said yes.” And then something dawned on me. “What else do you have in there?” Out stretched his hand with what turned out to be decoy number two: a box of Teddy Grahams. I repeated my response. I was detecting a pattern. “What ELSE do you have in there?” And there it was, a bag of chocolate chips. And that was NOT okay with me. That evil genius had rolled out his decoys in hopes of avoiding the final discovery. “We’re screwed,” I told my husband. Some years later – maybe he was eight – he effectively asked me a series questions, knowing how I would answer, so that I would actually lead myself to his desired conclusion. I don’t remember the topic, but I do remember realizing what was happening just before he succeeded.

I am reminded of our friend’s mom who early on recognized our challenge with Maddie. “Her stubbornness will serve her well when she’s grown. The hard part is getting from here to there.” Amen, Joan, amen. Same for our son, I’m sure.

So anytime I can talk my kids into anything, I’m surprised and delighted and pretty darn proud of myself.

A couple weeks ago my niece M turned 18. Maddie and M are only nine months apart and truly the best of friends. Our families live about 45 minutes away from each other. M is incredibly busy, so the girls don’t see each other as much as they’d like. So you would think, wouldn’t you, that the upcoming party and sleepover would be unmissable.

As I try to do with Maddie, I had reminded her each day for a few days to prepare her for the event. Late morning the day of the party I sat down on Maddie’s bed and said, “We should leave around three o’clock today.”

And to my surprise she responded, “I have been trying to motivate myself all week, and I just haven’t been able to do it.”

All the months since she graduated high school, I have been avoiding, as much as possible, any situation that involved making Maddie go somewhere. After all those years of morning turmoil, I realized not only did I no longer have the energy to take on that fight, but that the fight was futile anyway. So much wasted effort, so much heart-attack inducing frustration that ultimately had no positive effect—I just couldn’t go back to that. And yet here I was.  I could feel the tightness in my chest forming almost immediately. We couldn’t let our sweet M down on her big day. And I really wanted Maddie to enjoy what I was certain would be a good night. What was I going to do?

I pulled myself together enough to say, “I think it’s been about two weeks since you went anywhere. That happens to me too, like when I’m sick for a week and I’ve been at home, it’s just easier to stay home than go anywhere. Eventually I just make myself go somewhere and then it gets easier. It happens to everyone,” I assured her.

She was still unmoved.

“OK,” I said. “Forget about going all the way up to M’s house. Let’s just think of something small to do first. Like maybe we could go to the coffee shop for lunch.” Originally I had required she take a shower, but I realized that was a serious obstacle, so I let that go.

“Is How to Train Your Dragon playing anywhere?“ she asked. A glimmer of hope!

“I’m sure it is!”

So we picked a movie time that allowed us a quick lunch out and would also get us to the party in time. I said, “Just throw your toothbrush and toothpaste in your bag in case we get up to M’s.”

Don’t look at the whole staircase. Just look at the first step.

I’m sure I’d heard that before but it wasn’t until a week or two later that a motivational speaker I was watching used that phrase. I had put it into practice without naming it, and to my amazement and delight, it worked. Just like all the times I folded Maddie’s writing assignment page in half so it didn’t look so scary. “Just do a Maddie-sized essay,” I’d say. Just one small step at a time.

We had our quick lunch (delicious and fun!), drove north to the movie (love those Dragon movies!) and it was an easy and welcome third step to drive further north to see her cousin. She was happy to be there and, as expected, she had a wonderful time.

I patted myself on the back or a job well done. But not because I won a battle. It was because I used one or two of my gifts at the right time to look at my daughter and see what she needed. Just a peek at the first step!

Nailed it.

Coming Soon: A Whole Lot o’ Nothing

Chris Irvine, Parent CoachLeave a comment

The weekend before finals week, families in our community held a party that’s been a tradition for some years: The kids who went to elementary school together and who are now graduating from high school, along with their parents, gather to celebrate with a reunion/graduation/college kick-off party. I had heard that usually the kids leave after twenty minutes, so the party ended up being more of a reunion for the parents. Some of these parents have become close friends since we met in 2005 when our kids were in kindergarten. Others I know as acquaintances only, but our shared history binds us together anyway. So I was excited for this event. And I wasn’t disappointed!

I knew Maddie wouldn’t want to attend. I invited her, of course, and I assured her that so many people–parents in particular–would be thrilled to see her. That’s absolutely true. But her increasing self-awareness, although welcome in many ways, makes social situations like this one difficult. So her dad and I went alone.

To my delight, the kids stayed and stayed. They embraced old friends and even a few threw their arms around me–and not necessarily the ones I would have expected. It was wonderful to see these kids who at five years old struggled to cut out a circle or spell a word well enough to somehow be decoded, turn (very suddenly in my eyes) into young adults, most of whom were about to leave home–many heading across the country. “What’s next?” we all asked the kids. “I’m going to Brown.” “I’m going to Emerson.” “I’m going to Cal Poly.” “I’m studying in London before I start at USC.” “I’ll be playing basketball at Foothill College.” “I’m taking a gap year when I’ll be studying drumming in Africa.” I suspect some with less glamorous-sounding plans might have skipped the party. I really don’t know. But the level of achievement among this group was impressive if not particularly surprising.

And then there WE were. The inevitable question in our daughter’s absence: “What’s Maddie going to do now?”

A year ago I began to anticipate the difficulty of the year ahead. My friends, most likely, would be focused primarily on the college application process. This would be yet another time in my parenting life when I would feel a bit on the fringe, even among my closest friends. They’d all be talking about the counselor they hired to help their daughter apply to college, or the SAT prep classes, or the college tours that had begun the year before, when they explored the East Coast, Southern California and maybe the Northwest in search of the perfect fit for their exceptional children. They would lament the impossibility of getting into a University of California campus, the unfairness of the admissions process, the importance of the ultimate decision, and then finally the dread and anxiety they began to feel when the reality of their kid leaving home began to truly set in. And I would have absolutely nothing to contribute besides a whole lot of questions and perhaps some encouraging words.

I was partly right in my expectations. All of that was a big topic of conversation all year. But I wasn’t quite as discouraged about my inability to participate because, quite frankly, it all seemed pretty stressful to me. I had my own particular source of stress, as usual, but I was actually a bit relieved not to be a part of that. Plus I know it’s all coming in a couple more years when our son heads down that predictable path.

By the end of April most all of Maddie’s former classmates had a plan in place. I had heard updates through friends and was nothing but happy for each kid and excited for their future. So I knew the “what’s next” question would feature prominently at this soiree.

“So, what’s Maddie doing now?” they’d ask.

“We have no idea and we don’t care!” I would answer gleefully. It was an honest answer in every way.

Sometimes a follow-up question came. I suspect my original answer was just too surprising to be enough. “Is she going to go to school?” Maybe, I’d say. “Well, is she going to work?” Oh, I don’t know, I’d say. And I really don’t care! I’d say again. We need a break!

My whole focus for several years was simply getting Maddie to finish high school and get that frickin’ diploma! For most of these kids, graduation was more of a stepping stone to what comes next, as it was for me when I was a teenager. For Maddie and me it was The Goal. It was about to be completed, and I could truly bask in the glory of that achievement, likely an achievement that required more tenacity and courage from both of us than the truly impressive academic careers of most of the other kids there. So much to my surprise, the glaring difference between my answer and theirs didn’t bother me one little bit.

Perhaps I have grown. Perhaps my impending relief simply spoke louder than anything else that might have bubbled up in that moment. Perhaps I was genuinely so happy for everyone else that noting else really mattered. Whatever the reason, and I suspect there were many, I was at home among the parents and kids whose paths had been so different from our own.

So, what is next? Probably a whole lot of nothing–for awhile anyway. Maddie and I do indeed need a break. And we’re taking it.

Bag Math

Chris Irvine, Parent CoachLeave a comment

In this final stretch of mandatory school for The Kid Who Refused to Go to School, I’m doing my best to make it fun. This is really my life’s mission: If something isn’t fun, I try to make it fun. Why not?

Some years ago I was having a terrible day – I’m pretty sure everyone I lived with was conspiring to make me go insane, and they seemed to be closing in on success – so I decided to leave for a bit and head into San Francisco. It was a weekend afternoon so traffic was a nightmare and I’m pretty sure there was some huge event going on, so I couldn’t even park. Instead I just drove into the city, around it for a bit, and then headed home. My emotions were boiling over and I was struggling to enjoy anything at that moment. Then I spied two guys in a Mini Cooper driving over the Golden Gate Bridge with that convertible top down. I thought to myself, “If I had a convertible, I would be happy right now.” Of course that’s absurd. Exterior input like the fresh air blowing your hair to smithereens can’t compensate for the internal struggle we all face sometimes, but it certainly looked appealing.

So what I try to do is turn the mundane or the sad or the frustrating into something entertaining. I started making up songs when I was changing diapers 17 1/2 years ago. They were terrible songs sung terribly, but one of those poop-related songs inspired Maddie’s very first laugh, so I put that sucker on repeat. I goof around so much that at one point my kids told me I needed new material. Too many fart jokes, I believe. Once when I was driving the kids somewhere, I noticed the thermometer on the car indicated it was 80 degrees outside. “Eighty-degrees!” I declared. “That’s my favorite temperature!”

“No it’s not,” insisted both the kids. They thought I was joking. I insisted I was serious, but they wouldn’t believe me. And you know why? Because about 80% of what comes out of my mouth is a joke, or at least an attempt at one.

If I’m not cracking a joke, I’m doing the “waffle dance”—you know, because waffles—or the “I hate doing the dishes” dance or doing the worst fake-going-down-the-stairs thing of all time.

So last week when Maddie set her mind to finishing some year-end assessments in reading and math, I put on my silly hat (it’s always available) and we got started. Eventually we got to a problem that required some scratch paper. We were in my sort-of cleaned up room, so I as I scanned the scene for a handy piece of scratch paper, I could only find one thing: a small shopping bag from a local boutique. I grabbed it and said, “We’ll have to use this. It’s bag math.”

And so for the rest of the session, we did “bag math.” Was it funny? Eh, not really, But it lightened the mood and gave us something silly to say as we trudged our way through stuff I don’t remember, stuff she never learned, and a fair amount of straight up guessing. “Bag math” saved the day.

Sometimes when I’m cleaning the kitchen or folding yet another mountain of laundry, I jokingly announce how much fun it is. I hate the drudgery, but it helps to make light of it. Yesterday I accidentally cracked myself up when I noticed that, while absent-mindedly folding a pile of fresh clothes, I had grabbed the bottom of the SHIRT I WAS WEARING and begin to fold IT. Haha! I had a good laugh at myself and finished the job.

Last fall, years after my epiphany about the convertible and how it might have changed my outlook that day, I got one. “Life is more fun with the top down!” is my motto. And I was right: Life IS more fun with the top down, and math is more fun when you do it on a bag.

It’s All About the Pronoun

Chris Irvine, Parent CoachLeave a comment

You know when your spouse says, “We should call the plumber” or “We should clean up the dog poop in the backyard” and you know what he really means is “YOU should call the plumber” and “YOU should clean up the dog poop”? The “we” is really “you,” and you both know it. A little pronoun sleight-of-hand to somehow both obscure and effectively communicate a message.

Last week I was having heart palpitations about the end of the school year, or more precisely, the end of school. Writing that sentence, I realize that might be a first for me. It’s always been the beginning of a new school year that sent my blood pressure through the roof as panic and fear of the unknown swirled in my head. The end of the school year meant a huge sigh of relief, and giant exhale, because for the next ten weeks I didn’t have to try to make Maddie do anything (well, except take the occasional shower). And yes, I still have that respite to look forward to. In fact, it might be the biggest exhale of my life when Maddie clicks “submit” on that last final exam. She never has to do school ever again if she doesn’t want to, and if she does want to, it’s all on her.  It’s completely optional! But in order to get to this particular ending, there is some work to do.

As an independent study student in her online school, she has no real deadlines except at the end of the semester. There are suggested deadlines for quizzes and assignments and tests, but the true deadline comes once. Luckily, with the help of Maddie’s tutor, we are usually somewhat on schedule (she’s always a good 10 or 12 assignments behind, which sounds worse than it is), but last week I looked and she had 23 overdue items (meaning the suggested deadline had passed), not to mention whatever had been or would become assigned but hadn’t yet become due. And then final exams.

Oh my god. How will Maddie ever get all this done? How will I get her to do all that work? I felt the wave of panic I’ve experienced so many times over the years. The insurmountable pile of responsibilities loomed dark in my psyche, the weight of it all sitting squarely on my shoulders.

Later that week, thankfully, I had therapy. I have been seeing a therapist for the last nine years, ever since I had a nervous breakdown from the sheer weight of, well, a lot of things. I am long past the part where you talk about your childhood or your traumas or whatever and figure out how to fix yourself. For years my therapist has been my coach and adviser, my cheerleader and guru. She brings me back to earth when I’m freaking out about, well, anything.

So this time we talked about Maddie and my anxiety over the mountain of work on Maddie’s plate. As I talked, I realized something. There was no way on Earth I was going to allow any outcome other than Maddie finishing and graduating. “She just has to pass,” I reminded myself out loud. “She doesn’t need A’s. She just needs to pass.” I continue to say that out loud to convince myself of the truth of it.

With equal parts realization and conviction, I said, “Oh, we’re gonna get this done.”

“I think you got your pronoun wrong,” she said wryly.

I thought for a moment. “Okay, I’M gonna get this done.” Not we. I.  “I don’t care if I do it all myself,” I said. And I meant it. At this point I would do just about anything to get that diploma in Maddie’s hands, to complete this mission on which we’ve both worked so hard.

What kind of mom announces she will actually do her kid’s last two weeks of school work? Who decides the easy route is the right route?

You know who? The kind of mom who for a solid year taught her child to speak by sounding out words using foam letters in the tub, that’s who. The kind of mom who heard only screaming for the first 25 months of her child’s life before finally hearing the word “mama,” the first recognizable speech ever uttered by her oldest child. The kind of mom who fought back tears through countless SST meetings and  IEP meetings, and changed her kid’s school three times, desperately trying to make the right choice for this puzzle of a kid. The kind of mom who braced herself for a fight–really a frustrating, defeating exercise in futility–every single morning for three years trying to get her kid to go to school. The kind of mom who for the last year has read the world history book out loud to her kid just to engage her in school, doing silly dances or making jokes to make it as much fun as I could–for both of us.

There is no way I would let all of the emotional roller coaster rides, all of the anxiety and worry and tears and confusion and countless hours of just plain old work end in a big fat nothing. So if she can’t make herself do this last little tidbit of work for herself, I’ll do it for her. I’ll do it for ME.

So this time the pronoun is clear: I WILL MAKE THIS HAPPEN. I hope Maddie will cooperate and do the work, but if not, I hope she’s at least along for the ride. In two weeks we can sign off from school forever. And I can pat myself on the back for a job well done.

(Avocado) Toast Is Life

Chris Irvine, Parent CoachLeave a comment

This blog entry is a call for help! Seriously, I need help.

Once I saw a story about an autistic boy who would eat ONLY donuts. Not one other food item passed through his lips. So his parents let him eat donuts all day long. My husband was horrified. I totally got it. I hope that kid didn’t develop diabetes or balloon to 600 pounds, but I had sympathy for everyone involved in that situation.

Truth #1: Although she’s not as limited as the donut kid, to say Maddie is a picky eater is an understatement.

Truth #2: You can’t really force anybody to do anything, at least not after you can no longer physically pick them up anymore. And you definitely can’t force anybody at any age to EAT anything.

I’m sure a percentage of you is thinking, “Uh, yes you can. You serve them food, and eventually they’ll get hungry enough and they’ll eat it.” If that is you, my friend, you haven’t met Maddie. You have also probably not met a person with autism.

Maddie does like donuts, but luckily she likes more than donuts. But only about three things more. She hasn’t really eaten fruit since she stopped eating baby food, which was kind of a long time ago. OK she eats one fruit, but it’s the least fruity of the fruits. It is the magical and delicious avocado. Her pediatrician at one point did say, “That’s the perfect food!” and I was delighted because that was about the only thing she would eat that actually just grows and then you just pick it and eat it. I mean, OK, we usually cut it up or smash it and add garlic salt, and nobody eats the skin, but you know what I mean.

Her other likes are in the category of “white.”  Pasta…with butter and cheese. Rice…with butter. Vanilla ice cream on a cake cone.. String cheese or white cheddar.

White, white, white.

“Toast is life” is her mantra.

Luckily she’ll eat eggs. So I have mastered the scrambled egg. On toast, of course.

She also likes honey roasted turkey and, very specifically, cold, dark-meat chicken with salt.

She will also eat cheese pizza without too much sauce, but only on occasion.

And then there’s the real crap, like Cheetos (not white, but also not really food) and the very occasional and appropriately maligned fries and chicken nuggets from McDonald’s. (Question: what is the voodoo they use to make you feel both stuffed and hungry at the same time? I don’t know but it scares me.)

And there you have it: her diet in a nutshell. There are probably a few other white foods I’m leaving out, but you get the idea. (Oh, yeah, pancakes and French toast and croissants).

Several months ago she announced she had decided she should eat an avocado every single day. I was surprised that she was thinking much about anything with the word “should” in it. But now I try very hard to maintain our supply of avocados, which at the moment I’m failing at because yesterday she discovered the most magical of food combinations—avocado toast—and that’s pretty much all she’s eaten for the last three meals. That’s good because it’s better than the old avocado with chips snack she favored, in which one molecule of avocado is consumed with each chip.

Also yesterday something incredible and exciting and terrifying happened: Maddie asked me how she could lose weight. Incredible because she that’s a sign of her own self-awareness that I rarely see. Exciting because her health would benefit from both weight loss and a better diet. And terrifying because she is so darned picky that I don’t know how or even if I can help her make this happen.

“Are you not happy with your body right now?” I asked her.

In response, she wiggled her hand to say “so-so.” She didn’t appear upset in any way, just informative and practical, which was a huge relief for me.

I said, “Well, what I do when I want to lose weight is I cut back on things like bread and pasta and try to eat more fruits and vegetables.”

Simple? Yes! Easy? God no, especially not for this kid. I like salads and certain fruits when they are perfect and in season. I like lots of green things. So I can adjust my diet pretty easily. But what do you do when you can’t force yourself to eat fruits and vegetables?

This is not simply a preference for Maddie. This is where her previously overwhelming sensory issues, which have otherwise mostly vaporized, still rule her life. Trying new foods isn’t just a matter of interest or lack thereof, it’s a matter of fear. Even if this new flavor might even be OK, there’s a good chance the texture might be a dealbreaker.

But for the moment she is curious and even a little bit open to expanding her repertoire. Part of me wishes she would have waited about a month to bring this up because I was reserving my mental energy for the final school push. And now this is consuming my thoughts.

How will I help her? CAN I help her? Who can help me help her? Who knows how to help a person with such serious food aversion change what and how they eat? What might she like? I would be happy if she added two new fresh foods to her diet. Just two! That sounds doable in a way, but an insurmountable problem in another way.

I will try to combat my fears and anxieties with doing things and learning things. We will try together. We will take teeny tiny baby steps. This, like everything else with parenting, is about the long game. And so, we shuffle one foot forward and look forward to moving the other one.

Dirty Shirt

Chris Irvine, Parent CoachLeave a comment

Today is June 19th. My son graduated eighth grade last Friday, so it feels like the official first day of vacation. I slept in! I put on a pretty dress! I can run errands whenever I want because I’m not tied down by school pick up time! I didn’t pack anybody’s lunch! It’s a gorgeous day and I’m loving it.

But somebody hasn’t changed her shirt for five days. This is the sixth day. I know this because the day the shirt was first donned was Maddie’s birthday, June 14th, after she opened a small gift in the morning and then decided to wear her new Flash shirt to the Giants game.

She comes into my room late this morning. I see that shirt and my disgust rises to the surface. The dirty shirt also means she hasn’t taken a shower for at least six days because I know she didn’t take one that morning. You hope your kids stop grossing you at some point, right?

“Maddie, the is the sixth day you’ve been wearing that shirt. You need to shower and put on a clean shirt.” One doesn’t gently toss hints to Maddie. You have to (and really get to, I suppose) be completely honest and blunt. I can’t imagine how many times I’ve said, “You’re gross,” or “You stink,” or “Get out of my room because I can smell you from five feet away. Seriously, don’t stink up my room.”

“Later,” she says, dryly. Later often ends up meaning “no” in the end. I know how this works.

“Why not right now?” I ask.

She just looks at me.

“If you don’t do it later today, I’ll take your computer away.” I can’t actually take her whole computer away but I can certainly swipe her keyboard or something so she can’t use it.

“Oh, will you?” she says defiantly.

I’m now wondering why I even went down that road. Either we’ll get in a huge battle or I’ll decide against it, knowing it’s futile at best, or first step on the wrong road, at worst.

She grabs the allergy medication she came for and leaves. I move on. I can’t deal with this right now. I have other things to do and I want to enjoy this first day of summer.

Yesterday was Father’s Day and the plan was to go to my in-laws’ house for the afternoon. The whole family (minus a couple of young adult cousins) would be there to celebrate Grandpa Jim for both Father’s Day and his upcoming 78th birthday. My kids love their grandparents, and they love their dad. Grandpa Jim is also in declining health. We all want to spend time with these wonderful people while we can.

I informed Maddie of the plans the day before. “I don’t want to go,” she said.

“Well, it’s Father’s Day, and the is what Dad wants to do.”

“But I don’t want to,” she repeated.

“It’s not about what you want to do. This is about doing what your dad wants to do even if you don’t want to.”

“Well, I don’t WANT to,” she said yet again.

I’m not sure if she said anything else, but regardless of the words, her expression said it all. She had no intention of going.

Sometimes Maddie is incredibly empathic. Other times she is swallowed up by her autism (the key here being “auto” or “self”), and she can’t see beyond herself.

That night I talked to my husband and informed of the situation. We agreed we would give it a try in the morning, but not engage in a fight over it. I guess we’ve finally learned it doesn’t pay. The typical scenario when we push hard is everybody ends up upset (including our son), and she doesn’t come anyway. So we’ve ruined everybody’s day for nothing.

It’s sad, time after time, to visit the grandparents with only one of our kids (and often both, because when one is down, often the other goes down with her).  They know Maddie (the explanation yesterday was H is sick—true—and Maddie is being Maddie), but it’s still sad. It’s hard for us to do anything as a family, really, often because of Maddie’s inability to motivate herself. She did rally for both Mother’s Day and my birthday, and honestly that all I could have asked of her. It meant so much for me that she got out of bed on a Sunday morning for brunch, and then got dressed (no shower, no clean shirt, a hat to cover up her awful hair) for my birthday dinner at a restaurant she didn’t want to go to, just to make me happy.

So today there she is in that stinky, filthy shirt and I’m kind of angry and rather disgusted. She’s in her smelly pigsty of a room (I’m pretty sure a cat peed in there) playing Minecraft with her online friends. She’s happy.

Maybe this will be one of those “best days of my life” when she rises from her chair, grabs a towel, and takes care of business without another word on my part. I know this is possible. But really I have to be prepared to keep pushing, gently but firmly, without losing my patience or my mind.

Fingers crossed that stinky shirt is in the washing machine by bedtime.

_____

Update: I just finished writing this and that stinky shirt walked in (with the person inside of it) and the shower is ON!!

I grabbed Maddie’s dirty clothes from the bathroom floor, ripped her sheets and comforter off her bed, and threw them in the wash, hoping to de-stink this place a little.

It’s the greatest day of my life!

Yet Another Exercise in Frustration

Chris Irvine, Parent CoachLeave a comment

I don’t know why I haven’t been blogging. It really does help me process my experiences. And I enjoy it. Also it reminds me I have abilities outside of my parenting duties. I can type, for one thing, and the words come easily most of the time. It feels good.

So why have I been neglecting my blog? Maybe I thought it was easier to pretend it all wasn’t happening. To write is to think, and to think is to not ignore. Not that I was ignoring anything exactly, but part of the past year has involved distancing myself from the day-to-day in order to preserve my own sanity and physical health. This is not hyperbole. Here’s what happened:

Once we established last fall that going to school was not a viable option for Maddie (remember the conversation: “So it seems to me you don’t intend to go to school anymore.” “Nope.”), the weight of the world lifted from my shoulders. My two-month-long migraine magically vaporized. I exhaled the longest breath of my life. And I just let it go.

But you can’t REALLY just let it go. A child under 18 who has not graduated or passed an equivalency exam is required by law to go to school. Her IEP mitigates some of that obligation, but eventually I was going to have to do SOMETHING. The school wasn’t initiating any efforts to solve the problem, so I took matters into my own hands and hired Kim, the educational therapist, to work with Maddie. Kim has been a magical force for Maddie, an incredibly calm presence who truly seems to understand her student. There would be no (or very little) actually going to school, but we managed to eek out a little school work, enough to get us all through the year.

It wasn’t easy. In fact, it was an incredibly frustrating process to negotiate with the school and the district to make this situation workable.

After a year and a half of attendance problems, which followed an initial meeting in which we cited ATTENDANCE PROBLEMS as our single biggest concern, we were still met with a serious failure to understand the core issue. Not once, despite indications to the contrary, did she see a counselor or a psychologist to help get to the bottom of the issue. It seems rather obvious that when there is a behavior issue, discovering the reason why is crucial coming up with a possible solution.

Finally, finally, fi-nal-ly, when I made it very clear that I didn’t expect any more schedule changes to affect Maddie’s ability to get up and go, the district offered something called wrap-around services. In theory, it’s great, and in many cases I’m sure it’s effective. The district contracts with a service provider who sends social workers out to your home to become acquainted with the child in the comfort of their own home (or on a nature walk or whatever works) and to learn more about the family situation, in order to address the behavior problem at its root. Very often the child has serious issues involving drugs or alcohol, so the service providers were thrilled to come to a home with a functioning family unit and supportive, loving parents.

However, I hesitated to approve this course of action. I wasn’t confident this would work. Something was holding me back, but our advisor suggested I consent because a significant part of negotiating with the school is playing the game, i.e. “pretending to go along with their recommendations so you have some legal standing and eventually they have to come up with the RIGHT solution.” Apparently this is a necessary step in negotiations, which I absolutely loathe. Why can’t we all put our cards on the table and make the best choice? Why this aggravating game in which nobody wins (except, I suppose, often the district’s budget)?

So after weeks of deliberating, I consented, and the team of ladies arrived at our house a week later to meet. It was a cadre of three women, one fresh out of college, one with decades of experience, and the other somewhere in between. These were three terrific women, easy to talk to, eager to help. I was optimistic. It really was worth a try, I thought.

Well, except for the part about playing along with the school district, it turns out it wasn’t worth a try at all. Courtney, the young woman whose job it was to connect with Maddie, didn’t have the experience necessary for a kid like Maddie. She was warm and friendly, but after the first visit, Maddie wouldn’t even get out of bed or show her face while Courtney sat there for an hour trying to get her to respond. That happened twice.

Heidi, whose responsibility was to meet with the parents and make a behavior plan, was enthusiastic and fun. Maddie’s interest was piqued when she learned Heidi knew what LARPing was. (LARPing is live action role playing, for those not in the know.) But she too missed the boat.

After repeated conversations in which I explained the history of my child, Heidi showed up one day ecstatic with her new idea: Maddie’s reward could be a weekend LARPing excursion.

Well, slap my head. I never thought of that! Just kidding! I should have slapped Heidi’s head instead.

Had she not listened when I explained repeatedly that neither rewards nor punishments have ever been reliably successful with my daughter? Had she not heard me when I told her you could tell Maddie she could go to Disneyland on Saturday if she went to school all week, and then Monday morning she would refuse to get out of bed, and then Saturday she would get up and say, “So are we going to Disneyland?” It just doesn’t work and it never has.

Did she not listen when I told her how many people have suggested we “find her currency” and that was the answer? We don’t know her f**ing currency because she doesn’t have any!

I was beginning to get discouraged, to say the least.

Then we had one more IEP meeting. Maddie still wasn’t going to school and we had to figure out how the school would accommodate her. Heidi and Courtney joined us. Heidi presented her magnificent LARPing plan and Courtney said nothing. Finally I asked Courtney to give her report.

“Oh, Maddie’s so great!” she offered, smiling wide.

I can only imagine the expression on my face. What? That’s your report? “Can you please describe your last two meetings with Maddie?” I requested, trying to hide my aggravation.

“Well she wouldn’t get out of bed or talk to me,” Courtney admitted.

I was calm on the outside (I think) but I wanted to scream. I was so angry.

Not only had these meetings been pointless, I was now frustrated beyond belief. Worse, Maddie was so tired of meeting with people and talking that she eventually didn’t want to see ANYBODY, including Kim, which whom she had developed a meaningful, productive and successful relationship.

There were countless frustrating email exchanges in the course of this failed experiment, some prompting me to cry ‘HELP ME AND PLEASE FIX THIS!” to our advisor and friend. I just couldn’t take it anymore.

At the start of that IEP meeting, my husband declared, “If don’t walk out of here with a new plan, I’m going to be very frustrated.” Amen to that. I had to say very clearly that we all had to accept Maddie wouldn’t be returning to school. A reduced schedule, the cafeteria job she loves, anything else they could come up with was not going to effect a change.

There is something going on with this kid that defies material changes in her school day other than not having a school day AT school. The district head of special education declared, “We are not a home school program. We cannot continue this course of action.” Somebody suggested the district’s alternative independent study high school. Sort of a good idea, except that there are weekly meetings with teachers and attendance is absolutely mandatory. Anytime I imagine absolutely positively getting Maddie to go somewhere, my heart sinks. Currently that’s simply not going to work. Luckily, the school counselor shook her head. At least somebody got it. She recognized the absurdity of a solution that included mandatory attendance.

Somehow or other, because the school year was winding up, we managed to come to an agreement. Maddie’s schedule would remain reduced. Eventually we decided she would go to school on Mondays, when she would attend every class and obtain her work, which she would do at home. Nobody was to make a big deal of her return: a quiet nod as she slid into her seat would be enough. She wouldn’t be seated next to two particular girls who cause her anxiety. She could work in the cafeteria. She would lie low (which, it turns out, meant doing whatever she wanted quietly in her seat, so when other kids were doing school projects, she might be writing a story on her phone, intending to do the work at home with Kim). It sort of seems ridiculous now, to force her to go to school in order to achieve absolutely nothing. But she did it. She completed her coursework. She went to school on Mondays, without a single fight.

We cheered for this little bit, but not too much because she doesn’t like it. I think she finds it condescending. We set what seem like small goals, but what are are shooting for is something challenging enough and, we hope, achievable.

I haven’t checked her grades yet. Honestly I don’t care what they are. I do hope she passed so she can have the credits as we launch into the next phase (online school!) but mostly I’m just thrilled we all made it until June 8th intact–my fiftieth birthday and the last day of school–intact.

Small Victories: A Birthday Story

Chris Irvine, Parent Coach2 Comments

Wednesday Maddie turned 17. Sounds so grown up. Most of our friends with kids the same age spent the last two school breaks touring the east coast and Southern California colleges. They’ve spent money and time on SAT prep, college counseling,  and just getting through the eternally stressful junior year. Some are launching their kids in the fall, anxiously counting the days until their babies fly the coop.

Yesterday, on the 17th anniversary of her birth, Maddie showed me the insecure young person inside and the socially savvy young lady that also resides within her. I never know what side I’m going to see.

A few weeks ago Maddie’s wonderful tutor Kim suggested they see a Giants game together to celebrate the end of the school year. A look at the Giants’ schedule pointed them to a day game which happened to fall on Maddie’s birthday. I wanted Maddie to do whatever made her happy and at the time it seemed like a great idea. Looking back I think I was in denial at best, and just straight up stupid at worst. This was in fact a mistake whose full terribleness would  not rear its ugly head until that morning.

First of all, this plan involved me having to wake Maddie up. It has been established that this is to be avoided whenever possible. Waking her up to go somewhere or do something, even something ostensibly appealing, is fraught with emotion and fear for me. I think I fake it rather well, but even a failed first attempt sends tensions throughout my body and I feel my heart clench. I breathe deeply to remain calm, but I’m immediately almost ready to give up. The problem that morning was that I had bought ferry tickets, so the arrival time mattered. The Giants game ferry really does complete the experience, but it adds significant time and eliminates flexibility. Anyway, I feel like this alone doomed this notion to failure.

Second, Maddie was sleep deprived. For some reason sleeping didn’t go well the night before. Maybe, as it turns out, she was anxious. I also know she was up at 3:00 a.m. because I, too, was up at that time searching for a cough drop when I felt a light tap on my back (DON’T EVER DO THAT AGAIN! I said). She was mid-allergy-attack and looking for a Zyrtec.

So at the start, we had two strikes against us.

And then, the tears. She was tired, she said. She was trying so hard to power through, but, tragically, on her birthday, she wasn’t able to cope. Her tutor, Kim, used her magical skills to try to turn it around. And in fact there was magic because although Kim ended up leaving our house, alone, in her Giants gear, there was a breakthrough. Maddie realized she just didn’t feel comfortable doing this new, out-of-the-norm thing with her tutor. She would go to the game, but only with me. The tears were from fatigue, to be sure, but also from insecurity about this new situation. This girl whom I think of as fearless isn’t in fact fearless. She’s often so brave, but the sense of being able to be in the world without her safety net (me!) is sometimes fragile.

So in her usual way, she inhabited a young child and a mature person in the same moment. Her anxiety came from insecurity, fear of the unknown, fear of feeling untethered, her inability to imagine herself through the what-ifs into a mental picture of success. And yet (and this is even more significant me) she was able to access her feelings and the reasons behind them, and then ask for what she wanted. Such a huge achievement for this kid!

And so, as it should have been all along, I took my daughter to a Giants game for her birthday. Once we arrived at this conclusion, I let go of my stress and just went with it. I ditched my long list of errands, cancelled a salon appointment, packed up my sunscreen and a hat, and off we went. It was too late for the ferry (the ship had in fact sailed by that point), so we hopped in the car and headed across the bridge. The fretting was over. Time to jump into this surprise of a day.

The Giants were terrible. But the day was beautiful and due to a lack of forethought on my part, we had tickets behind the opponents’ dugout, which put us in a sea of Kansas City fans. And that, my friends, turned out to be great! As the numbers on the scoreboard became more and more lopsided, the crowd around us erupted in cheers. They were having fun, and so were we. The couple next to Maddie was visiting California from their home state of Missouri, following their beloved baseball team around the state. They were so friendly, offering to buy Maddie treats for her birthday and engaging in conversation. We talked about all of the wonderful things you can do here in San Francisco, and Maddie asked, “Have you been to Muir Woods?”

Well, that might not seem like a big deal to you, but it sure was to me. Such an appropriate and normal thing to say! She was engaged and conversational! And she asked a relevant and meaningful question, given that we live not far from there. And when the husband repeatedly and enthusiastically offered to buy her a frozen lemonade in honor of her birthday, she politely and gratefully declined several times before finally admitting “Lemonade isn’t my thing.” I felt like a million bucks. My daughter who struggled in the morning, who seemed like a child afraid to be too far from her mother, was out in the world acting her age. Only a parent of a special needs kid would feel like jumping up and down because their kid said something appropriate.

Much to my surprise, we stayed for the entire game (well, almost). It was hot out there in the sun, and she hadn’t really been paying much attention to what was happening on the field (really, who does at a baseball game?), but although I repeatedly informed her that everything was up to her, she was happy to stay. We bought at Pence jersey (“I don’t know who any of these guys are,” she said when shopping for jerseys. “Then just pick a number you like,” I said.) and a big orange foam finger and garlic fries.

In the end, I would call this day a success. But it wasn’t easy. Sometimes I’m reminded in no uncertain terms of the challenges my daughter faces. Sometimes I’m not reminded but instead learn something entirely new. My brave, strong kid can still be a frightened young child inside. She can still struggle to know what she’s feeling, and when she is able to not only identify it but also verbalize it, it’s a small victory. I can’t even think about college, or next year, and sometimes not even tomorrow. It’s enough, quite often, to be surprised minute by minute.

Recently my sister recounted a moment with her teenage daughter. They are both musicians, and my sister has been playing more regular gigs. After a recent performance, “You inspire me,” her daughter began, and my sister’s heart swelled with pride. “To eat ice cream,” the sentence concluded.

“That was a rollercoaster of a comment,” I replied.

And that is precisely how I feel. A single moment with Maddie, a single utterance, can encapsulate a high and a low, both a pleasant surprise and a slap-in-the-face reminder of the challenges we face.

But still, as of yesterday, my daughter is 17. That is 17 years of her becoming this complicated young lady, and 17 years of my own growth into the mother, and person, I am today.

Step One

Chris Irvine, Parent CoachLeave a comment

I decided some time ago that I wouldn’t chronicle in my blog the minute details of when Maddie does and does not go to school. Too much of the same thing day after day. She went to school, yay! She wouldn’t budge, boo.

Today, however, the travails of school attendance leaped onto the forefront of my parenting life as my husband Jake and I met with the educational consultant to discuss the possibilities for Maddie. Or really to discuss how to determine what the possibilities are. At this point, we don’t have a clue.

There are many challenges in choosing a path. As with every fork in the road, where the paths lead is uncertain. What if we…? Who knows? Who knows whether each decision we make is the right one or the wrong one? Nobody. So we do the best we can we the information we have (and whatever information we are still to get), and hope for the best.

When the topic of boarding school comes up, people are generally sympathetic. Often they see how this challenge takes a toll on me. Well, they are right: the effort I expend parenting Maddie as a teenager and the general feeling of futility put an awful lot of stress on me.

But if we do in fact send her away, it will be for one reason and one reason only: it’s the best thing for Maddie. It will not be to save me any stress. In fact, the thought of not being there for Maddie when she comes home from school with a problem, or when she wakes up sick, is heartbreaking. But what we want for her is to live up to at least some modicum of her potential. She is a clever, creative, lovable, warm, interesting person. She is passionate about the things that interest her. She is resourceful and enthusiastic. She’s also hilarious. For her, a meaningful life should include friendships and some way of contributing to society, whether paid or not. She is fully capable of accomplishing things, whether she’s gardening or teaching or working with animals or writing or making things with duct tape. Plus, people love her. She’s so fun to be around. She should feel the rewards of friendships and feel appreciated for her gifts.

At the moment, those things seem so far away. At least once a week she decides she’s not going to school. We don’t know why, exactly, but we’re pretty sure the problem lies not in the school Maddie attends, and not in Maddie’s performance when she’s there. A day at school is typically pretty successful across the board. She’s productive, happy, and well-liked.

The problem is getting her there consistently. And getting her to do her homework when she’d rather not. It’s a daily struggle. The point, though, isn’t necessarily her academic success. For right now, it’s learning to do it anyway. Learning to get up when she’s tired, to do the things that are boring or laborious or challenging anyway. I don’t care if she gets straight A’s or straight C’s as much as I care about her finding something inside of herself to motivate her. I realize she’s only 15 and anyone that age has a lot of growing up to do, but her future is so uncertain, I’m afraid to just wait around for her to figure this out on her own.

Today the question arose: What if she can never find motivation? What if that never happens?

My response: I can’t go there. I have to have hope. I have to believe in Maddie. I have to believe that she will be able to be a contributing member of society, to have friends, to get out in the world and share her tremendous gifts. At the moment it seems that, if given the choice, Maddie would spend her days in her cave of a room playing Minecraft. Uh, no. She’s too awesome for that.

And because she’s so awesome, it remains my job to try and try and try to help her live her best life. We just want her to be happy, and to be happy, I think she needs to feel valuable, important, appreciated and loved. And so I continue to fight for her, to ponder the possibilities, to investigate possible avenues to bring that to fruition, to make the most of the resources we have, and to find new resources, whatever they may be, to push her as much as I can without pushing her too far, to encourage her without berating her, to love her and cherish her and figure out how much, exactly, to expect and demand from her.

The result of the meeting today was this: I am going to get additional evaluations of Maddie so that we can be better informed about her strengths and challenges (not academic–it’s called a personality screening), for ourselves and for any potential educators. The consultant will go to the high school and observe Maddie to help round out the picture. Then we will consider the options. It may be leaving her at her current school with additional help; it may be moving her to another local school that’s more compelling to her; it may be sending her to a mildly therapeutic boarding school. That’s the order of my preference, with the first being WAY out in front. We don’t even know if there’s a boarding school that would be a good fit. We don’t know if there are resources here that can help us. It’s all very much up in the air.

So there we have it. We are nowhere closer, really, to knowing what the plan is than we were yesterday. But we have, at least, begun the process of making a plan. And we know that plan could change, or we could take a path and it might fail and we might have to redirect. Such is the nature of parenting. Such is the nature of life.

At best, we make informed choices and hope for the best. And then we remain open to making a different choice. When a change of course is necessary, it’s just information. So we take that information and try again.

And hope for the best.