public school

Yet Another Exercise in Frustration

Chris Irvine, Parent CoachLeave a comment

I don’t know why I haven’t been blogging. It really does help me process my experiences. And I enjoy it. Also it reminds me I have abilities outside of my parenting duties. I can type, for one thing, and the words come easily most of the time. It feels good.

So why have I been neglecting my blog? Maybe I thought it was easier to pretend it all wasn’t happening. To write is to think, and to think is to not ignore. Not that I was ignoring anything exactly, but part of the past year has involved distancing myself from the day-to-day in order to preserve my own sanity and physical health. This is not hyperbole. Here’s what happened:

Once we established last fall that going to school was not a viable option for Maddie (remember the conversation: “So it seems to me you don’t intend to go to school anymore.” “Nope.”), the weight of the world lifted from my shoulders. My two-month-long migraine magically vaporized. I exhaled the longest breath of my life. And I just let it go.

But you can’t REALLY just let it go. A child under 18 who has not graduated or passed an equivalency exam is required by law to go to school. Her IEP mitigates some of that obligation, but eventually I was going to have to do SOMETHING. The school wasn’t initiating any efforts to solve the problem, so I took matters into my own hands and hired Kim, the educational therapist, to work with Maddie. Kim has been a magical force for Maddie, an incredibly calm presence who truly seems to understand her student. There would be no (or very little) actually going to school, but we managed to eek out a little school work, enough to get us all through the year.

It wasn’t easy. In fact, it was an incredibly frustrating process to negotiate with the school and the district to make this situation workable.

After a year and a half of attendance problems, which followed an initial meeting in which we cited ATTENDANCE PROBLEMS as our single biggest concern, we were still met with a serious failure to understand the core issue. Not once, despite indications to the contrary, did she see a counselor or a psychologist to help get to the bottom of the issue. It seems rather obvious that when there is a behavior issue, discovering the reason why is crucial coming up with a possible solution.

Finally, finally, fi-nal-ly, when I made it very clear that I didn’t expect any more schedule changes to affect Maddie’s ability to get up and go, the district offered something called wrap-around services. In theory, it’s great, and in many cases I’m sure it’s effective. The district contracts with a service provider who sends social workers out to your home to become acquainted with the child in the comfort of their own home (or on a nature walk or whatever works) and to learn more about the family situation, in order to address the behavior problem at its root. Very often the child has serious issues involving drugs or alcohol, so the service providers were thrilled to come to a home with a functioning family unit and supportive, loving parents.

However, I hesitated to approve this course of action. I wasn’t confident this would work. Something was holding me back, but our advisor suggested I consent because a significant part of negotiating with the school is playing the game, i.e. “pretending to go along with their recommendations so you have some legal standing and eventually they have to come up with the RIGHT solution.” Apparently this is a necessary step in negotiations, which I absolutely loathe. Why can’t we all put our cards on the table and make the best choice? Why this aggravating game in which nobody wins (except, I suppose, often the district’s budget)?

So after weeks of deliberating, I consented, and the team of ladies arrived at our house a week later to meet. It was a cadre of three women, one fresh out of college, one with decades of experience, and the other somewhere in between. These were three terrific women, easy to talk to, eager to help. I was optimistic. It really was worth a try, I thought.

Well, except for the part about playing along with the school district, it turns out it wasn’t worth a try at all. Courtney, the young woman whose job it was to connect with Maddie, didn’t have the experience necessary for a kid like Maddie. She was warm and friendly, but after the first visit, Maddie wouldn’t even get out of bed or show her face while Courtney sat there for an hour trying to get her to respond. That happened twice.

Heidi, whose responsibility was to meet with the parents and make a behavior plan, was enthusiastic and fun. Maddie’s interest was piqued when she learned Heidi knew what LARPing was. (LARPing is live action role playing, for those not in the know.) But she too missed the boat.

After repeated conversations in which I explained the history of my child, Heidi showed up one day ecstatic with her new idea: Maddie’s reward could be a weekend LARPing excursion.

Well, slap my head. I never thought of that! Just kidding! I should have slapped Heidi’s head instead.

Had she not listened when I explained repeatedly that neither rewards nor punishments have ever been reliably successful with my daughter? Had she not heard me when I told her you could tell Maddie she could go to Disneyland on Saturday if she went to school all week, and then Monday morning she would refuse to get out of bed, and then Saturday she would get up and say, “So are we going to Disneyland?” It just doesn’t work and it never has.

Did she not listen when I told her how many people have suggested we “find her currency” and that was the answer? We don’t know her f**ing currency because she doesn’t have any!

I was beginning to get discouraged, to say the least.

Then we had one more IEP meeting. Maddie still wasn’t going to school and we had to figure out how the school would accommodate her. Heidi and Courtney joined us. Heidi presented her magnificent LARPing plan and Courtney said nothing. Finally I asked Courtney to give her report.

“Oh, Maddie’s so great!” she offered, smiling wide.

I can only imagine the expression on my face. What? That’s your report? “Can you please describe your last two meetings with Maddie?” I requested, trying to hide my aggravation.

“Well she wouldn’t get out of bed or talk to me,” Courtney admitted.

I was calm on the outside (I think) but I wanted to scream. I was so angry.

Not only had these meetings been pointless, I was now frustrated beyond belief. Worse, Maddie was so tired of meeting with people and talking that she eventually didn’t want to see ANYBODY, including Kim, which whom she had developed a meaningful, productive and successful relationship.

There were countless frustrating email exchanges in the course of this failed experiment, some prompting me to cry ‘HELP ME AND PLEASE FIX THIS!” to our advisor and friend. I just couldn’t take it anymore.

At the start of that IEP meeting, my husband declared, “If don’t walk out of here with a new plan, I’m going to be very frustrated.” Amen to that. I had to say very clearly that we all had to accept Maddie wouldn’t be returning to school. A reduced schedule, the cafeteria job she loves, anything else they could come up with was not going to effect a change.

There is something going on with this kid that defies material changes in her school day other than not having a school day AT school. The district head of special education declared, “We are not a home school program. We cannot continue this course of action.” Somebody suggested the district’s alternative independent study high school. Sort of a good idea, except that there are weekly meetings with teachers and attendance is absolutely mandatory. Anytime I imagine absolutely positively getting Maddie to go somewhere, my heart sinks. Currently that’s simply not going to work. Luckily, the school counselor shook her head. At least somebody got it. She recognized the absurdity of a solution that included mandatory attendance.

Somehow or other, because the school year was winding up, we managed to come to an agreement. Maddie’s schedule would remain reduced. Eventually we decided she would go to school on Mondays, when she would attend every class and obtain her work, which she would do at home. Nobody was to make a big deal of her return: a quiet nod as she slid into her seat would be enough. She wouldn’t be seated next to two particular girls who cause her anxiety. She could work in the cafeteria. She would lie low (which, it turns out, meant doing whatever she wanted quietly in her seat, so when other kids were doing school projects, she might be writing a story on her phone, intending to do the work at home with Kim). It sort of seems ridiculous now, to force her to go to school in order to achieve absolutely nothing. But she did it. She completed her coursework. She went to school on Mondays, without a single fight.

We cheered for this little bit, but not too much because she doesn’t like it. I think she finds it condescending. We set what seem like small goals, but what are are shooting for is something challenging enough and, we hope, achievable.

I haven’t checked her grades yet. Honestly I don’t care what they are. I do hope she passed so she can have the credits as we launch into the next phase (online school!) but mostly I’m just thrilled we all made it until June 8th intact–my fiftieth birthday and the last day of school–intact.

Finding My Voice

Chris Irvine, Parent CoachLeave a comment

Recently I wrote about what’s been keeping me from writing. A few personal distractions have factored in to be sure.

Now I have realized there has been another big distraction from my Asperger’s parenting blog. And that is the current election.

I won’t go into my opinions here. Suffice it to say they are strong. They are burning. They are becoming increasingly consuming of my mental energy. I have always had opinions about these things. I have some very firm beliefs, which have developed over the years as I have grown and matured and become more open-minded and more worldly. I would say they are mostly fully formed.

But like many of us, I have refrained from engaging in discourse about those taboo subjects: religion and politics. I think money is one too. I still don’t really want to discuss religion. That’s personal. Another person’s religious beliefs are their own. I respect them and value our differences. I am certainly curious to learn about various religions, but I don’t feel the need to convince anybody one way or the other or to be converted, either. And money is just not that interesting to discuss.

But politics has become something else for me all of a sudden. I am so fired up I feel like I might explode. And guess what? Sometime over the last year, I have found my voice. Partly it’s probably due to my age. I turned 49 last month. I still feel 25. I’m still goofy and silly and jokey and dancey and sing-y and face-makey and all that good stuff. One of my purposes in life is to have fun with my people. I want us all to enjoy ourselves. I put a lot of myself into that mission on a daily basis, particularly with my family. We dance with the dogs, and say “That’s what she said” as often as possible. I crack myself up, to be honest. Seriously, I am HI.LAR.I.OUS.

But this 49 thing has given me something very powerful. Maybe it’s courage. Maybe it’s kind of the old-lady-who-doesn’t-care-what-anybody-thinks attitude, even though I don’t exactly feel old. Maybe those are one in the same.

Or maybe writing 100 blog posts about my life, letting down my guard to expose my fears and failures and weaknesses and hopes, has given me the courage to speak my mind about other things.

Or maybe it’s because things are falling into place with my kids, which have been the consuming force in my life.  I’m learning to accept the challenges of my 16-year-old daughter, and my nearly 14-year-old son is becoming more independent. So I have this freed up energy, energy that is searching for a purpose. And I’m finding that purpose.

Whatever precipitated this development, here it is. I have found my voice. And I really do mean found. I have had this voice my whole life, but I’ve kept it quiet. I’ve been polite and diplomatic and quiet. I have sat around a table full of people who shared a singular viewpoint while I most vehemently but also silently disagreed. I didn’t want to stir up trouble. Oh, the fire burned in me, but my desire to be polite and maybe, I hate to admit, to be liked, has suppressed my voice.

I wish I had found it sooner. It seems like I wasted so much time being afraid to speak up. I was a painfully shy child, fearful of adults in general, even the lady at the Taco Bell window waiting to take my order. Or my neighbor’s grandma, who insisted she pull that sort-of loose tooth out of my five-year-old mouth. I was too timid and shy to stop her. Or my teachers, who just might call on me to speak. Even though I knew the answer or had something important or meaningful or even brilliant to say, the fear of having to open my mouth and expose myself was overwhelming. So first, I had to overcome my shyness, and that has been a lifelong journey.

But there is a lot of room between not being shy and being bold. I think I just figured that out.

So now, finally, as 50 looms, I have decided it’s time to be bold and use my voice for good. Do I still want people to like me? Well, sure, I suppose everybody does. But I want to be liked for what’s truly inside, and that’s coming out, people! It’s coming out! 

I want my kids to see me this way. I want them to see a fearless woman who speaks her mind, who stands by what she believes in. A person with a passion and a voice and the courage of her convictions. A person whose words can make a difference. Because words are my medium.

This particular blog will continue to focus mostly on parenting. No politics here, unless they involve autism or special needs or kids. I have decided, after 100 entries, that this blog is really about my journey as a mother more than Maddie’s journey as a teen, and this newfound courage is part of that journey. It’s my coming out, as they say. My declaration of strength and power and intention. My declaration of purpose. And it feels good.

 

 

 

 

 

 

 

 

Back on the Horse

Chris Irvine, Parent CoachLeave a comment

It’s been several months since I’ve written. I’m not completely certain why I’ve had such a dry spell. Certainly life has continued to provide challenges, failures, successes, more questions–with or without answers–and even some adventure.

I have my suspicions, though.

This blog has been primarily about raising Maddie. And in the last several months, although she has provided many an interesting moment, there have been some other serious issues on my mind, and I didn’t want to necessarily write about them.

One is my health. I’m one of those people who always has an issue. Or two. Or three. It’s my back. And migraines. And terrible allergies. And unexplained and ongoing gut issues. And my ankles are messed up. And I have an allergy-related sleep apnea that makes me so tired all the time. I might sleep for ten hours and still feel exhausted all day. It sucks. I’m slowly trying to address all of those things, but I’ve found it hard to say, stick to a Pilates schedule when my stomach hurts so bad all the time. I’m finally figuring that one out, so maybe it’s time for those Pilates classes again. And yes, I have to do something like Pilates where I’m less likely to aggravate my ankle or back or hip or whatever. I have one of those bodies.

Second is my marriage. It’s a struggle sometimes. Statistics show a greater risk of divorce among couples with special needs children. Boy, ain’t that the truth. As if being parents isn’t hard enough, you throw in some extra challenges that nobody’s really equipped to deal with, and you’re rolling the dice.

Third is the other kid. Our son. He’s almost 14. He’s such a cool human being. I’ve been challenged with two completely opposite children, so parenting each one is an adventure, to put it nicely. H is intelligent, thoughtful, philosophical, and deep. Sounds awesome, right? Well, those qualities are admirable and desirable and all that good stuff, but parenting a kid like that is hard. He can argue you into a corner, for one thing. And he never ever gives up. While I admire his persistence, sometimes it’s just exhausting. More on him later, though.

Also my parents. I love my mom and dad. They live about 45 minutes from us. I wish they were closer. So I could help them. On the other hand, they’re not super great at accepting help (like mother, like daughter, I’m afraid). My dad has suffered from debilitating depression and anxiety for many years. My therapist thinks he’s agoraphobic, among other things. The word “bipolar” has reared its ugly head of late. I suspect he has some PTSD from a few episodes from his younger life. Whatever the diagnosis, and whatever the cause, he is severely disabled. He rarely leaves the house. It’s too stressful. Just riding in the car is often more than he can bear. He hasn’t driven for years even though he is only just turning 70. So I worry about my dad. But even more so, I worry for my mom. She is a doer. A worker. A creator. She likes to make things, so for several years she has been sewing items to sell at a local consignment store. Or two. Or three. She also refinishes furniture and makes things like framed chalkboards for kids’ rooms. She cooks up a storm, too. She recently completely re-landscaped their front yard so it’s more drought-friendly. She likes to be industrious. She has also spent her life without a lot of extra money, so when something needs doing, she does it, for the most part, rather than paying somebody else to do it. Every once in awhile, there is something beyond her scope (particularly since becoming permanently partially disabled some years ago because of chronic wrist pain in both arms) and she’ll have to hire somebody. But her go-to is “just do it.” How do a person who can’t do anything and a person who only wants to do things live together? Guess what? The doer, my mom, adjusts her life to suit the other. There is a lot of going nowhere. Particularly because Mom worries about what might happen when she’s gone. Dad’s just not reliably level-headed anymore. I want to help them so desperately, but it seems to be out of my hands. I want my dad to be well and, even if he can’t be well, I want my mom to have a life.

So I’ve been distracted, I guess. And I haven’t felt compelled, or maybe just comfortable, putting all this in writing. I don’t want to “expose” anyone. I also don’t want to make this blog a tribute to all my problems, and most of all I think some of this stuff is kind of private. At least the other parties involved might think so.

And then there’s Maddie. She’s still exactly Maddie. She’s at camp right now, the camp she absolutely lives for the rest of the year. When we were anticipating a New York-London trip we took last month, I asked her if she was excited. “Meh,” she said. “CAMP!” That pretty much sums up her experience of our trip (another blog or two will cover that). She just wanted to get it over with and go to camp. So right now I can rest easy knowing she’s in her happy place. She’s probably filthy and she probably has terrible B.O., but it’s out of my hands, and isn’t that a beautiful thing!

And before that, of course, the infamous school year (the actual “Year of Living Hopefully”) came to a close. More on that in another entry, too.

So today I’m back. I remember now that I can write and I like to write and I have something to say. A lot of somethings to say.

The story continues.

Step One

Chris Irvine, Parent CoachLeave a comment

I decided some time ago that I wouldn’t chronicle in my blog the minute details of when Maddie does and does not go to school. Too much of the same thing day after day. She went to school, yay! She wouldn’t budge, boo.

Today, however, the travails of school attendance leaped onto the forefront of my parenting life as my husband Jake and I met with the educational consultant to discuss the possibilities for Maddie. Or really to discuss how to determine what the possibilities are. At this point, we don’t have a clue.

There are many challenges in choosing a path. As with every fork in the road, where the paths lead is uncertain. What if we…? Who knows? Who knows whether each decision we make is the right one or the wrong one? Nobody. So we do the best we can we the information we have (and whatever information we are still to get), and hope for the best.

When the topic of boarding school comes up, people are generally sympathetic. Often they see how this challenge takes a toll on me. Well, they are right: the effort I expend parenting Maddie as a teenager and the general feeling of futility put an awful lot of stress on me.

But if we do in fact send her away, it will be for one reason and one reason only: it’s the best thing for Maddie. It will not be to save me any stress. In fact, the thought of not being there for Maddie when she comes home from school with a problem, or when she wakes up sick, is heartbreaking. But what we want for her is to live up to at least some modicum of her potential. She is a clever, creative, lovable, warm, interesting person. She is passionate about the things that interest her. She is resourceful and enthusiastic. She’s also hilarious. For her, a meaningful life should include friendships and some way of contributing to society, whether paid or not. She is fully capable of accomplishing things, whether she’s gardening or teaching or working with animals or writing or making things with duct tape. Plus, people love her. She’s so fun to be around. She should feel the rewards of friendships and feel appreciated for her gifts.

At the moment, those things seem so far away. At least once a week she decides she’s not going to school. We don’t know why, exactly, but we’re pretty sure the problem lies not in the school Maddie attends, and not in Maddie’s performance when she’s there. A day at school is typically pretty successful across the board. She’s productive, happy, and well-liked.

The problem is getting her there consistently. And getting her to do her homework when she’d rather not. It’s a daily struggle. The point, though, isn’t necessarily her academic success. For right now, it’s learning to do it anyway. Learning to get up when she’s tired, to do the things that are boring or laborious or challenging anyway. I don’t care if she gets straight A’s or straight C’s as much as I care about her finding something inside of herself to motivate her. I realize she’s only 15 and anyone that age has a lot of growing up to do, but her future is so uncertain, I’m afraid to just wait around for her to figure this out on her own.

Today the question arose: What if she can never find motivation? What if that never happens?

My response: I can’t go there. I have to have hope. I have to believe in Maddie. I have to believe that she will be able to be a contributing member of society, to have friends, to get out in the world and share her tremendous gifts. At the moment it seems that, if given the choice, Maddie would spend her days in her cave of a room playing Minecraft. Uh, no. She’s too awesome for that.

And because she’s so awesome, it remains my job to try and try and try to help her live her best life. We just want her to be happy, and to be happy, I think she needs to feel valuable, important, appreciated and loved. And so I continue to fight for her, to ponder the possibilities, to investigate possible avenues to bring that to fruition, to make the most of the resources we have, and to find new resources, whatever they may be, to push her as much as I can without pushing her too far, to encourage her without berating her, to love her and cherish her and figure out how much, exactly, to expect and demand from her.

The result of the meeting today was this: I am going to get additional evaluations of Maddie so that we can be better informed about her strengths and challenges (not academic–it’s called a personality screening), for ourselves and for any potential educators. The consultant will go to the high school and observe Maddie to help round out the picture. Then we will consider the options. It may be leaving her at her current school with additional help; it may be moving her to another local school that’s more compelling to her; it may be sending her to a mildly therapeutic boarding school. That’s the order of my preference, with the first being WAY out in front. We don’t even know if there’s a boarding school that would be a good fit. We don’t know if there are resources here that can help us. It’s all very much up in the air.

So there we have it. We are nowhere closer, really, to knowing what the plan is than we were yesterday. But we have, at least, begun the process of making a plan. And we know that plan could change, or we could take a path and it might fail and we might have to redirect. Such is the nature of parenting. Such is the nature of life.

At best, we make informed choices and hope for the best. And then we remain open to making a different choice. When a change of course is necessary, it’s just information. So we take that information and try again.

And hope for the best.

Voices

Chris Irvine, Parent CoachLeave a comment

As I was tucking Maddie into bed tonight, after a rather frustrating and exhausting couple of days with her, she shared this little nugget:

“At school I read a bunch of symptoms of disease in my Smeagol voice.”

“What?” I asked. Seriously, what?

She repeated it.

“When?” I asked. I still had no idea what she was talking about. I also didn’t know what a Smeagol voice was (I had to Google this to get the spelling, by the way).

Her P.E. class is currently doing Red Cross First Aid and CPR certification, which I love. I also love her P.E. teacher. And now I love her even more.

Maddie was to read aloud from their textbook, and began reading in her Marvin the Martian voice (remember that little guy in the Bugs Bunny cartoons?).

Ms. B asked if Maddie could do any other voices.

“Yes, Smeagol.”

“How about reading some in that voice?”

And so Maddie did. (Smeagol, I now understand, is Gollum from The Lord of the Rings, that weird little guy with an unhealthy obsession with the titular ring.) And when she was finished, everybody in the class clapped.

That was last Friday, five days ago. And in typical fashion, it took Maddie that long to tell me. And I am so happy she did. What a nice way to end the day–with a smile and some hope.

Today I spoke to the educational consultant. My husband I are meeting with her next week to discuss potential boarding schools. I still do not intend to send Maddie away. I want her to stay home and continue at this wonderful public school where the teachers and kids like her swords and appreciate her ridiculous voices. I’ve wanted so badly for her to find it in herself to make this work. And now I want that even more. But ultimately it’s up to her.

I hope she makes it work. I really really do.

A Hard Lesson Probably Not Learned

Chris Irvine, Parent CoachLeave a comment

You know how if you miss a week of work, it’s not really like taking time off? It’s just moving it from one week to the next, when you’ll just have twice as much. As adults, we all know it’s coming, so missing work is a calculated decision on our part, whether it’s for physical health or mental health reasons. That work isn’t going to vanish just because you’re not there.

This morning, after skipping school yesterday, Maddie got up with a fair amount of verve and intention. It was the usual morning of increasing tension, as she was doing what she needed, but at a snail’s pace, and then, just as the clock struck 7:15 and it was time for her to be meeting the cab outside, she thought of two more things to do. Stressful, but normal for us. Off to a relatively good start.

Today Maddie had a dentist appointment, and her dentist happens to be near her school, so I picked her up after school instead of having her catch the cab. I can always tell immediately what kind of day she had, regardless of the words that come out of her mouth. She almost always says her day was great, and today was no exception, but her voice was flat and her eyes were down, so I knew she wasn’t being honest.

After some coaxing, I finally got a confession: she had NOT had a great day, and the reasons boiled down to (1) lunchtime detention for cutting school the day before, which she forgot to go to (or avoided) and (2) a giant pile of homework for tonight. She doesn’t tend to have too much homework because of her IEP and because she has lots of time to do work at school. I am so grateful for that.

But yesterday she missed a whole day of both classwork and homework, so tonight she faced five pages of math and a page each of English and history. For her that’s overwhelming.

And THEN she was going to the dentist, which, like most people, she hates. We drove to the dentist’s office, and since we had some time to kill, I suggested she make good use of it. She’s reading Of Mice and Men* with her English class, so I suggested we read some of it on my phone (thank you, Kindle!). She resisted, but somehow or other I got her to go along, mostly reading it aloud to me.

Then it was time to go in the building. “I’m not getting out of the car,” Maddie declared. And I knew she wouldn’t. She had already shown resistance, from the moment she got in the car, and I had tried both a promise of a reward and a logical explanation of the consequences (who knows if the rescheduled appointment will come on a better day?), but, nope, it was not happening.

Fortunately the dentist and her staff are both kind and compassionate. The receptionist was understanding and offered to reschedule. I cancel appointments at that place constantly, and in fact canceled my son’s last appointment because of trouble with Maddie. I’m probably the flakiest mom they have at that practice as I probably only get my kids to a third of their appointments, always canceling at the last minute and then maybe getting them there several months later. It’s a miracle that my 15-year-old has never had a cavity and my 13-year-old just has his first one–a tiny one–given the lack of effort we have put into dental care over the years.

After making a new appointment, I returned to the car, and we headed home. Maddie finished reading me the chapter in her book on the way. Every once in awhile, she was start to shut down. She wanted to cry. She wanted to pout. She even said that out loud. And then when we pulled in the driveway, she didn’t really want to get out of the car. After all, the next thing to face was that huge mountain of work.

We made an agreement. She would do one hour of hard work and then she could take a break and watch a show. She was amenable to that and was able to sit down and sort of focus for awhile, although I was intimately involved in her homework, writing her math so she could just think and talk, encouraging her when she felt stumped, refocusing her when she got distracted, and giving her lots of positive reinforcement. She didn’t finish all her homework, but she gave it a good try.

So now she is done. She is watching her show. And I am ambivalent about our evening together. I really coached her through a hard time, and she was able to get through it. That’s a good thing. I also pointed out more than once that her problems were directly related to the choices she had made yesterday. I knows she understands that intellectually. I made sure she does. The problem is, will she be able to apply what she knows right now next time she wants to stay home from school? I’m not so sure. Mostly that’s because of Maddie’s challenges, but I wonder right now if I haven’t just undermined my own lesson. I wanted her to get her homework done so badly that I sat with her and gently but firmly guided her through it. And I let her quit after a good 90-minute session in which she nearly quit several times. Perhaps I should have let her suffer the consequences a bit more. Perhaps giving her my company and gentle encouragement weren’t the best course of action. Perhaps the lesson she needed was how much two days of work sucks more than one day’s worth, rather than whatever she was learning in math and English.

It’s too late now. Today’s lessons are done. For both of us. Maddie will go to sleep tonight, tired and glad today is over. Tomorrow she will wake up and probably have no immediate recollection of today’s suffering. I’ll remember it, though! Let’s hope I remember, the next time Maddie skips school, the lessons that matter most and hold Maddie accountable and maybe let her suffer the natural consequences a bit more.

As all parents know, the hardest part of parenting is the not knowing how well we’re doing until it’s too late. When our kids have become adults, we can look at them and think, Well, I guess I did okay! Or, Gee, I should have done this other thing. But until then, the results are still in process. So who knows what effect today’s events and my parenting in the midst of them will have on Maddie. Maybe none. Probably none. We shall see.

 

 

Tuesdays and Thursdays

Chris Irvine, Parent Coach2 Comments

And here we are again. The cab driver has come and gone and Maddie’s still in bed. She went to sleep on time. I even thought she had an incentive: She wants to stay up to watch The Flash tonight, and I said she could as long as she did a great job today. Her very first opportunity to prove herself has passed. And she failed.

I woke her up in the usual manner, stayed there and chatted for a few minutes, put everything she needed to get dressed on her bed, and went upstairs to make her breakfast and lunch. On my second visit to her room, I told her it was my last warning for her to get up. She would need to get going or the deal was off. She nodded and said, “Don’t close the door.” I assumed that meant she was heading to the bathroom shortly.

Just before pickup time, I returned to her room after packing her lunch and water bottle into her backpack. She was still cocoon-wrapped in her blanket.

And then it happened. I lost it. I couldn’t be nice and patient anymore. I’m done. I’m out. I grabbed her blanket, yanked it off her, and yelled, “Maddie! What are you doing?!”

“Lying in bed,” she answered dryly. Duh.

I don’t remember what I said after that, but I know I was yelling. My patience and kindness aren’t readily available today. For some reason I haven’t been sleeping well for a few weeks, and I’m feeling it. Last night I took melatonin, which usually works, and slept on the couch where nobody would disturb me, but somehow our puppy ended up in my space and, although he’s normally a good sleeper, last night he woke me up a couple times. I’m desperate for a good night’s sleep. It’s like the days of having an infant.

Especially today. Except that my child is almost as big as I am. And she can talk back.

When Maddie was a baby, I thought, “How could I ever be mad at her?” It was unfathomable. She was so sweet and innocent and helpless. Then when she was about two, I realized I could get plenty angry at this kid. It takes me awhile to build up to that, but the frustration your child can cause is probably equal to the love you feel.

And that’s where I am this morning. I am at my wit’s end. I don’t have a solution. Just when everything seems to be going great, there’s a major stumble. A roadblock. An insurmountable problem that comes seemingly out of nowhere. Like Mount Shasta. Except Mount Shasta’s pretty to look at.

She was doing something on her phone, so I tried to take it away from her, but it was turning into a wrestling match, something I can’t win anyway. Maddie is a lot stronger than she looks. Plus, it’s not really healthy to have a physical altercation with your kid, so I gave up. Maddie would never give up, and I realized that, too.  She would be good under interrogation. Oh, yeah? You think that’s going to work? Think again, mister!

The boarding school idea popped into my head. How many times can I bring that up without actually doing anything about it? It’s meaningless at this point, I think. She doesn’t believe we will send her away. And I don’t want to send her away. It’s not a punishment. It’s a white flag. I give up. I give in. I am not capable to fighting this battle anymore. And today it feels like a battle.

“Why are you doing this?” I plead.

“I don’t like Tuesdays and Thursdays,” she declares.

“Well, you can’t just skip them. That’s forty percent of school!”

Huh, good point, apparently. But it doesn’t matter how good of a point I make; Maddie has decided. 

Is there such a thing as a stress aneurism? Because I’m about to have one. I tell her again about the boarding school thing. “I’m serious,” I say. “I wouldn’t be giving up on you. I’d be giving up on me. Apparently I can’t teach you what you need.”

“Well, if I go to boarding school,” she counters, “I won’t get up and go to school there either, and they’ll just send me back.”

“Maddie, there are schools where people specialize in this kind of thing.”

“Huh,” she says. She is digging in her heels at this point. “They haven’t dealt with me before.”

This apparently has turned into a battle, and she is going to win no matter what.

“Really, Maddie? What are you going for here?” I ask. “You want everyone to just pass you off to somebody else? Really?”

This probably isn’t a good road to take, this particular line of questioning. But I’m just out of ideas. It seems to me she doesn’t take skipping school seriously, so I feel obligated to change her attitude. Somehow or other I need her to see that school isn’t optional, and that there will be consequences for her choices.

My body is tense and my brain is shorting out. I can’t do this for one more minute. I get my husband up to help me. I’m out of ideas. I’m out of patience. I feel powerless. I am powerless.

——————-

Fast forward 30 minutes.

My son has a broken finger and has a cast. He usually rides his bike to school but for now I’m driving him. Just as we are about to depart, I hear my husband shout, “She’s almost ready!” A miracle has occurred. The one thing that sometimes works in times like this is role playing, using characters from whatever Maddie is into at the moment. Right now it’s that anime show she loves so much. I suck at role playing. My husband doesn’t love it, but he’s better at it. And sometimes it works. It’s absolutely absurd that we should have to take on other characters to motivate Maddie, but we do the absurd all the time if that’s what’s required.

So now we run out the door, up two flights of stairs to the car, and high-tail it to the middle school. Henry leaps out at his first opportunity, and to my relief, we are on our way to high school. Maddie will be a bit late, but that’s okay.

About three minutes later Maddie announces, “Just so we’re clear, I’m not getting of the car when we get there.” You have got to be kidding me.

It’s 8:15 and I want to go back to bed until today is over. I can’t do this for one more minute. I consider just turning around and going home. What’s the point? I wonder. Seems like a waste of time to drive halfway across the county for a disappointing and frustrating outcome. But I’m not quite ready to give up. Oh hell no. She’s going to school.

So I tell her we are going, and if necessary I will go to the office and get someone to help me. I’m serious. I will wait there and talk to whomever I can until this matter is sorted out. I am not leaving until Maddie is out of the car and checked in at the office.

It’s her phone that finally saves the day. I have left my own cell phone at home. So a number of times Maddie has called home to talk to her dad. As we are arriving at school, I ask for her phone so I can talk to him. I thank him and hang up. Then I take her phone and slide it into my purse as I’m getting out of the car.

“My phone!” she panics. “Can I have it? I need to write my story for school!”

“Is it due today?” I ask. I am wondering now if late homework is factoring into today’s events.

“I don’t know.”

“Well, you can finish it at school. It’s better to turn in homework late and be at school.”

“Can I have my phone back?”

“Once you have checked in at the office and are leaving for class, I’ll give it to you.”

And that’s how it goes. I walk her to the office, and she checks in, having to admit she is late because she “slept in,” although that’s not really the truth.

Can I quit now? On days like this, I feel like I’ve done a full day’s work by 9:00 in the morning. I’ve been up for 2 1/2 hours. A very long 2 1/2 hours. And I’m tired.

Now, as I’m writing this, one thing becomes clear. Words aren’t going to solve this problem. I could talk about this for a week straight and it’s not going to change her mind. She needs concrete information, and that is going to come in real-life consequences. So for now, I need to see what I can accomplish with the administration at her school. Somebody over there needs to make a point. Maybe it’ll work, and maybe it won’t. But I can’t do this alone.

Today will be about communicating with the school and doing a lot of deep breathing. Maybe a nap. I need to figure out how to relax now. My head hurts. I feel like crying, but I can’t. It would be such a relief, but the tears aren’t there. I just feel heavy and tired. Stressed out and defeated. I’m not sure what the appropriate way is to express all that.

Tomorrow should be easier. It’s a shorter day, and on this particular Wednesday, there is a series of entertaining events scheduled. I hope she sees that as a reason to go to school, not another reason to stay home. I hope I get some sleep. I hope I am better equipped to handle whatever comes my way.

Hoping and Knowing

Chris Irvine, Parent Coach9 Comments

This is the year I have been waiting for. And by year, I mean school year, because as a mom that’s how many of us view the calendar. The “year” starts in August and ends in June, and the months in between, AKA summer, somehow find their own way of existing outside of The Year.

This is the year my daughter turned 15. She is about to start her sophomore year at a public high school after spending three years in a private school for kids with special needs. Maddie has Asperger’s Syndrome, what is now no longer considered a separate diagnosis from Autism. My fingers are crossed so hard it hurts. I want her to make friends, find her passion, somehow become more organized and motivated so that she lives up to her great potential. Mostly, though, I want her to get up in the morning even when she’s tired, and take showers at a reasonable interval so she doesn’t stink.
I lied before. This hasn’t been “the year that I’ve been waiting for.” Not really. I don’t think in years. Not until just now. Because life as the mother of a special needs child is best taken day by day.
I get up in the morning, hopeful but knowing exactly how it’s going to start. I will wake Maddie up gently, with a loving hug and a back rub, and now perhaps a tail-wagging puppy. I will tell her what time it is, place an outfit on her bed with a can of deodorant right on top so she’ll remember to use it. I leave, hoping but knowing this isn’t the end. I go to the kitchen and make her breakfast and then return to her room for another wakeup. She is unmoved, wrapped in her blanket like a caterpillar in a cocoon.
“Maddie,” I say gently, “it’s time to get up now.” Silence. “Maddie, it’s getting late, you need to get up.” Silence. “Maddie, please just make a sound so I know you’re awake.”
“Mmmm….” she finally utters.
“I made you some eggs. I have to go work on your lunch now,” I say, trying to hide the frustration in my voice. Maybe successfully, maybe not. “Please get up. Everything is on your bed. Don’t forget deodorant.”
I leave again, once again hoping and knowing. This goes on until a panic starts to set in. Most days my husband takes her to the van stop on his way to work. The van will be full of kids, waiting for Maddie to arrive because everybody else was on time. Maddie will be late. Again.
The scene almost always dissolves into mass chaos, with me running around, yelling at Maddie, often hastily shoving her shoes on her feet and tying them for her. Even though she’s a teenager and perfectly capable.
Her hair is unbrushed AGAIN. Most likely greasy because I couldn’t get her to shower the day before. Her dandruff is getting really bad. She isn’t wearing the pants I put out, but instead has chosen a pair she likes better that are smeared with dried avocado. Maybe she did her homework. Maybe she didn’t. Maybe she did it and it’s now under her bed somewhere. I am yelling, my husband is yelling. Somehow they get out the door, her breakfast in her hand. By 7:45 a.m. I feel emotionally depleted, defeated. Again. I didn’t cry, though. I don’t cry much anymore.
At least this is the story up until now. Tomorrow is the first day of her sophomore year, and this is the year I am determined to help her become more self-reliant, self-motivated, even a little more organized. I am counting on her school to hold her accountable in a way her sweet little private school did not. I also know that if we can’t achieve some success, the last resort is a therapeutic boarding school. I will have actually been defeated as a mom, now willing to give her to somebody else more qualified to teach her how to be a grownup. I don’t want to send my child away, but we have to do what’s best for her. For now, we are counting on this new environment to be successful.
So tomorrow is a new day. It’s a big day. But it is still just another day. I am hoping, but not knowing. Not yet.