Back on the Horse

It’s been several months since I’ve written. I’m not completely certain why I’ve had such a dry spell. Certainly life has continued to provide challenges, failures, successes, more questions–with or without answers–and even some adventure.

I have my suspicions, though.

This blog has been primarily about raising Maddie. And in the last several months, although she has provided many an interesting moment, there have been some other serious issues on my mind, and I didn’t want to necessarily write about them.

One is my health. I’m one of those people who always has an issue. Or two. Or three. It’s my back. And migraines. And terrible allergies. And unexplained and ongoing gut issues. And my ankles are messed up. And I have an allergy-related sleep apnea that makes me so tired all the time. I might sleep for ten hours and still feel exhausted all day. It sucks. I’m slowly trying to address all of those things, but I’ve found it hard to say, stick to a Pilates schedule when my stomach hurts so bad all the time. I’m finally figuring that one out, so maybe it’s time for those Pilates classes again. And yes, I have to do something like Pilates where I’m less likely to aggravate my ankle or back or hip or whatever. I have one of those bodies.

Second is my marriage. It’s a struggle sometimes. Statistics show a greater risk of divorce among couples with special needs children. Boy, ain’t that the truth. As if being parents isn’t hard enough, you throw in some extra challenges that nobody’s really equipped to deal with, and you’re rolling the dice.

Third is the other kid. Our son. He’s almost 14. He’s such a cool human being. I’ve been challenged with two completely opposite children, so parenting each one is an adventure, to put it nicely. H is intelligent, thoughtful, philosophical, and deep. Sounds awesome, right? Well, those qualities are admirable and desirable and all that good stuff, but parenting a kid like that is hard. He can argue you into a corner, for one thing. And he never ever gives up. While I admire his persistence, sometimes it’s just exhausting. More on him later, though.

Also my parents. I love my mom and dad. They live about 45 minutes from us. I wish they were closer. So I could help them. On the other hand, they’re not super great at accepting help (like mother, like daughter, I’m afraid). My dad has suffered from debilitating depression and anxiety for many years. My therapist thinks he’s agoraphobic, among other things. The word “bipolar” has reared its ugly head of late. I suspect he has some PTSD from a few episodes from his younger life. Whatever the diagnosis, and whatever the cause, he is severely disabled. He rarely leaves the house. It’s too stressful. Just riding in the car is often more than he can bear. He hasn’t driven for years even though he is only just turning 70. So I worry about my dad. But even more so, I worry for my mom. She is a doer. A worker. A creator. She likes to make things, so for several years she has been sewing items to sell at a local consignment store. Or two. Or three. She also refinishes furniture and makes things like framed chalkboards for kids’ rooms. She cooks up a storm, too. She recently completely re-landscaped their front yard so it’s more drought-friendly. She likes to be industrious. She has also spent her life without a lot of extra money, so when something needs doing, she does it, for the most part, rather than paying somebody else to do it. Every once in awhile, there is something beyond her scope (particularly since becoming permanently partially disabled some years ago because of chronic wrist pain in both arms) and she’ll have to hire somebody. But her go-to is “just do it.” How do a person who can’t do anything and a person who only wants to do things live together? Guess what? The doer, my mom, adjusts her life to suit the other. There is a lot of going nowhere. Particularly because Mom worries about what might happen when she’s gone. Dad’s just not reliably level-headed anymore. I want to help them so desperately, but it seems to be out of my hands. I want my dad to be well and, even if he can’t be well, I want my mom to have a life.

So I’ve been distracted, I guess. And I haven’t felt compelled, or maybe just comfortable, putting all this in writing. I don’t want to “expose” anyone. I also don’t want to make this blog a tribute to all my problems, and most of all I think some of this stuff is kind of private. At least the other parties involved might think so.

And then there’s Maddie. She’s still exactly Maddie. She’s at camp right now, the camp she absolutely lives for the rest of the year. When we were anticipating a New York-London trip we took last month, I asked her if she was excited. “Meh,” she said. “CAMP!” That pretty much sums up her experience of our trip (another blog or two will cover that). She just wanted to get it over with and go to camp. So right now I can rest easy knowing she’s in her happy place. She’s probably filthy and she probably has terrible B.O., but it’s out of my hands, and isn’t that a beautiful thing!

And before that, of course, the infamous school year (the actual “Year of Living Hopefully”) came to a close. More on that in another entry, too.

So today I’m back. I remember now that I can write and I like to write and I have something to say. A lot of somethings to say.

The story continues.

Swimming Upstream

I don’t know if I’ve mentioned this before, but I love to shop. I know it’s stereotypical and not necessarily admirable, but it’s the truth. I love clothes, I love shoes, I love jewelry, I love purses. I also love to decorate my house. I love to buy gifts. If you mention you’re looking for a particular dress, I will take it upon myself to search to the end of Google to find it.

It’s satisfying. It’s a way that I express myself. And even if I’m not buying, it gives me pleasure to look at and feel pretty things. I can visit the Prada department at Neiman Marcus (just because my friend works in the department next door), and enjoy the beautiful fabrics and stunning details and superb craftsmanship without feeling sad for one second that Prada clothes are out of reach. That’s OK! It’s like art to me. Do I got to a museum and lament the lack of a Monet or Rodin in my house? Of course not!

I remember when I got pregnant that I wished so much for a girl. Having grown up with two sisters and no brothers, girls were what I knew and understood. And then at that 20-week sonogram, my wish came true. There was a little tiny girl growing inside me. Boy, we were going to have a good time, mother and daughter, doing all that fun girly stuff together.

And then I had Maddie. Sure she’s a girl, but she’s not especially girly. Which is perfectly fine. I absolutely love her the way she is and wouldn’t dream of changing her, but there has been a little bit of mourning over the loss of some dreams. She’s a lot of fun, but we don’t share many interests. She loves to craft. To me crafting is like getting whacked in the head with a hammer: I’m just glad when it’s over. She loves comic books. I actually do like superhero movies, but that’s about the extent of it. She doesn’t care about her hair or her clothes or her shoes or getting her nails done. At least she likes to color her hair. That’s kind of fun.

The real problem with her disdain for shopping, though, really comes into play when she actually needs something. Like bras. Or shoes. Or swimsuits. Or a graduation dress. I do all the legwork, trying to find something that will fit her rather short but curvy body and meet all her sensory requirements as well. It’s not easy. But I do it. I scour online shops and Target and Old Navy and whatever else I can think of for jeggings with a short rise, swimsuits that cover her up in all the right places, shoes that fit her terrible feet, and most challenging of all, bras that meet her many particular needs. It’s a chore. It could be fun, actually. And today it kind of was.

Saturday we leave for our spring break trip, this year to Mexico. Our week will be spent swimming and reading and playing games together. It’s a week of relaxation and quality family time (I hope). And suddenly, a couple days ago, it occurred to me that the kids have probably grown since last year and might not be properly outfitted for a tropical vacation. So yesterday I somehow got Maddie to try on the few things we could find that would be suitable for warm weather. And I was glad I did. We found two swimsuits that were way too small and a few dresses, only two of which fit. And one pair of shorts.

So here I was, six days before we leave, with a bit of a problem. A hard-to-fit teenager who refuses to shop in need of, all things, a swimsuit. Or two. Or three. Plus some clothes. So my wonderful niece, Rachel, who’s living with us right now, helped me pick out eleven swimsuits on Amazon for Maddie to try on when they arrive in the next couple of days. I have no idea what size she is, so it’s a bit of a gamble. But with a girl who won’t shop and few places nearby that offer full-coverage suits, Amazon was the answer for sure. That’s what I did last year.

And then we spent some time in Target looking for sundresses. I found some great stuff, including a Batman night shirt and a tee shirt with a Dia de los Muertos-style Darth Vader and the words “Yo soy tu padre” on it. Genius. Perfect. Also some comfortable tee-shirt dresses. I was so happy. I felt like we nailed it. I even declared our outing a success on our way home.

And then I presented the dresses and shorts to Maddie. She was not impressed. She was not interested. In fact, she was pretty rude about it.

“I don’t need any dresses,” she said flatly, not looking up from her computer screen.

“Well, you do need a couple things for Mexico,” I said. “Plus I got you a couple other things I think you’ll really enjoy.” I showed her the Batman and Star Wars items. Those got quiet approval. But she refused to even acknowledge the other stuff. Or the effort I had put into it. No gratitude, no sensitivity to my feelings, no real acknowledgement that I had done anything for her.

“I’m not trying anything on,” she announced.

I grabbed her stuff. “Well, then I’ll take it all back,” I said.

“No!” she spat, and grabbed the whole pile of clothes.

“Well, you don’t have to try everything on, but anything you are interested in keeping you have to try on. That’s just the way it is.”

No response. So I left. I don’t know why this particular exchange affected me so much, but in that moment I felt the wind just leave my body. I went from feeling so pleased to feeling utterly deflated in the matter of moments.

I also don’t know why I expected that to go any other way. She doesn’t care about clothes, unless it’s a really cool tee shirt. So not only does she not get particularly excited when I buy clothes or shoes for her, she sometimes actually gets angry. Yes, angry. As if I have wasted whatever time and money on picking out that rather than something she’d really enjoy. Okay, I get that. But this time she actually needed some clothes. (Fingers crossed at least one of those swimsuits works out!) And I took it upon myself to get her what she needs and she couldn’t have cared less.

I realize that’s probably not unusual for a teenager, the lack of gratitude and grace. But perhaps it’s the relentless feeling of swimming upstream that I experience on a daily basis that has left me feeling so deflated after this particular exchange. Deflated. Demoralized. Depressed.

The truth is, she may never develop the gratitude and grace I wished for in that moment. That would require a level of perspective taking that is not necessarily natural for people with autism. She will probably never think to herself, “Gee, Mom is so nice to me I ought to reciprocate, and go to school/try on clothes/clean my room.”

Why do I try so hard? I wonder sometimes. It’s the same old battle inside me: how do I both accept my child and refuse to give up? If you wanted to learn how to ride a bike, but knew the chances were slim that you would ever succeed, how long would you keep trying? Eventually, I suspect, a person would accept their fate and give up. And, frankly, that would be the logical thing to do. How much effort do you put into something that’s unlikely ever to come to fruition? There has to be a limit, right?

But when it’s your kid, there is no limit. How can there be? You just keep going, even if you are swimming upstream. You have to come up for air once in awhile, but you dive back in and swim harder. You accept that it’s going to be a struggle, you accept that you may never ever reach your destination, but you have to believe, at least some of the time, that the swim is worth it.

But sometimes you just get tired. Today is one of those days. My fins need a rest. I need to breathe freely. And I’ll be back in the stream tomorrow. After all, we will have swimsuits to try on.

Another Spectrum

Spectrum:

1. A band of colors, as seen in a rainbow, produced by separation of the components of light by their different degrees of refraction according to wavelength.

2. Used to classify something, or suggest that it can be classified, in terms of its position on a scale between two extreme or opposite points.

How I felt the true meaning of that word this last week!

One moment I was holding Maddie’s hand while she struggled to tolerate the miserable sensation of “buzzing” in her face, begging me to somehow help her. In another moment I engaged in conversation with Maddie and her cousin about how one of them wished she knew herself better and the other had learned in the last couple of years how to feel more comfortable presenting her true self. From helpless young child to self-aware, philosophical teenager all in the matter of a weekend. A spectrum, indeed!

Yesterday I drove about an hour to have Easter with my parents. Maddie had spent the night with my sister who lives near my parents, so we all met for a casual afternoon celebration including lunch and multiple eggs hunts. And, as is always the case when my niece is involved, board games. We struggled through a few rounds of Apples to Apples (if you don’t have it, get it!) because we just couldn’t stay on topic for some reason. Suddenly, Maddie announced, holding her belly, “Ugh. My stomach hurts.”

“Do you need to lie down?” I asked.

Much to my surprise, she nodded quietly and started heading toward the nearest bedroom.

“Do you need anything?” I called.

She nodded. And pointed. At me. Of course. Just like last week, when she wasn’t feeling well, she just wanted her mom.

Hey, I get it. I’m 48 years old and it wasn’t so long ago that I felt like the one person who could take care of me was my own mom.

When Maddie was born my mom came to live with us for the first week. When I was eight months pregnant with my son, and Maddie had just turned two, I had complications that made it very difficult for me to get around, so Mom stayed with us for the entire last month of my pregnancy. She did everything. She cooked and cleaned and dug up stumps in our backyard and cleaned the tops of our kitchen cabinets. She did laundry and took care of Maddie. I was so grateful to have her there.

And then, after both visits, she unceremoniously began to pack up to go home. She had certainly done so much more than I ever could have imagined. But I wasn’t quite ready to be without her, even though I was 33 and 35, and so I cried. The first time, when suddenly there I was with a newborn baby and a lot of raging hormones, I was scared. How would Jake and I manage this new life? The second time, when my son was born, I was certainly more ready, but after a number of complications (including a systemic rash and a rib cracked during my c-section) I was still pretty miserable. Maybe I was scared. Now I had TWO babies. If I thought one was challenging, how on earth would I manage two? And post-c-section with my still-cracked rib and a rash that was getting worse before it got better.

And so I cried. With Maddie I cried for two days. With my son, it was brief, but I still cried. I still wanted my mom.

And here was Maddie feeling sick to her stomach, wanting her mom. But now she wanted me for something I really couldn’t help. I finally talked her into going into the bathroom, where I thought her problems might eventually be solved. She sat there, suffering with cramping intestines, reaching out for my hand. Again. “Help me,” she begged.

“Well, I can’t really help you with this.” She’s nearly 16. I really can’t help her in the bathroom. Nor do I necessarily want to.

“Uh, I’ll sit out here and you can leave the door open,” I offered. We were in my parents’ room, so I could just close the bedroom door and we could have privacy. I sat on the couch, looking at the spines of my mom’s books for something to read. I didn’t have my reading glasses nor was there anything I was particularly interested in. (I eventually picked up a book and handed it to Maddie. Painted Crafts. The operative word: crafts. Maddie loves them. I’m allergic to them.) So I just sat and sat and waited. And tried not to listen or breathe through my nose.

“OOOOOH, help me, Mom!” she cried again. She must have had food poisoning. She was in pain and sweating and uncertain of how long this feeling was going to last.

I sighed, “Maddie!” I’m sure I was exasperated by this point. “There’s really nothing I can do for you.” Deep breaths. Of course my heart went out to my suffering child, but I was also feeling exhausted from the demands upon me over the last several days.

Eventually she was alright and we were able to make the hour drive home.

But I couldn’t help but notice how sometimes Maddie is very fifteen, and sometimes she’s very four. Teenager-y and toddler-y. And there is not a lot of in between.

And this morning there was a lot of teenager-iness.

Mondays are always hard for Maddie. Mondays are hard for most people, I suspect, and I tell her that all the time. Everybody is tired! Even your teachers! But they get up anyway!

Despite her promise that a sleepover on Saturday wouldn’t negatively impact her school week, she was unmoved this morning. I tried all the usual tricks, and eventually I managed to get her up. I wasn’t sure how I did that although some threats were involved, as was a little bit of yelling and even some counting (toddler-iness!). I had taken her electronics out of her room and promised to return them once she got up. I even let her wear the shirt and pants she slept in (just add some deodorant, please), so all she had to do was put on her socks and sneakers, grab and hat and glove, throw her backpack over her shoulder and head up the stairs.

I took the dogs and her French toast wrapped in a napkin and headed to the door. Maddie asked, “Where’s my phone?”

“In my purse. You can have it in the car.”

Shortly after getting the dogs into the backseat and settling in myself, Maddie appeared with her backpack. I looked at the clock. 7:35. We might be on time today! I thought cheerfully. It was a stressful morning but not only we were on our way to school, for once she might not be late.

Maddie opened the door, threw her backpack in, sat down, and reached for my purse. I buckled my seatbelt. And then…

She grabbed her phone and got back out of the car.

Are. You. Kidding. Me.

She did all of that in order to get her phone without having any intention of going to school. It was all a big ruse. Or at least it became a ruse. I suspect the more insistent I had gotten about school, and the fact that I had removed her phone, had somehow inspired her to dig in her heels. She was going to win this

I hopped out of the car but there was clearly no way for me to win this, if winning meant getting her phone back. Even if I had tried, I’m not strong enough (or willful enough) to physically extract the phone from that grip of hers. I could stand in front of her all day, keeping her in the driveway, I guess, but that’s just ridiculous.

“If you don’t get back in the car or give me your phone,” I said sternly, “when I do get my hands on that phone, you’re losing it for a month.”

“You don’t mean that,” she challenged.

“Oh I certainly do.”

Unfortunately that month includes a trip to Mexico. Oh crap. What have I done?

Seriously. What. Have. I. Done.

I fell into the trap again. She was so determined to keep her phone that even if I had promised to destroy it during the night, she wouldn’t have done anything differently. I could take away her allowance for a year. I could even take away sleepovers for a year, and she absolutely lives for sleepovers with her cousin. I could have done any and all of those things and she would have stuck to her guns because in a moment like that, her “guns” are the only things that matter.

Actually, now that I think about it, this morning’s behavior seem both toddler-y and teenager-y. Rebellious like a teenager. Unable to anticipate the future like a toddler. Stubborn like Maddie.

I guess ultimately that’s who I’m dealing with. Not an age or a phase, but just a Maddie. She’s complicated and confusing and maddening and surprising. She is a whole spectrum unto herself! And it’s very challenging.

Some people might be grateful for the challenge. Or at least they might think they would be. I’m not grateful–at least not today. It’s damn hard. Today I feel like I’m losing my mind.

But I do accept it. That’s a gift, I suppose, of having a special needs child. You learn a whole lot of acceptance. You learn to see a person for her whole self, and you love and accept all those parts. You embrace every color of the rainbow and learn to see all the colors in between.

And somehow you just keep going. You get up every day hoping for a pretty indigo or gold but knowing today might be kind of a muddy brown or a swamp green. And today the spectrum wasn’t pretty. But maybe tomorrow will be that soothing, beautiful blue or something even better.

Finding Peace in Acceptance

Dear readers, you may have noticed I haven’t blogged in a few weeks. I have had occasional dry spells when I’ve started a bunch of posts but couldn’t seem to develop them properly. Or maybe I’ve been busy. Or tired. Or maybe I just couldn’t write one more “I couldn’t get Maddie to school” story. How boring it would be if my blog were a daily account of Maddie’s attendance, which is predictably unpredictable if that makes any sense.

A few days ago I started thinking about my blog, and I realized what my “roadblock” has been. The reason I put quotes around “roadblock” is because that word tends to indicate something negative, something in the way of a goal. In this case, though, I think the “roadblock” has been my attitude of acceptance. I have spent so much less energy swimming upstream. I just hopped on board the raft for the ride, I guess. The ride might be tranquil and relaxing, predictably smooth. Or I might hit some Class 3 rapids, which require a bit of attention if you want to stay on the raft. Or maybe a Class 5 comes into focus, and I have to hold on for dear life despite the fear and lack of control over the outcome.

I went whitewater rafting some years ago, and, not being an especially strong swimmer, my approach was to spend the ride leaning slightly toward the middle of the raft. That way, if I lost my balance, I would (I hoped) fall into the safety of the raft, not the wildness of the river. It worked that time. Maybe that’s what I’m doing now. I didn’t fight the waters; I just tried to manage what was coming my way in the best way possible, accepting that the unknown might be around the corner.

Having a thirteen-year-old and a fifteen-year-old, I see an awful lot of orthodontic work among their peers. Braces have come and gone over the years. Many kids are on their second round. Some have even completed that.

Maddie could use braces. Her jaw is slightly off center, and although her teeth are generally straight, her canines have come in slightly above of the rest of her teeth. Braces would straighten her jaw and give her adorable face a dynamite smile. But something has been holding me back.

A couple of years ago we visited a holistic dentist for this purpose. Instead of traditional braces, the protocol involves a series of appliances that you wear on your teeth that slowly move your teeth into place. The appeal is in the outcome, which would theoretically help breathing by moving the teeth outward for a wider smile rather than inward as has been somewhat more traditional (or so I am told). I absolutely loved the idea, but I was skeptical about Maddie’s ability to manage something that was, realistically, optional. And I was right. Two years later the first appliance still sits in her nightstand, barely used. I guess I gave up. She just couldn’t manage it, and neither could I. A long and uncomfortable process that involved compliance, for an outcome Maddie didn’t even care about, was ill-advised, but I had paid the $4,000 anyway. A poor choice in every aspect.

And yet I’ve felt guilty about my failure to take care of Maddie’s smile, as if I have failed her in a measurable way. Everybody else is out there getting their perfect smiles, and every time I thought of even meeting with an orthodontist, something stopped me. After Maddie’s most recent trip to the dentist, I was determined to move ahead, but this time with braces because once they’re installed, they’re not going anywhere until the job is done. But the “call orthodontist” item on my to-do list remained untouched as the days went by. I couldn’t even make the phone call.

And then my niece Rachel, who is living with us, said something magical. She described how painful and miserable having braces was for her. I never had any orthodontics, so what did I know? I see other kids struggling on days when their braces are adjusted, but I didn’t realize how painful it could be. Nor did I realize how much tedious care was required, like frequent tooth-brushing and flossing above the braces. As I pondered the unlikelihood of braces being a successful endeavor anytime soon, Rachel said, “Maybe she’s not ready.”

YES! Maybe she isn’t ready. Maybe not now. Suddenly a weight was lifted that I hadn’t fully realized was there. She’s not ready. She’s not ready and that’s okay. She doesn’t have to be ready now. At all. Even if she’s not ever ready, so what?

And so I let it go. Perhaps in a few years we can make it happen, but the truth is it might never be worth the suffering. Maddie certainly doesn’t care if she has a perfect smile. I hope she doesn’t end up with jaw problems, but if she does, we can help her then.

Those words have sunk in and settled in my brain. Maddie isn’t ready. Maybe she’s not ready for full-time school. Maybe she’s not ready to handle homework. Maybe she’s not ready for a lot of things. And what’s wrong with that? What is the hurry, after all?

I have long realized the interesting dichotomy that resides in my daughter. She is at once 15 (“He’s hot!”) and four (“I need help shampooing!”). Right now she’s in her onesie cat pajamas, lounging in her cave-like room, playing Minecraft. I’m not sure which parts of that are four and which parts are 15, but it doesn’t matter. She’s just Maddie.

And–at least for the moment–I’m okay with that. I am trying to meet Maddie where she is. And for now it’s working. Of course it’s day eight of a nine-day vacation, during which I have required virtually nothing from Maddie, so perhaps I’m in denial. Come Monday morning, who knows how I feel?

I just take it as it comes, and there is certainly some peace in that.

The Problem with Geometry

When I had geometry in high school, I loved it. Math came easily to me. Geometry was intuitive and satisfying, especially proofs. If this, then that, and then this, and then finally that. I think what I enjoyed about math was coming up with a solution that is objectively right. You know when you are done, too. It’s probably the only field of study that is so concrete. Science is as well, but even as we answer questions using science, there is always the possibility that those answers are wrong or just incomplete. Math is so much better in that way.

Unfortunately, I am finding my battle with geometry a bit less satisfying this time around. As I like to say, “School was so much easier the first time I did it!” I was in charge of myself, for one thing, and nobody else. I did my work and that was that. Now I’m coaxing and helping and struggling and sucking at it.

My husband and I were both excited for Maddie to have geometry this year. She’s very visual and spacial, so we thought it would be a good fit. Also proofs were alway satisfying to both of us, so we anticipated Maddie would find the same interest we had. Uh, nope.

What I hadn’t thought through was her difficultly anticipating the future and how it might affect her ability to do a proof. You have to have a vision of how to get from the beginning to the end, and all the steps in between. She is having trouble. They’ve just started on this particular section, so I’m certainly not throwing in the towel, but I can see already that proofs aren’t coming as easily to Maddie as the rest of geometry has.  That mental follow-through just isn’t happening.

Furthermore, as you probably know, math has changed so much over the years. While premises and conclusions might be the same as they once were, the methods for getting to the end have changed dramatically. This has been a problem in our house for years. Do I remember algebra? Sure, but I’ve never seen it done that way. Proofs, it turns out, look different too. I could learn the new method–once I seriously reviewed the theorems involved–and then I could help Maddie. But for now I’m stuck.

Because math has historically come easily to Maddie, having trouble with a concept doesn’t sit well with her. She has little patience for going to battle with her homework. If she can’t do something right away, and do it easily, she gives up. She gets discouraged. She certainly has grit in other facets of her life (she has had to develop that), but homework isn’t one of them.

So over the weekend, when she had numerous missed days to make up for, geometry just didn’t go too well. We looked up a tutorial on the internet. That was potentially very helpful, but without the theorem knowledge in my head already, and without Maddie’s commitment to really trying, watching the video was pointless. I gave up. I got her through the homework she could do without much trouble, and hopefully she’ll seek out the help she needs at school.

The problem is, once again, she is not at school. She wanted more sleep, she said. She’d go later, she said. I knew she was tired. I also knew she wouldn’t go at all today. She has never once done that.

And so I accepted it. I knew she would never wake up, stretch and look outside, and think, “All right! I’m going to school! I’m ready for action!” She promises she will go the rest of the week. And for now, she means it. But she can’t really anticipate tomorrow, or what will happen if she doesn’t go yet another day. Just like the proofs, she can’t get from point A to point B to point C in her head. She’s living in point A. Always.

And unlike geometry, there is never a right answer with raising Maddie, or really any kid. You never know if you’re right or when you’re done. You can never write down that number and drop your pencil in a dramatic fashion as if announcing victory over your homework or your test. Problems aren’t solved. They morph into new ones. Or the answer you thought was right appears to be wrong now. This stuff is hard.

So we begin the week with Maddie behind severals days in her school work, and getting behind yet another day. Apparently the school’s current solution is to continue lunch detentions (Who cares? she says), and then bring in a truant officer. When? I want to know. And to do what exactly?

I don’t know what the solution to Maddie’s attendance issue is, but I’m pretty sure we are miles away. I guess the key is accepting that. Maybe even accepting the a solution or answer isn’t possible at all.

I have a friend on Facebook whom I knew in high school. He is a kindhearted, lovable and well-loved man who was in the special education class. He’s in his early 50s and still lives at home with his parents, who obviously adore him and fully participate in his life. His posts are typically upbeat and fun as he gets to do so many fun things with all of the people who love him. I don’t think he works. He’s very much like a kid in an adult body, and he gets to live out his childlike existence in such a lovely way. Nobody is forcing him to grow up, and nobody is pressuring him to be any different.

I was suddenly very struck by that yesterday. What if I discarded the idea of finding a solution? What if I went all the way, one hundred percent, to acceptance? What if I just focused solely on Maddie’s happiness and let her be the kid she seems to want to be?

The problem (if you want to call it that) is I know Maddie’s intellectual development is not an issue here, and she is quite capable in many ways, so I’m not sure at all when to give up the idea of her moving forward in life, living on her own, maybe going to college, maybe having some kind of job, maybe even having a family.

I think for now I’ll keep pushing forward, with the knowledge that at some point I’ll have to shift my expectations. And accepting that possibility.

For now I just have to get us through this day, and this week, and the next. At least at that point she’ll be on winter break, so I can relax a little. And maybe re-learn some geometry.

How to Move the Unmovable

How do you move a concrete wall?

If only this were a riddle or there was some trick to it. The answer, I’m afraid, is you don’t. You can push and coax and cry and kick and scream, but the wall doesn’t care. The wall is stuck. The wall’s purpose is to be there, to stay there, to be firm and strong, no matter what forces oppose it.

And so it is with my child with autism.

The difference is with a wall, you would think, “Oh, well. It’s a wall, for Pete’s sake! Of course I can’t move it! What a good wall!”

With a kid, you think, “There has got to be a way.” There has got to be a way, even though there has never been a way. There has go to be a way because it’s not acceptable for there not to be a way. There has got to be a way because she’s a person, not a wall.

Unfortunately, when this particular person is short on sleep, the foundation digs even deeper into the soil. She is prepared for an earthquake after all, and no amount of earthshaking is going to rattle her even a little bit. She is bulletproof, earthquake proof, everything-proof. She is reward-proof, punishment-proof, logic-proof, emotion-proof.

That is how determined she is. I guess you have to admire her a little bit.

Unfortunately, Maddie stayed home all day yesterday and slept or just hung out in bed. I was kind of expecting it because she had been out of school for five whole days, and even a three-day weekend can make for a rough first morning back. So she was tired yesterday and behaved accordingly, which has a spiraling effect: If you lie around and sleep all day, you probably won’t sleep at night, which makes you sleepy the next day. And here we are. She needs to get up and suffer a little bit, but she won’t.

Yesterday she said she needed to sleep and would go to school later. But of course “later” never came. I asked her repeatedly about going to school, and finally asked her for a definitive answer to save myself some trouble. Did she intend to go? No. Yeah, I thought so.

She is saying the same thing now. She wants to sleep a little more and then I can drive her to school. But I have plans today. As happens many days, those plans may have to wait. I have a kid to deal with. I might have to spend the morning coaxing her up and driving her to school at the exact moment I hoped to be walking in the woods with a friend. I could really use some fresh air, some friend time, some nature. How therapeutic that would be!

Instead my chest is tight. My head is pounding. (Thank goodness for the funny Donald Trump post on Facebook today. It’s helping a little.)

I’m especially stressed out because Maddie’s drama class has a performance tonight. If she misses school today, can she participate? I’m not sure. Maybe she’ll go to school. Maybe she won’t.

Last year she completely bailed out on her drama class performance because once she got home after school, she decided she was too tired. I tried everything. Even her teacher talked to her on the phone. No movement. People were pretty mad at her the next day, but eventually it blew over. Then her report card came. Mostly A’s and then a D in drama. We agreed she had it coming. It didn’t feel good, but even if I remind her about that today, we all know she won’t care enough to change her behavior. She’s just not built that way.

Yesterday the only thing I had required of her was a shower. She has that performance tonight and she should at least be clean.

Guess what? No shower. Her scheme instead: her last period today is called Advisory. It’s a 90-minute block where the whole school is sort of on pause. Students are able to visit whatever teacher they choose for help, or just do homework, or whatever. Today, though, she planned to go to the gym and take a shower. What kid would ever opt for a school gym shower instead of one at home? Maddie, that’s who. We discussed this idea for awhile last night. I told her I wasn’t confident about her follow-through.

“Well, how can you know if I can do this if you don’t give me a chance?” she argued. Oh, she’s good. And to some degree she’s right. This particular plan hasn’t come into play before, so I can’t know if she’ll actually do it. But what she doesn’t understand is that her failure to get up in the morning, or take a shower at night, or do all the other things she’s supposed to do, is directly related to my faith in her follow-through on the gym/shower plan. I could tell my arguments weren’t going to get her in the shower last night, so I reluctantly conceded. She had to pack her shower stuff last night in preparation, and she dutifully did as I asked.

Here’s the thing: I have no doubt that in moments like that, Maddie fully intends to do what she plans. She can’t imagine that she won’t. She can’t imagine why she wouldn’t. So in her mind, it’s absurd of me to doubt her. Unfortunately, past behavior is the best predictor of future behavior. I need to throw those words out at her. Pointless, I’m sure, but maybe I’ll feel better.

It’s 8:07 a.m. I’m already burnt out for the day but I have so much more parenting to do, including–I hope–getting her to her performance tonight and enjoying the fruits of all our labor. I love to watch her perform. She’s a committed actor, fearless and funny. I could use some of that tonight, some of the fun parts of parenting. But I have a long way to go. Almost eleven hours.

I’m hopeful. Maybe stupidly, but still I’m hopeful. I am hopeful the play will be enough motivation to get her up and going. Just for today. And, for better or worse, tomorrow will be another day. But at least it won’t be a Tuesday.

So how do you move the unmovable? Beats me.

 

 

 

 

Trip to Party City

Today I drove Maddie across the county to her current favorite store, Party City. I hate that store. I hate the Target/Costco shopping center in which it’s located. It’s a madhouse, particularly around the holidays. I don’t like driving up there–ever. I prefer to live my life as locally as possible, within a town or two. I never go to Trader Joe’s because it’s twelve minutes away. Target is 20. So forget it.

But I had promised Maddie I would take her there. It was part of the campaign to get her to join us for Thanksgiving. The following two days I didn’t feel well; plus it was Black Friday and whatever Saturday was, so there was no way I’d go anywhere near that massive retail development. That left today, Sunday. I promised her no matter how bad I was feeling I would take her. So I did.

We agreed we would leave around 1:00 p.m. She had some RPing (role playing) to do online in Minecraft before we went anywhere, and that was fine with me. Just a few minutes after 1:00, she appeared in my room, fully clothed with a hat on.

“Uh, you have to put regular pants on,” I said, referring to her baggy sweats. “And a bra. And you have to brush your hair.” She wasn’t thrilled.

“This is fine,” she insisted.

“Well, I want you to put pants on and a bra. You also smell a little bit.”

“That’s just my deodorant,” she said. “Trust me.”

So just as we all did with our babies’ diapered butts, I shoved my nose into her armpit to check the smell. “No, that’s straight up BO. You need to wash up and change your shirt.”

She informed me it didn’t matter, but for once I had the upper hand. “Well, that’s what you have to do if I’m taking you,” I said.

And, for once, she accepted her fate and turned around to take care of business.

Once she was dressed and ready to go (this time in shorts even though it was about 50 degrees today, what I call “California cold”), we hopped in the car. It was an easy drive, thankfully. And to my surprise, the shopping center parking lot wasn’t especially crowded, considering the day. At first I had planned to do other things while she shopped (Sephora is nearby, and I’d much rather try on lip gloss and eye shadow in that nice store than hang out in Party City), but I walked in with her and decided to stay for a bit. The store was nearly empty, as opposed to the day before Halloween, which was the last time we went, when the line inside went across the front and down an aisle all the way to the back of the store.

“What are you looking for?” I decided to ask. I came to wish I had asked her long before we left because although she had spent some time preparing, her “list” consisted of images of characters of which she wants to create costumes for herself. So each item she wanted still required a bit of consideration. Oh boy.

After about 30 minutes in the store, it occurred to me to ask, “So how many characters are you working on?”

She didn’t have an immediate answer for that question, but after thinking about it she answered, “Seven. Well really more. I have pictures of seven but I know there are a couple more. I just can’t remember what they are.”

Ugh. Not only did she want to shop for parts of costumes for SEVEN different characters, the items she needed were mostly not going to be readily available at Party City. If it had been before Halloween, we might have had a more of a chance to find whatever she wanted, but all the Halloween stuff was all put in boxes and the Christmas and New Year’s stuff was going up. The boxes crowded the back of the store where we were spending almost all of our time.

I tried to help her get through her sort-of list.

“What else do you need?”

“A yellow belt. And yellow boots…Hey maybe I could get this furry skirt and make it into a belt.”

I could see where this was going. One of Maddie’s greatest gifts is her resourcefulness. Another is her determination. But sometimes those combine to result in some ridiculous and unworkable solutions to problems. For example, making that furry skirt into a belt. It was $20, for one thing. And it would be a lot of unnecessary work for probably a pretty unsatisfactory if not absurd outcome. I talked her out of it. I assured her we could find something better. Furry leg warmers also seemed like a good idea for yellow boots. I shot her down gently. Sometimes I have to save her from herself.

This kind of thing went on for awhile. I helped her find a few things. I talked her out of a few. I also mentioned several times that their supply of of costume-related items would be limited right now, but that Amazon would probably have much more because its merchandise isn’t so seasonal. She understood that but really wanted to maximize her Party City experience. I preferred the idea of sitting comfortably at home, with more pleasant lighting, searching the internet. That just sounded so nice.

After an hour or so, I felt the bad florescent lighting doing its dark magic on my migraine-susceptible brain. Plus I was just tired of being in that store, looking at crap. I asked Maddie to please try to wrap it up, but she had a bit more shopping to do. Since she had brought her own money, I excused myself and said I’d be waiting outside.

After another 20 minutes of waiting outside, I had run out of patience. I needed to get out of there. So after looking around the entire store, I finally found her hunched over a box gleefully looking through whatever merchandise was in there.

Shortly before I had gone outside, she has spotted a couple swords in one of the dozens of boxes that were packed up and ready to leave the store in exchange for the seasonal stuff moving in. Apparently her discovery led her down a slippery slope. One box led to another box and another and another. The entire time I’d been outside, she was opening boxes and searching through them for who-knows-what. She sure was enjoying herself!

But I was just done. So I told her to wrap it up. It was time to go.

“No!” she exclaimed happily. “I need to look through more boxes!”

“Maddie, it’s time to go.” No response.

“Maddie.”

“Maddie!”

“Madeline!!!” I finally shouted. “We need to go NOW!” I found myself getting a little loud at this point. I didn’t want to, but she wasn’t hearing me and I was getting increasingly desperate to end this little excursion.

Fortunately Maddie got the message. I grabbed the Cart o’ Crap and pushed it quickly to the checkout counter at the front of the store. Maddie stood there and looked at the clerk. Finally she put one item on the counter, at which point she felt she needed to explain that item to the cashier. And then she just stood there, staring blankly.

A migraine was becoming almost inevitable. I had to get out of there. I grabbed all her stuff and shoved it onto the counter and told Maddie to get out her money. Thankfully the cashier was efficient and soon the transaction was over and we could leave.

I did it! I took Maddie to Party City and I lived to tell the tale! I didn’t even cry once! I didn’t end up with a migraine (close call!) and Maddie was happy with her various wigs, streamers, a yellow cape, and some other random crap (as Maddie would say).

 

I’m pretty sure my Mother of the Year award will arrive soon. I hope it’s made of chocolate. Or jewelry.

P.S. On our way home, traffic came to a stop. I was distressed. I knew it would be a bad day to travel, but I still didn’t expect that. As it turned out, though, holiday traffic wasn’t to blame. The delay was due to a terrible crash. As we passed the scene, I saw the cars that had been involved. One clearly had rolled once or twice. The other was demolished in the front. I had a bad feeling. There was a good chance at least somebody didn’t survive. I just learned I was right. One driver lost control, spun and became airborne. And she died. The other driver isn’t in good shape either.

So now, thinking about what I considered a difficult, stressful couple of hours seems but a trifle. So I had to go to a store I hate and stay longer than I wanted. So what? I have a cool, interesting kid who fully embraces her nerdiness. And she is happy and healthy and safe. All is well.

 

 

 

Thanks for a Bunch of Stuff

It’s the day before Thanksgiving. I’m busy cooking away. The first thing I’m thankful for, though, is that I’m not hosting. Several years ago I made my first and last Thanksgiving turkey. That sucker was vile, in my opinion. I have decided that any meat I eat needs to look as little as possible like the animal from which it came. I should probably be a vegetarian, but a little meat here and there is just so darned delicious. Especially bacon. And not so much turkey, anyway.

I’m also making spaghetti with meat sauce for tonight’s dinner. I discovered I like cooking so much more when (1) it feels totally optional, (2) lots of people are going to eat it and hopefully rave about my cooking, (3) I don’t have to clean up (that remains to be seen), and (4) I have music to listen to. Jamming to my Amazon Prime streaming music on the Amazon Echo (product plug!), so tonight it’s all good.

I have hosted Thanksgiving since what I will call the Turkey Incident (only because a turkey happened here), but I had vowed that any turkey served at my house must arrive here already cooked. Or at least not seen or handled raw by me. And, as it turned out, everybody was up for something different anyway, so I made filet mignon one year and meatballs in a creamy tomato sauce last year. Both were delicious and I don’t think anybody missed the usual fare. Also most people probably had it elsewhere on another day, so I didn’t feel bad at all.

We will be having the whole turkey business tomorrow, but today I’m just making about 172 pounds of  Brussels sprouts (with bacon!), chocolate chip cookies, and some guacamole. And then we get to drive about 45 minutes to mess up somebody else’s house. I’m stoked.

The second thing I’m thankful for is my weird and wonderful family. I often despair that my kids are such polar opposites that doing anything together as a family is a real challenge. Tempers flare on those occasions, too. It can be stressful and depressing for me as the mom. But one thing we all do together so well is laugh. We love to crack jokes, make sarcastic comments, dance funny dances and play slightly inappropriate card games (now that we have teens in the house, that is). We laugh so much. Humor has always been central to my life experience. I would rather laugh or make you laugh or laugh at myself than just about anything. And we do that. A lot.

This applies to my extended family as well. Whenever we get together, my niece Maggie makes sure we play some games. A year or two ago we started playing a game (it’s really just more of an activity because nobody wins or loses). Everybody has a paper and pen and for two minutes everybody writes the beginning of a story. When the time is up, everybody passes their paper to the left and the next person continues where the previous person left off. Everyone writes furiously for two minutes. And in the end we inevitably have a collection of stories that range from funny to tear-inducingly hilarious. It turns out everybody in my family is not only hilarious but also creative. You can usually tell what Maddie wrote because she often gets stuck on a phrase (for a long time it was “flaring butt cheeks”). And I always thought I was the funny one. 😦

(An extra little shout=out of gratitude for my niece, Rachel, who is gracing my life with her wonderful self right now.)

I’m also thankful for the family I married into. I am one of those lucky women who adores her mother-in-law. It’s mutual, it’s safe to say. She’s kind and fun and honest and open and a true friend. She and my father-in-law have always treated me with such kindness, love and respect. I’m proud to be part of that family.

I’m also thankful for all my friends. My life is full of the best women. My oldest friendship is with Melinda–34 years of friendship and counting. She and her husband Jonathan successfully played matchmaker about 19 years ago, and the result is my marriage of 17 years (so far) and two crazy kids. Another result is a four-way friendship among us that is one of the greatest joys of my life. Jonathan is my husband’s childhood friend, so the history between us is unusual and deep. Our families are intertwined and our friendships are the best combination of friendship and family. We spent the evening together last weekend, and, as always, I laughed and laughed. I also didn’t want to stop hugging them.

I have so many wonderful friendships, and that term is really meaningful to me. Friendship means a close connection, being there in spirit if not in body. It means holding the other person wherever they may be. It means doing what you can to help, whether it’s picking up their kids, hanging out having an afternoon glass of wine while we try to solve each other’s problems, or sending a message of support in difficult times even if there are 3,000 miles between us. From the friends I made in high school and college and grad school across the country, to all the awesome women I’ve met through my children, I love and cherish them all.

I have so many other things to be thankful for. This beautiful place I live in, the community I’ve become so much a part of, the resources to help our special needs kid (we are SO lucky), a roof over my head, food on the table. I have everything I need and so much more. Despite the stress I write about so much (and it is real), the truth is I’m very happy. I have so much to be grateful for. And every day, not just today, I am grateful.

Last week I was snuggling up with my seventh-grader at bedtime. “We talked about gratitude in class today,” he told me. “Studies show that people who are grateful are happier.” He clarified: “It’s not that happy people are more grateful. It’s being grateful that makes you happy.”

I think he can move onto eighth grade now. Or maybe straight into adulthood. He has learned the biggest lesson of all. Focus on gratitude, and you will be happier.

So Happy Thanksgiving, all. May the gratitude you feel tomorrow and throughout the season stay with you forever. And may you laugh tomorrow at least half as much as I will.

Life As I Know It

Yesterday was such a long day. I think I might have aged a year in 14 hours. I’m certain a few gray hairs have appeared and my frown lines have become more pronounced since yesterday morning. It was just one of those days that needed to END. I needed a fresh start today. Fortunately every day is an opportunity for a fresh start, and every day I take it.

After I got Maddie off to school yesterday, after several hours of dealing with her opposition to that idea, I was exhausted in ever way. I was immobile for most of the afternoon, lacking the energy and desire to see anybody or do anything. For a moment I thought a little retail therapy sounded good, but I was too depressed to go anywhere. So I went home and did nothing. Well, I wrote a blog entry and watched an episode of The Voice. Good choice on my part for a number of reasons, including the fact that writing and watching On Demand didn’t cost anything.

Soon it was time to pick up my son, and not long after that Maddie arrived home in the cab. I was dreading the afternoon all day. I knew she would have quite a bit to accomplish because she hadn’t finished some of her work from the night before. And I was right. She had a pretty hefty math assignment and science to complete. Plus a shower.

Ever since homework became part of our lives when Maddie was in first grade, I have spent some of the day dreading it. And the moment I see her after school, it is on my mind. I always give her a warm welcome home and ask her about her day, but then I dive into the homework questions. And we make a plan. Or rather, I make a plan.

So we dove in around 4:00 and nearly three hours later I was still sitting with her while she did her math. She needed a little help with a couple problems, but mostly she needed help staying on track. She’s been better about that lately, but yesterday everything was a challenge for her, so I just gave in to the idea of sitting with her to ensure success.

I did not, however, anticipate how long it would take her. There were an awful lot of problems to do, She was also very unfocused. I spent a lot of energy helping her be productive. It was hard. I was patient. It was long. I got tired. When she finally finished her math, it was time for a little science work, but she also had a long overdue shower to take, and I sent her off to do that.

And then the shit hit the fan. She decided she wanted to watch the newest episode of The Flash. But it was too late to both take a shower and watch the show. By that time I had given up on the science; she could do it the following day during Academic Workshop (study hall). She would have to stay up late in order to watch the show.

“Absolutely not,” I said.

“Why not?”

“Well, you skipped school yesterday and missed half the day today. You do not get special privileges unless you earn them. You don’t even have your usual privileges,” I explained calmly.

And then I saw it. Her body stiffened, and the expression on her face changed. Her eyes looked determined and her lips smirked. Everything about her said, “Oh YEAH?”

“I really want to watch The Flash,” she insisted.

“I’m sorry, but the answer is not tonight.

“Why not?”

“I already told you why not,” I said, and then repeated my explanation from a moment before.

Maddie was not giving up, but instead becoming increasingly determined. She would not budge. She looked me straight in the eye, challenging me to defy her wishes. How I wanted to just say, “Oh, forget it, go ahead.” That would have been so easy and relaxing. She could go do her thing and I could do mine, and everybody wins!

Except everybody doesn’t win. She has to understand that her choices have natural consequences. If you haven’t finished the things you are required to do, you will not have time for fun. That’s just the way it is. I have said that a thousand times. But as we’ve learned, her mind doesn’t work that way.

“But why?” she asked over and over. I explained that special privileges are earned, and staying up late is a special privilege that she had definitely not earned.

She was desperate. She wanted to watch The Flash so badly. “How about if I stay up late tonight and then get up in the morning? Then you’ll see I can do it.”

Stupidly I have fallen for this logic more than once. It sounds wonderful, but it’s a trap. It NEVER happens that way. Why do the work when the reward is already in your pocket? I got my reward, so see ya!

But last night I remained strong. I would not give in. But she’s a tough nut to crack. She wouldn’t give in either, and she is the most determined person you could ever meet in a moment like that. She followed me around the house, looking me in the eye, challenging me. She wouldn’t let me out of my room, blocking each door as I tried to exit. She announced she would do it all night if need be. And you know what? She is perfectly capable of that. I could feel panic start to set in (What am I supposed to do now?) but I worked to retain my calm exterior. I was not going to give up or give in or be upset. I would stay firm and strong and calm.

“I’m done with this conversation,” I announced. “I’m not going to answer you anymore if you talk to me about it.” I had to do my part to put this issue to rest.

But the conversation wouldn’t stop. I kept repeating that I was done, and she kept going. She was going to WIN.

Finally, Rachel (my niece) said, “I’m going to the store. Wanna come with me?”

Oh thank you, my dear Rachel! Something had to give here. Somehow this needed to stop. I was trying to extricate myself, but Maddie wouldn’t allow it until that moment.

We were only gone 15 minutes, but it was a very valuable 15 minutes. I had been trying to leave, but wasn’t able. It was a good instinct. When I got home, Maddie was calm and remorseful.

I looked at the clock. We had spent an hour and 15 minutes in this cycle of questions and explanations. I pointed that out. She could have accomplished so much during that time or even gotten some sleep. She announced she was now ready to shower, but then it was late, so I suggested she just get into bed.

“I just want to sit here and mope,” she said.

“What are you feeling right now?” I asked.

“Guilt. Regret. Sadness,” she answered. Well, that’s something. Emotions identified and communicated! Nicely done.

“Do you know what you do when you have feelings like that?”

“No.”

“Well, when you have guilt and regret, you think about what you did. You think I don’t want to feel like that again, so I won’t do that again.”

“Oh.” News to her, as usual.

“Let’s start fresh tomorrow,” I suggested. “We’ll just start over. If you’re awesome all day, starting right now, and you get up in the morning on time and do your homework and shower without any arguing, you can stay up a little late to watch The Flash.”

I have learned that if she has already lost any chance at a reward, there is no more leverage. I try to keep that in mind. There has got to be something fairly immediate at stake, and even then, as we know, the outcome is not guaranteed. Not even a little bit.

“Okay,” she said. I hugged her and we talked and I said goodnight.

It was a hell of a day. I am glad it’s was over. I wish I could be optimistic that tomorrow will be a better day, but reality and experience tell me it’s a crap shoot. It seems to me that a third morning in a row like this can’t possibly happen. I’m not sure I could take it. Maybe I would give up. I can’t do this forever. I can’t even do it the rest of the year. And I’m not sure even another day would be survivable. I might need to take my puppy and run away, as I sometimes think to myself.

But I won’t. I’ll be here. I will get up in the morning and give it a try. And hope for the best, or at least something better than the worst.

A Miracle Has Occurred, But I Still Feel Terrible

Somehow or other Maddie changed her mind and went to school. I was about to say “I got her to go to school” but we all know ultimately Maddie is the one in charge. It was three hours into the school day by the time we left, but a half day is better than no day at all.

After a day of trying to be zen about this whole thing yesterday, today I just didn’t have it in me. So I played hardball with Maddie. After I sent the cab driver on his way, I took away access to all electronics. She didn’t like that. I wouldn’t engage in light conversation. “I’m not talking to you,” I said when she initiated small talk, trying to smooth things over. I even emailed the educational consultant to follow up on boarding schools, and she watched me do it. Today I’m feeling like I can’t do this anymore. Maybe somebody else can instead.

“Can I have my stuff back?” Maddie asked.

“No,” I laughed, incredulously. “You didn’t go to school.”

“Well, when can I get it back?”

“When you have gone to school.”

“What if I go to school today?” she queried.

“Well, then I’ll give you something back. I’m leaving in three minutes,” I said, “to go to the chiropractor. If you’re ready to go in three minutes, I’ll take you to school instead. I’ll put your lunch together and then I’m leaving.” I was very matter-of-fact. I meant it. I wanted her to go to school so much, but I was done lobbying. Plus, even though I was perfectly willing to skip my appointment, it had to be for something as big as driving her to school.

So when she said she was almost ready, I sent off a quick text to Dr. Marc, canceling my appointment.

I love my chiropractor. He’s not your usual “crack, crack, see ya” kind of guy. An appointment with Dr. Marc lasts a whole hour and involves only deep massage along the spine (or whatever you need) and a few pops with that triangular adjusty thing. If you have jaw problems, like I did a few years ago after taking a baseball to the temple, he’ll press some points inside your mouth that make you want to run through the door like in a quick cartoon escape, but it works. He’s gentle and kind and has so much sympathy. Seeing Dr. Marc is a form of therapy in a way. I could have really used a visit today. But I gave it up for Maddie.

A couple weeks ago I was in a bad way. My upper right side, including my neck and shoulder, was in so much pain. I thought maybe I had a pinched nerve from sleeping wrong. When I gave Dr. Marc my explanation, he looked at me uncertainly, as if waiting for more information. “I’ve been under a lot of stress, too,” I added.

“That would explain it,” he said, nodding sympathetically. “You carry the world up here,” he observed as he manipulated the area above my shoulder blades. Boy, is that the truth. There is everything I experience, right up there on my shoulders. I’m hunched forward at the shoulders all of the time. Apparently it’s from a fight or flight response to stressors. That makes so much sense to me.

Some years ago I had the sensation of a knife going from my chest straight through to my back. “Stress,” diagnosed my doctor. But his only suggestion was, “You’ve got to find a way to deal with this.”

I still haven’t figured that out. Wouldn’t that be magical if I could just “deal with it”? Every day I try to “deal with it.”

So this morning when I was pulling out of the high school parking lot after watching Maddie stroll toward the office to check in, I didn’t feel some huge sense of relief. I was glad she was at school for half the day, but the weight of it all is still with me.  I wish the chiropractor could remove that weight permanently, but all he can do is try to relieve the pain from the weight I can’t seem to shake. He is not the magic answer. I don’t know what is.

I also don’t know why Maddie changed her mind today. I’m glad she did. All the moms I know hate making lunches for their kids. I hate making lunches for my kids. I’m tired of it. But I would make 100 lunches a day rather than deal with this in the morning. I woke Maddie up at 6:30 and spent the next 3 1/2 hours trying to get her to school. This afternoon we’ll embark on homework and the shower that was supposed to happen yesterday. I hope she’s more cooperative, but I can’t count on that.

Deep breaths. Deep breaths. Life goes on. Deep breaths.