Finding My Voice

Recently I wrote about what’s been keeping me from writing. A few personal distractions have factored in to be sure.

Now I have realized there has been another big distraction from my Asperger’s parenting blog. And that is the current election.

I won’t go into my opinions here. Suffice it to say they are strong. They are burning. They are becoming increasingly consuming of my mental energy. I have always had opinions about these things. I have some very firm beliefs, which have developed over the years as I have grown and matured and become more open-minded and more worldly. I would say they are mostly fully formed.

But like many of us, I have refrained from engaging in discourse about those taboo subjects: religion and politics. I think money is one too. I still don’t really want to discuss religion. That’s personal. Another person’s religious beliefs are their own. I respect them and value our differences. I am certainly curious to learn about various religions, but I don’t feel the need to convince anybody one way or the other or to be converted, either. And money is just not that interesting to discuss.

But politics has become something else for me all of a sudden. I am so fired up I feel like I might explode. And guess what? Sometime over the last year, I have found my voice. Partly it’s probably due to my age. I turned 49 last month. I still feel 25. I’m still goofy and silly and jokey and dancey and sing-y and face-makey and all that good stuff. One of my purposes in life is to have fun with my people. I want us all to enjoy ourselves. I put a lot of myself into that mission on a daily basis, particularly with my family. We dance with the dogs, and say “That’s what she said” as often as possible. I crack myself up, to be honest. Seriously, I am HI.LAR.I.OUS.

But this 49 thing has given me something very powerful. Maybe it’s courage. Maybe it’s kind of the old-lady-who-doesn’t-care-what-anybody-thinks attitude, even though I don’t exactly feel old. Maybe those are one in the same.

Or maybe writing 100 blog posts about my life, letting down my guard to expose my fears and failures and weaknesses and hopes, has given me the courage to speak my mind about other things.

Or maybe it’s because things are falling into place with my kids, which have been the consuming force in my life.  I’m learning to accept the challenges of my 16-year-old daughter, and my nearly 14-year-old son is becoming more independent. So I have this freed up energy, energy that is searching for a purpose. And I’m finding that purpose.

Whatever precipitated this development, here it is. I have found my voice. And I really do mean found. I have had this voice my whole life, but I’ve kept it quiet. I’ve been polite and diplomatic and quiet. I have sat around a table full of people who shared a singular viewpoint while I most vehemently but also silently disagreed. I didn’t want to stir up trouble. Oh, the fire burned in me, but my desire to be polite and maybe, I hate to admit, to be liked, has suppressed my voice.

I wish I had found it sooner. It seems like I wasted so much time being afraid to speak up. I was a painfully shy child, fearful of adults in general, even the lady at the Taco Bell window waiting to take my order. Or my neighbor’s grandma, who insisted she pull that sort-of loose tooth out of my five-year-old mouth. I was too timid and shy to stop her. Or my teachers, who just might call on me to speak. Even though I knew the answer or had something important or meaningful or even brilliant to say, the fear of having to open my mouth and expose myself was overwhelming. So first, I had to overcome my shyness, and that has been a lifelong journey.

But there is a lot of room between not being shy and being bold. I think I just figured that out.

So now, finally, as 50 looms, I have decided it’s time to be bold and use my voice for good. Do I still want people to like me? Well, sure, I suppose everybody does. But I want to be liked for what’s truly inside, and that’s coming out, people! It’s coming out! 

I want my kids to see me this way. I want them to see a fearless woman who speaks her mind, who stands by what she believes in. A person with a passion and a voice and the courage of her convictions. A person whose words can make a difference. Because words are my medium.

This particular blog will continue to focus mostly on parenting. No politics here, unless they involve autism or special needs or kids. I have decided, after 100 entries, that this blog is really about my journey as a mother more than Maddie’s journey as a teen, and this newfound courage is part of that journey. It’s my coming out, as they say. My declaration of strength and power and intention. My declaration of purpose. And it feels good.

 

 

 

 

 

 

 

 

Thanks for a Bunch of Stuff

It’s the day before Thanksgiving. I’m busy cooking away. The first thing I’m thankful for, though, is that I’m not hosting. Several years ago I made my first and last Thanksgiving turkey. That sucker was vile, in my opinion. I have decided that any meat I eat needs to look as little as possible like the animal from which it came. I should probably be a vegetarian, but a little meat here and there is just so darned delicious. Especially bacon. And not so much turkey, anyway.

I’m also making spaghetti with meat sauce for tonight’s dinner. I discovered I like cooking so much more when (1) it feels totally optional, (2) lots of people are going to eat it and hopefully rave about my cooking, (3) I don’t have to clean up (that remains to be seen), and (4) I have music to listen to. Jamming to my Amazon Prime streaming music on the Amazon Echo (product plug!), so tonight it’s all good.

I have hosted Thanksgiving since what I will call the Turkey Incident (only because a turkey happened here), but I had vowed that any turkey served at my house must arrive here already cooked. Or at least not seen or handled raw by me. And, as it turned out, everybody was up for something different anyway, so I made filet mignon one year and meatballs in a creamy tomato sauce last year. Both were delicious and I don’t think anybody missed the usual fare. Also most people probably had it elsewhere on another day, so I didn’t feel bad at all.

We will be having the whole turkey business tomorrow, but today I’m just making about 172 pounds of  Brussels sprouts (with bacon!), chocolate chip cookies, and some guacamole. And then we get to drive about 45 minutes to mess up somebody else’s house. I’m stoked.

The second thing I’m thankful for is my weird and wonderful family. I often despair that my kids are such polar opposites that doing anything together as a family is a real challenge. Tempers flare on those occasions, too. It can be stressful and depressing for me as the mom. But one thing we all do together so well is laugh. We love to crack jokes, make sarcastic comments, dance funny dances and play slightly inappropriate card games (now that we have teens in the house, that is). We laugh so much. Humor has always been central to my life experience. I would rather laugh or make you laugh or laugh at myself than just about anything. And we do that. A lot.

This applies to my extended family as well. Whenever we get together, my niece Maggie makes sure we play some games. A year or two ago we started playing a game (it’s really just more of an activity because nobody wins or loses). Everybody has a paper and pen and for two minutes everybody writes the beginning of a story. When the time is up, everybody passes their paper to the left and the next person continues where the previous person left off. Everyone writes furiously for two minutes. And in the end we inevitably have a collection of stories that range from funny to tear-inducingly hilarious. It turns out everybody in my family is not only hilarious but also creative. You can usually tell what Maddie wrote because she often gets stuck on a phrase (for a long time it was “flaring butt cheeks”). And I always thought I was the funny one. 😦

(An extra little shout=out of gratitude for my niece, Rachel, who is gracing my life with her wonderful self right now.)

I’m also thankful for the family I married into. I am one of those lucky women who adores her mother-in-law. It’s mutual, it’s safe to say. She’s kind and fun and honest and open and a true friend. She and my father-in-law have always treated me with such kindness, love and respect. I’m proud to be part of that family.

I’m also thankful for all my friends. My life is full of the best women. My oldest friendship is with Melinda–34 years of friendship and counting. She and her husband Jonathan successfully played matchmaker about 19 years ago, and the result is my marriage of 17 years (so far) and two crazy kids. Another result is a four-way friendship among us that is one of the greatest joys of my life. Jonathan is my husband’s childhood friend, so the history between us is unusual and deep. Our families are intertwined and our friendships are the best combination of friendship and family. We spent the evening together last weekend, and, as always, I laughed and laughed. I also didn’t want to stop hugging them.

I have so many wonderful friendships, and that term is really meaningful to me. Friendship means a close connection, being there in spirit if not in body. It means holding the other person wherever they may be. It means doing what you can to help, whether it’s picking up their kids, hanging out having an afternoon glass of wine while we try to solve each other’s problems, or sending a message of support in difficult times even if there are 3,000 miles between us. From the friends I made in high school and college and grad school across the country, to all the awesome women I’ve met through my children, I love and cherish them all.

I have so many other things to be thankful for. This beautiful place I live in, the community I’ve become so much a part of, the resources to help our special needs kid (we are SO lucky), a roof over my head, food on the table. I have everything I need and so much more. Despite the stress I write about so much (and it is real), the truth is I’m very happy. I have so much to be grateful for. And every day, not just today, I am grateful.

Last week I was snuggling up with my seventh-grader at bedtime. “We talked about gratitude in class today,” he told me. “Studies show that people who are grateful are happier.” He clarified: “It’s not that happy people are more grateful. It’s being grateful that makes you happy.”

I think he can move onto eighth grade now. Or maybe straight into adulthood. He has learned the biggest lesson of all. Focus on gratitude, and you will be happier.

So Happy Thanksgiving, all. May the gratitude you feel tomorrow and throughout the season stay with you forever. And may you laugh tomorrow at least half as much as I will.

My Tiny Place in the Universe

Tonight my husband and I have the good fortune to be in Big Sur, California, for a weekend getaway. We don’t do this very often, so just getting away is wonderful enough on its own, but spending our days and nights on the beautiful and rugged California coast is a gift. We settled into our room and then, after the sun set, strolled up the path way to a soaking infinity tub that overlooks the ocean. We couldn’t see the ocean, of course. Not only is it night time, but the moon was new tonight, just barely an orange sliver that eventually slipped over the horizon. We were left gazing only at the stars (it is REALLY dark here), and there are so many of them visible here. We could even see the milky way. Coming from a small town that lay amid the vast metropolis that is the San Francisco Bay Area, we don’t usually see that many stars. Too many lights below showing people where to go on the ground to see the magnificence above.

Today is the day of the massive terror attacks in Paris. We were blissfully unaware of the events of the day as we spent the afternoon in Carmel near the end of an easy, leisurely drive down the coast.

My husband’s reaction to the news was sadness. Mine was surely sadness, but it manifested itself more as a kick in the stomach. I don’t want anybody suffer the pain and horror and fear and heartbreak that befell this country fourteen years ago, and that on a smaller scale continue to plague us. We read the news shortly after we checked in to our room. My husband was unprepared for bad news. He doesn’t always know how to process it. Who does, really? But I tend to do a little more diving in. I need to gather information and go headfirst into the sadness. I will feel it fully and that’s okay with me.

Out in the pool, sitting in the dark, breathing in the air and the stars and the darkness and the solitude, I couldn’t help but feel overwhelmed with gratitude. Here we are, thousands of miles away from such a harrowing tragedy, living our little lives and having our little thoughts. There are billions of stars in the sky. And here we are, two people doing nothing of particular importance in the world, which itself has little particular importance in the scheme of things.

We’re so far removed in every way from real life. Even our own real lives.

I think of Maddie. I think of all the anxiety and stress I feel over parenting her. I think of the weekly chats I have with my therapist, who helps me figure out how to process what I’m facing, how to be good to myself, and how to, in both emotional and practical terms, parent both Maddie and my son. You would think my life, my mom-hood, is momentous based on the mental energy that goes into it.

But in moments like these, I wonder. I am one of those in-the-moment, here-and-now, do-what-needs-to-be-done kind of people. I really don’t spend much time pondering the meaning of life, or what is my path to happiness, or much beyond just living my life. I don’t know if it’s my nature or a product of having a special needs kid, which certainly encourages, if not requires, that kind of outlook.

And today, whatever energy I do put into all that, might seem pointless in the grand view of space and time, particularly when the people in Paris, in Syria, and so many other parts of the world are suffering.

I will go home the day after tomorrow. I will struggle with Maddie to get her to do her homework. I suspect I will have to ask her 20 times to take a shower. I’ll cook dinner (maybe) and clean up the kitchen and throw on a load of laundry. The usual stuff. That’s not going away. And I’m not going to give up trying because of my tiny place in the universe.

I will keep trying because my tiny place is mine, and it’s the only one I’ve got. I’ll keep trying because Maddie deserves it. She deserves to use her tiny place to its maximum potential. She deserves a mom who will see it to the end, who will not let tragedy in the world color her view, who will continue to be optimistic and hopeful about the world. A mom who, despite a constant cycle of bad news, doesn’t have a cynical bone in her body. A mom who believes in Maddie, who believes Maddie’s life is destined for greatness, and by greatness I mean love and compassion.

That’s where it’s at. Love and compassion. I will teach her about the world, its beauty and its sadness, and encourage her to retain the immense gifts of love and compassion with which she was born. That tiny spot in the universe makes a ripple, after all. And even if the ripple is tiny, too, a good ripple is worth making.

To everyone affected by the terrorist attacks in France, my heart goes out to you. May you heal fully and find more love and compassion than ever before. We’re sending it to you from my corner of the world.

The Reason I Write

Recently I was thinking, after posting the story of yet another challenge with my daughter, about the content of my blog. I started this project as (1) an avenue for sharpening my writing skills and (2) a way to express myself in the face of some difficult circumstances. Once I decided to write, the subject was obvious. This is the thing I have to talk about.

It just to happens that the subject of my blog–parenting my Asperger’s kid–is fraught with a tremendous amount of emotion. Much of that emotion is sadness, frustration, and anger. Some of it is also hope (as you know, I’m focusing on that), admiration, and gratitude. My days are unpredictable. I think a lot, I feel a lot, but mostly I just cope. And I try to be optimistic. And I often fail at both.

This is definitely the story of my daughter and me, but I hope it’s much more. Because once this blog got rolling, I found my true purpose. And that is to speak for all of us parents of autistic kids. Or parents of special needs kids in general. And sometimes even just parents.

What I hope to do is be honest and open about this aspect of my life, to share my victories and defeats, my successes and failures, my moments of genius as well as all the times I royally screw up. I want you all to feel less alone in your struggle. I want the rest of my readers to have more insight into the life of a special needs parent.

So when I tell the story of a particularly terrible morning, it’s not to get your sympathy (although that’s a nice side benefit). It’s to illuminate the kind of struggles the parents of autistic kids might face, to lay bare our frustrations and fears.

I also realize that kids on the autism spectrum are individuals, and that our stories are unique to us. Some kids on the spectrum are very motivated but have social anxiety, the opposite of my daughter. Some kids are rigid and angry. Some kids are emotionally fragile. Maddie is easy-going and happy, stubborn and impossible to motivate. Some parents are more organized than I am, some have been ferociously fighting for their kids since they were toddlers, some have yet to fully recognize what they are dealing with.

But the overarching story is the same: Our kids reside at least in some ways outside of our society’s expectations, and they struggle to fit in. And we as parents have anxiety over how to help them now, and what their lives will look like in the future–next week, next month, next year, next decade. We love them fiercely, we want to both push them and protect them, we feel their pain and rejoice in the tiniest of victories. We feel alone much of the time, as if a chasm exists between us and other parents with only typical kids. We know they don’t know what our lives are like. We know they can’t. It’s a unique experience, parenting an autistic kid. Those of us who do it need each other. And this is why I write.

But something else miraculous has happened in the process of writing my blog: I am better able to clarify my own thoughts and feelings in a way I really hadn’t before. When you write things down (hello, journaling!), you take what might be murky ideas and emotions and put them into words. And it turns out words are really helpful! I might start a blog entry feeling defeated and sad, and by the end I’ve decided to forgive myself and be happy, to focus on gratitude and hope. What a gift!

The truth is that every day that I write, I am finding those things anew. I wish I could say these little daily epiphanies stick with me and that I am suddenly transformed. Nope. It’s a journey, a process, a lifetime project to figure out what to do and how to do it and how to find happiness and joy and cope with fear and hopelessness and frustration. And each day I work on those things. I write them down here, hoping the writing will help all my mental lightbulbs stay illuminated at least a little bit. Maybe a bunch of little lightbulbs will accumulate and eventually light my path so that eventually I can see very clearly where I’m going. We shall see.

In the meantime, I hope my blog is helping some of you. It is certainly helping me.